Long COVID crippling fatigue, work and exercise caused flares, somewhat better with CBD
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Aug 2023
In their words
- Condition: Long COVID
I've been dealing with long covid for about a year now
In context ↗ - At worst: Moderate
im still sick enough to the point where I can’t hold a job or exercise without bad flare ups
In context ↗ - Now: Somewhat better
almost all of those symptoms have been gone for about 6 months ... I still feel like shit everyday
- Began after: COVID
I've been dealing with long covid for about a year now
In context ↗
Read from 29 of their posts and comments; links to the 18 this page draws on
Summary
A Reddit user who developed long COVID in 2020 could not work or exercise without flare-ups later. They credited CBD, vitamin D, supplements, propranolol and low-dose naltrexone with easing anxiety, palpitations and head burning, though intranasal NAD+ brought headaches after a few good days. Most early symptoms faded as crippling fatigue set in, and they still felt unwell daily two years on.
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What they tried
What they credit
Also tried
Their words about each treatment
- Cbd · Helped
I’ve been occasionally using cbd during my long haul and it does help take the edge off of the anxiety
In context ↗ - Vitamin D · Helped
I feel like Vitamin D and Cbd have helped me over come most of those.
In context ↗ - PPI · Helped a lot
Once I got on a PPI it went away completely and hasn’t returned
In context ↗ - propranolol · Helped
It makes my palpitations completely disappear for 4-6 hours.
In context ↗ - antacids · Helped
some acid rebound after I stopped taking it which I alleviated with antacids
In context ↗ - Benadryl · Helped a lot
For me it’s night and day a lot of my symptoms disappear when taking 25mg Benadryl twice a day.
In context ↗ - Intranasal Nad+ · Helped
It’s only been 2 days but I’ve already noticed an improvement in cognitive function and overall well-being.
In context ↗ - ldn · Helped
I’ve had less episodes of the burning sensation all around my head since I’ve been on it.
In context ↗ - avoiding fatty foods and eating hours before bed · Helped
stayed away from fatty foods. Didn’t eat 4 hours before bed to let the inflammation go away
In context ↗ - COVID vaccination as treatment · Worse
Me personally my symptoms worsened afterwards
In context ↗ - Cannabis (THC, marijuana) · Not said
Thc is to overwhelming for me as well.
In context ↗
Approaches: H1 antihistamines · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | Long COVID began with breathlessness, palpitations, brain zaps, POTS, muscle pain and sleep apnoeaMy main issues early on were shortness of breath, palpitations, brain zaps, muscle pain, Pots, sleep apnea, muscle spasms and a few othersIn context ↗ | Moderate |
| 2021 | Shortness of breath gradually faded about six months inshortness of breath was my biggest issue at first but it gradually went away about 6 months laterIn context ↗ | Moderate |
| 2022-04-28 | Improvement over time, but still unable to work or exercise without flare-upsI’m pretty young (20) and have seen improvement over time but im still sick enough to the point where I can’t hold a job or exercise without bad flare upsIn context ↗ | Moderate |
| 2022-08-13 | Most early symptoms gone for six months, but crippling fatigue appearedNow almost all of those symptoms have been gone for about 6 months and I’ve developed that horrible fatigueIn context ↗ | Moderate |
| 2022-09-26 | Still unwell every dayI still feel like shit everydayIn context ↗ | Moderate |
Adverse events
- Proton pump inhibitors (unspecified)“Only side effects I had were mild stomach discomfort the first 2 days” In context ↗ Gut side effects
- Proton pump inhibitors (unspecified)“some acid rebound after I stopped taking it which I alleviated with antacids” In context ↗ Withdrawal problems
- NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)“Only side effects I experienced was some temporary dizziness that resolved in about 10min.” In context ↗ Side effects
- NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)“on day 4 and moving forward I started getting headaches with each use so I put it on pause” In context ↗ Side effects
- COVID vaccination as treatment“Me personally my symptoms worsened afterwards” In context ↗ Made symptoms worse
- Cannabis (THC, marijuana)“Thc is to overwhelming for me as well.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can’t hold a job or exercise without bad flare ups
In context ↗ - Brain fog
The anxiety and brain fog are still issues I’ve been dealing with
In context ↗ - POTS & dysautonomia
My main issues early on were shortness of breath, palpitations, brain zaps, muscle pain, Pots
In context ↗ - Heart symptoms & palpitations
My main issues early on were shortness of breath, palpitations, brain zaps
In context ↗ - Breathlessness
I haven’t had shortness of breath in about a year
In context ↗ - Pain & fibromyalgia
My main issues early on were shortness of breath, palpitations, brain zaps, muscle pain
In context ↗ - Gut problems
Turned out to be really bad silent reflux that caused inflammation and swelling of my larynx
In context ↗ - Neuropathy & tingling
I’ve had less episodes of the burning sensation all around my head since I’ve been on it
In context ↗ - Sleep problems
Pots, sleep apnea, muscle spasms
In context ↗ - Headaches & migraine
my most worst neurological issues were brain zaps, migraines,dizziness, Anxiety, and mild brain fog
In context ↗ - Mast cell (MCAS) & allergies
Makes me believe one of my biggest issues is mcas
In context ↗
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