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Long COVID Mild → somewhat betterIll 16 months before improving or writingNeeds ongoing treatment

Long COVID with extreme lethargy and brain fog, somewhat better after low-histamine diet

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
16 months
Last post
Apr 2023
In their words
  • Condition: Long COVIDgot covid 11/21 and first bout of LC 11/21-05/22 In context ↗
  • At worst: MildSymptoms were extreme lethargy, brain fog so bad I once got a migraine trying to remember the date the Ottomans took Constantinople, paresthesia, etc. In context ↗
  • Now: Somewhat betterI'm getting much better but I've still got a ways to go before I'm back to 'normal.' In context ↗
  • Began after: COVIDgot covid 11/21 and first bout of LC 11/21-05/22 In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

Bramble 19891 developed long COVID after a November 2021 infection, with extreme lethargy, brain fog (once causing a migraine) and paresthesia, recovering by May 2022. Influenza A in late 2022 and a second COVID infection in early 2023 brought symptoms back. By spring 2023 a low-histamine diet and cutting caffeine had helped most, along with supplements, creatine and breathing exercises, though eye fatigue and balance issues remained.

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What they tried

Also tried

supplements (in photos)· Helpedspiralulina· Helped20second far-off focus every 20min· Helpedanxiety control techniques· Helped
Their words about each treatment
  • supplements (in photos) · HelpedAll the supplements in the photos I feel have helped make a chip or two away. In context ↗
  • spiralulina · HelpedPlus spiralulina, French maritime bark (circulation), and creatine. In context ↗
  • Breathing exercises - box breathing and Wim Hof · HelpedBreathing exercises - box breathing and Wim Hof In context ↗
  • low histamine diet · Helped a lotThe low histamine diet and avoiding caffeine have done the most for energy. In context ↗
  • avoiding caffeine · HelpedCaffeine and high histamine foods bring it all back pretty hard. In context ↗
  • 20second far-off focus every 20min · HelpedI try to do the 20second far-off focus every 20min, and usually that worked In context ↗
  • anxiety control techniques · HelpedI’m doing better after minimizing my histamine intake (diet and anxiety control techniques) In context ↗

Approaches: Diet · Mind-body practices · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
11/21COVID-19 infection, first bout of long COVIDgot covid 11/21 and first bout of LC 11/21-05/22 In context ↗Mild
11/22Influenza A, paresthesia returned11/22 got influenza-a and the paresthesia came back In context ↗Mild
02/23second COVID infection, old symptoms returned02/23 got covid again and all the old stuff came back In context ↗Mild
03/30/2023much better on low-histamine diet, supplements and breathing exercisesAs of 03/30, I’m doing much better much more quickly. In context ↗MildLow-histamine diet
04/19/2023doing better, eye fatigue and balance issues remainYup. I’m doing better after minimizing my histamine intake In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogbrain fog so bad I once got a migraine trying to remember the date the Ottomans took Constantinople In context ↗
  • Neuropathy & tinglingthe paresthesia came back In context ↗
  • Headaches & migraineI once got a migraine trying to remember the date In context ↗
  • Vision problemsI had eye fatigue, a weird sense of visual overstimulation going outside In context ↗
  • POTS & dysautonomiaoccasional balance issues In context ↗
  • Mast cell (MCAS) & allergiesI suspect I’ve had longstanding histamine issues In context ↗
  • BreathlessnessLungs were slightly effected for the first month In context ↗

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