Long COVID pain, numbness and crashes; six weeks symptom-free after detox, then relapsed
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 15 months
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I am suffering from LC from over a year ago
In context ↗ - At worst: Moderate
On slight exertion I devolop chest heaviness,breathlessness and whole body pains and then slowly I drift off to sleep.
In context ↗ - Now: Relapsed
I almost recovered 80% and was on cloud 9. Lasted just 3 weeks and sudden relapse. Now again with PEM, palpitation and breathlessness.
In context ↗ - Began after: COVID
I had covid last May and it was a mild attack.
In context ↗
Read from 22 of their posts and comments; links to the 11 this page draws on
Summary
They caught COVID in April 2023 and were soon ill with spreading pain, burning and numbness; eight months in came CFS crashes and breathlessness, with cognitive trouble later. A two-week Ayurvedic detox in India left them symptom-free for about six weeks before everything returned, and ten days of Augmentin gave only two good days. A probiotic reduced fatigue and crashes and they reached 80% for three weeks before relapsing four days after stopping it.
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What they tried
What they credit
Also tried
Their words about each treatment
- Multivitamin · Not said
I ended up with excess B12. But the symptoms you have mentioned especially the feeling of warm liquid poured over the body and pins and needle sensation . My gynecologist had prescribed a multivitamin and I have been religiously taking it
In context ↗ - Antinflammatory or painkillers · No change
first it had begun with excruciating lower back pain which never responded to any antinflammatory or painkillers
In context ↗ - this drug (given when she got COVID) · Much worse
I was put on this drug when I got covid and had to discontinue owing to severe breathlessness.
In context ↗ - Custom Probiotics Adult Formula Cp-1 · Helped
I too felt a marked decline in my fatigue. ... ever since I shifted to this particular probiotic, I rarely did have crashes
In context ↗ - Omega 3 supplement · Worse
I suddenly devoloped stomach upsets and diarrhea on a daily basis. I felt it may be due to this Omega 3.I stopped that and all symptoms stopped.
In context ↗ - Panchakarma treatment · Helped
I had undergone 'Panchakarma treatment' which is full body detox from India and was without any aches, pains, burning or tingling sensation for a month. Unfortunately everything is back.
In context ↗ - Asprin · Not said
Right now I am just using Asprin 375mg prescribed by my physician.
In context ↗ - Augmentin · No change
I felt good for the first 2 days or it could be a coincidence but on the 3rd day I experienced my usual aches,pains and burning sensation.
In context ↗ - Lactocalamine lotion · Helped
I applied the lactocalamine lotion my dermatologist had given me for my face and instantly that burning sensation stopped.
In context ↗ - Pacing · Helped
I know Pacing gives temporary relief, but for how long??
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| May 2023 | mild COVID infection, then excruciating low back pain a week laterI had covid last May and it was a mild attack.In context ↗ | Not stated |
| March 2024 | first CFS experience: crashes with breathlessness and whole body pain after light choresAfter that was my very first CFS experience.In context ↗ | Moderate |
| April 2024 | symptom free for about six weeks after Ayurvedic detox in IndiaI was symptom free for around 1.5 months. Now I am back to start.In context ↗ | Mild |
| June 2024 | relapse after the detox benefit wore off; unemployedNow I am back to start.In context ↗ | Moderate |
| July 2024 | less fatigue and rare crashes on a probiotic, reaching about 80%I too felt a marked decline in my fatigue.In context ↗ | Mild |
| August 2024 | relapse four days after stopping the probiotic; 80% recovery lasted three weeksNow again with PEM, palpitation and breathlessness.In context ↗ | Moderate |
Adverse events
- Omega-3 and fish oil“I suddenly devoloped stomach upsets and diarrhea on a daily basis. I felt it may be due to this Omega 3.I stopped that and all symptoms stopped.” In context ↗ Gut side effects
- “I was put on this drug when I got covid and had to discontinue owing to severe breathlessness.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
excruciating lower back pain which never responded to any antinflammatory or painkillers
In context ↗ - Neuropathy & tingling
along with burning sensation and numbness
In context ↗ - Post-exertional malaise
On doing light chores,the same story repeats.
In context ↗ - Breathlessness
Plus my chest heaviness and sob was still the same.
In context ↗ - Brain fog
I need to read a simple line around 10 times to understand it.
In context ↗ - Heart symptoms & palpitations
Now again with PEM, palpitation and breathlessness.
In context ↗ - Gut problems
I suddenly devoloped stomach upsets and diarrhea on a daily basis.
In context ↗
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