Long COVID
Mild → somewhat betterIll 5 years before improving or writing
Long COVID with gut problems and brain fog, somewhat better with time and gut healing
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
I have covid now and notice that my long covid seems much improved
In context ↗ - At worst: Mild
hard thing for me is I can get to feeling 90% and can then easily push push push
In context ↗ - Now: Somewhat better
My LC improved after a couple of things that changed my gut flora
In context ↗ - Began after: COVID
My initial covid interestingly enough was almost purely GI
In context ↗
Read from 80 of their posts and comments; links to the 45 this page draws on
- Oct 2024
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Summary
A long COVID patient ill since about 2020, first hit by almost purely gastrointestinal symptoms, later PEM crashes, brain fog, flu-like spells and gut problems. From 2024 they reported slow, uneven gains, crediting gut healing and time, and reporting help from colostrum, ashwagandha, turmeric, luteolin, vitamin D/K2, omega-3 and magnesium. Benefits often faded within weeks; kefir set them back, antihistamines sometimes helped but also worsened symptoms, and Allegra caused a severe migraine.
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What they tried
What they credit
Also tried
Curcumin (Longvida, Meriva, turmeric)· Helped a lotNarcotics (opioid painkillers)· Helped a lot · wore offTaurine· HelpedLuteolin· Helped · wore offDiosmin/hesperidin· HelpedButcher's broom· HelpedIbuprofen· HelpedTime zone travel· Helped · wore offBromelain· HelpedH1 antihistamines (loratadine, cetirizine)· WorseH1 antihistamines (loratadine, cetirizine)· WorsePepcid (famotidine)· Worseamantadine· WorseSleep aids· WorseKefir· WorseAllegra (fexofenadine)· WorseLymphatic drainage massage· Not saidCelebrex (celecoxib)· Not saidProbiotic (with PHGG)· Not said
Their words about each treatment
- doxycycline · Helped
seems to help me. used it twice with 50% improvement
In context ↗ - Benfotiamine · Helped
Benfotiamine helps me. First days on it are a bit rough interestingly then it kicks in
In context ↗ - Magnesium · Helped
yes i esp notice the Mag combo is important
In context ↗ - H1 antihistamines (loratadine, cetirizine) · Worse
for me H2 and H1 make anxiety worse
In context ↗ - Red light / NIR therapy · Helped
I find that NIR to body also helps
In context ↗ - Colostrum · Helped a lot
3 year dysbiosis by symptoms only. after two weeks on colostrum symptoms much better.
In context ↗ - Lymphatic drainage massage · Not said
same experieince
In context ↗ - Taurine · Helped
it has helped me erratically.
In context ↗ - Ashwagandha · Helped a lot
started a week ago. major improvement.
In context ↗ - Luteolin · Helped
i had some good results a while back with Luteoplin. now not so much
In context ↗ - amantadine · Worse
I had once taken amantadine for flu and got really depressed
In context ↗ - Celebrex (celecoxib) · Not said
Celebrex never worked nearly as well for me for joint pain or pain in general is Ibuprofen
In context ↗ - Vitamin D3/K2 · Helped
For me, drops were the game changer. in my case Thorne
In context ↗ - Diosmin/hesperidin · Helped
Venous support in the form of Diosmin/hesperidin helps a lot
In context ↗ - Butcher's broom · Helped
works for me. along with diosmin and hesperidin
In context ↗ - Aspirin (asa) · Helped
magnesium, THiamine, Aspirin, fish oil, C, and red light seemed to help too
In context ↗ - Fish oil / Omega 3 · Helped
yes, Omega 3 helped
In context ↗ - Vitamin C · Helped
fish oil, C, and red light seemed to help too
In context ↗ - Curcumin (Longvida, Meriva, turmeric) · Helped a lot
Trying Longvida for a week. Results are really good so far.
In context ↗ - Sleep aids · Worse
almost all of them
In context ↗ - Ibuprofen · Helped
ibuprofen helps me A LOT
In context ↗ - Dandelion (tea, root) · Helped
i feel better with Dandelion tea
In context ↗ - Wellbutrin · Helped
seeing some success with Wellbutrin esp Brain
In context ↗ - Time zone travel · Helped
if i travel 4-6 times zones away i can see startling if brief improvements
In context ↗ - Kefir · Worse
kefir did me in last week
In context ↗ - Bromelain · Helped
I for one really like Dandelion root, turmeric and Bromelain
In context ↗ - Narcotics (opioid painkillers) · Helped a lot
my LC symptoms went away short term
In context ↗ - Allegra (fexofenadine) · Worse
Tried to switch from cetirizine to Allegra. BIG mistake . as in MASSIVE migraine within 2 hours.
In context ↗ - Probiotic (with PHGG) · Not said
OMega 3 ... PHGG ... Probiotic
In context ↗ - Time · Helped
for me i think it was restoring gut health and time.
In context ↗
Approaches: Alternative therapies · Antibiotics · Anticoagulants · Other antidepressants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | COVID-19 with almost purely gastrointestinal symptoms, then long COVID with PEM crashes, brain fog and gut problemsMy initial covid interestingly enough was almost purely GIIn context ↗ | Mild | |
| 2024-10-30 | brain fog cleared during a COVID reinfectionI have covid now and notice that my long covid seems much improved. Brain fog in particular is goneIn context ↗ | Mild | |
| 2024-10-30 | gut much better on colostrumgut feels better than it has in yearsIn context ↗ | Mild | Lactoferrin and colostrum |
| 2024-11-09 | major improvement a week after starting ashwagandhastarted a week ago. major improvement.In context ↗ | Mild | |
| 2025-04-04 | crashed with PEM 15 minutes after breakfast, ending three weeks of the best health in 4 yearsJust finished three weeks of the best health in 4 years. ... Was just thinking i had it licked when BAMM, PEM hard 15 min after BF.In context ↗ | Mild | |
| 2025-09-03 | went downhill after starting antihistamines for MCASStarted on them for MCAS and feeling like i went downhillIn context ↗ | Mild | |
| 2025-12-13 | kefir caused a bad reactionkefir did me in last weekIn context ↗ | Mild | Probiotics and fermented foods |
| 2026-03-11 | worst migraine in years after switching to Allegra, plus headaches on stopping cetirizineStopping it causing HAs and Allegra gave me my worst migraine in yearsIn context ↗ | Mild | |
| 2026-06-04 | slow improvement coinciding with gut healingMy LC improved after a couple of things that changed my gut floraIn context ↗ | Mild |
Adverse events
- Loratadine (Claritin), Cetirizine (Zyrtec), Fexofenadine (Allegra)“for me H2 and H1 make anxiety worse” In context ↗ Mood or psychiatric effects
- Famotidine (Pepcid)“for me H2 and H1 make anxiety worse” In context ↗ Mood or psychiatric effects
- Loratadine (Claritin), Cetirizine (Zyrtec), Fexofenadine (Allegra)“makes my brain fog go through the roof!” In context ↗ Made symptoms worse
- Lactoferrin and colostrum“first two days were hard: intense brain fog, wozzy, abd pain” In context ↗ Herx / die-off reaction
- Amantadine“I had once taken amantadine for flu and got really depressed” In context ↗ Mood or psychiatric effects
- Vitamin D and sun exposure“sometimes it gives me migraines” In context ↗ Side effects
- Thiamine / benfotiamine“First days on it are a bit rough interestingly then it kicks in” In context ↗ Side effects
- “almost all of them” In context ↗ Side effects
- Loratadine (Claritin), Cetirizine (Zyrtec), Fexofenadine (Allegra)“Started on them for MCAS and feeling like i went downhill” In context ↗ Made symptoms worse
- Probiotics and fermented foods“kefir did me in last week” In context ↗ Made symptoms worse
- Cetirizine (Zyrtec), Fexofenadine (Allegra)“BIG mistake . as in MASSIVE migraine within 2 hours.” In context ↗ Side effects
- Cetirizine (Zyrtec), Fexofenadine (Allegra)“Stopping it causing HAs and Allegra gave me my worst migraine in years” In context ↗ Withdrawal problems
Symptoms mentioned
Brain fogFlu-like symptomsGut problemsHeadaches & migraineMast cell (MCAS) & allergiesPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
My PEM is often delayed 24-36 hours.
In context ↗ - Brain fog
Brain fog with it half the time.
In context ↗ - Gut problems
my relapses always start with abdominal pain and loose bms nowadays
In context ↗ - Flu-like symptoms
Periodic symptoms of flu like illness lasting 24-48.
In context ↗ - Headaches & migraine
mine are better overall but likely since i am now on Vit D/K OMega 3 Magnesiun
In context ↗ - Pain & fibromyalgia
Celebrex never worked nearly as well for me for joint pain or pain in general
In context ↗ - Mast cell (MCAS) & allergies
Now MCAS like symptoms: body itch, fatigue, brain fog.
In context ↗ - Sleep problems
seemed to help my sleep (Luteolin that is)
In context ↗
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