Long COVID
Moderate → much betterIll 3 years before improving or writingNeeds ongoing treatment
Long COVID with daily leg pain and brain fog, now much better after rest and diet changes
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Dec 2024
In their words
- At worst: Moderate
I took MONTHS off from work and exercising.
In context ↗ - Now: Much better
Much better. Irregular pain occurs, but not very often nowadays.
In context ↗ - Began after: COVID
Pretty mild. I was back on my feet within just over a week. Long haul symptoms developed weeks later.
In context ↗
Read from 102 of their posts and comments; links to the 36 this page draws on
Summary
Pond 59589 was 23 when long COVID began in December 2021, weeks after a mild covid infection, with daily leg pain, nausea, brain fog, palpitations and severe health anxiety; chest pain was also reported. A first vaccine dose left him barely able to walk for over two days. Rest, fasting and diet changes brought gains; he was near 100% and working full time by summer 2022 until an August reinfection derailed him. By late 2024 he was much better, with irregular pain that was not very often.
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What they tried
What they credit
Also tried
Fiber gummies enriched with probiotics· Helped a lotwalking and light exercise· HelpedAdvil· Helpedfasting (16hr, later 24hr)· HelpedVitamin D· HelpedCBD gummies· Helpeddaily supplements / mens multivitamins· HelpedPPIs / Pantoprazole· HelpedGood diet· HelpedApple Watch· HelpedAlign Pre-Probiotic· HelpedMagnesium Gel· Helpedcompression socks· Helpedelectrolytes· HelpedMonoclonal antibodies (MA)· Worsefirst Vax· Worse
Their words about each treatment
- walking and light exercise · Helped
I have been getting back into a more consistent exercise over the last few weeks, which has greatly helped with my anxiety.
In context ↗ - Advil · Helped
Advil moderately helps me.
In context ↗ - fasting (16hr, later 24hr) · Helped
I fasted 24hrs yesterday, and it made me feel better. My GI symptoms improved, as did the brain fog.
In context ↗ - Vitamin D · Helped
I’m beginning to feel more energetic thanks to the prescribed VD.
In context ↗ - Monoclonal antibodies (MA) · Worse
I had MA too. Been having issues for awhile.
In context ↗ - CBD gummies · Helped
Just took CBD gummies and I was A OKAY.
In context ↗ - time · Helped
Time. That’s really it for the most part. Supplements do help. But mostly time.
In context ↗ - Fiber gummies enriched with probiotics · Helped a lot
I’ve begun having more bowel movements, and my stomach feels significantly better as of late. I am much more energetic
In context ↗ - months off work and exercising · Helped
I took MONTHS off from work and exercising. I believe that helped significantly.
In context ↗ - daily supplements / mens multivitamins · Helped
I take daily supplements which helps
In context ↗ - first Vax · Worse
After getting the first Vax I could barely walk for over two days.
In context ↗ - PPIs / Pantoprazole · Helped
I’m also on 40Mg Pantoprazole.
In context ↗ - Good diet · Helped
Fasting-Good diet- VERY LOW walking if your body can handle it. That’s the three things I’ve done to keep myself going.
In context ↗ - Apple Watch · Helped
It has been beneficial, having that reassurance that my HR isn’t going crazy.
In context ↗ - Align Pre-Probiotic · Helped
I begin taking Align Pre-Probiotic. That seemed to really help.
In context ↗ - SSRI · Helped
Now I’m on three medications. Anti acid, SSRI, and Beta blocker. ... There is a few symptoms the medicines have significantly helped with.
In context ↗ - Magnesium Gel · Helped
Magnesium Gel & compression socks do help though.
In context ↗ - electrolytes · Helped
Seems like more electrolytes help, but it’s not a permanent fix.
In context ↗
Approaches: Beta-blockers · Other drugs and medicines · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2021 | long COVID symptoms began about two weeks after a mild covid infectionPretty mild. I was back on my feet within just over a week. Long haul symptoms developed weeks later.In context ↗ | Mild | |
| January 2022 | daily leg, joint and chest pain, nausea, palpitations, brain fog and crippling health anxiety; two ER tripsI was crippled with health anxiety for over 3months after having Covid.In context ↗ | Moderate | |
| March 2022 | small improvements dailyI’ve been noticing small improvements daily.In context ↗ | Mild | |
| March 2022 | crashed with intense dizziness after returning to long runs too quicklyI returned to long runs too quickly, and it caused intense dizziness for quite awhile. I had to pull back to moderate walking.In context ↗ | Mild | |
| March 2022 | worsened after the first COVID vaccine doseI felt like after the first three months I was improving got Vax, then boom.In context ↗ | Mild | |
| April 2022 | began feeling like himself again after months off work and exerciseI’m beginning to feel like myself Pre Covid. But I took MONTHS off from work and exercising. I believe that helped significantly.In context ↗ | Mild | Radical rest |
| Summer 2022 | almost back to 100%, working full time in a physically demanding jobI was almost back to 100% before second infection. I was working full time (very physically demanding job with high hours) and was doing fine.In context ↗ | Near normal | |
| August 2022 | COVID reinfection derailed his recoveryGot reinfected in the summer of 22, and it derailed my recovery entirely.In context ↗ | Mild | |
| June 2023 | gradual improvement over the following monthsGradually has improved. It’s been nearly two years for me now.In context ↗ | Mild | |
| December 2023 | a lot better with a better diet and daily fastingBetter a lot better. My diet is better. I fast everyday.In context ↗ | Mild | Intermittent fasting |
| December 2024 | much better, with only irregular painMuch better. Irregular pain occurs, but not very often nowadays. I’m very thankful.In context ↗ | Mild |
Adverse events
- Monoclonal antibodies (unspecified)“It definitely can. I had a nasty fever afterwards” In context ↗ Side effects
- COVID vaccination as treatment“No significant changes. Although it did cause nerve pain in my legs.” In context ↗ Nerve pain
- COVID vaccination as treatment“After getting the first Vax I could barely walk for over two days.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I definitely believe getting Vax extended my Long haul. I felt like after the first three months I was improving got Vax, then boom.” In context ↗ Made symptoms worse
- Ibuprofen (Advil, Nurofen, Motrin)“I had a significant amount of ulcers too. Likely due to take ibuprofen often during my infection.” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseVision problems
Their words about their symptoms
- Post-exertional malaise
I try to push it to two miles, and my body felt like shit the entire next day.
In context ↗ - Brain fog
Besides the leg pain, nausea, brain fog, fatigue, and weird chest stuff, I would be back to normal.
In context ↗ - POTS & dysautonomia
I remember when my heart rate use to skyrocket from doing that. Scary times.
In context ↗ - Pain & fibromyalgia
My legs still hurt everyday. It’s a shitty feeling, I know.
In context ↗ - Headaches & migraine
I still deal with headaches.
In context ↗ - Gut problems
I’m nausea everyday. It improved significantly until I got reinfected about a month ago.
In context ↗ - Light & noise sensitivity
Blurred vision, some sensitivity to light, and vertigo.
In context ↗ - Heart symptoms & palpitations
Still deal with chest and leg pain daily. Like you my test results all came back good.
In context ↗ - Muscle weakness
My legs particularly feel weak/fatigued quickly.
In context ↗ - Neuropathy & tingling
The numbness in hands and feet became quite common for me, for several weeks.
In context ↗ - Anxiety & low mood
I’m getting better dealing with the anxiety. But it’s an everyday battle
In context ↗ - Flu-like symptoms
My cough went away then came back. It’s a real bitch.
In context ↗ - Vision problems
Neuro and vision issues too.
In context ↗
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