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Long COVID Mild → relapsedIll 5 months before improving or writing

Long COVID panic attacks, insomnia, improved then returned after 2nd dose; inositol helped

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
5 months
Last post
May 2022
In their words
  • Condition: Long COVIDI was a long hauler who suffered enormous amounts of debilitating pain and anxiety to the point I almost have ptsd In context ↗
  • At worst: MildI have a high strung job and have to be quick on my feet In context ↗
  • Now: RelapsedAfter getting by with no anxiety for about 4 months, to now 2 weeks post 2nd vaccine they are back again. In context ↗
  • Began after: COVIDnever in my entire life up until after I had covid had I experienced a single panic attack In context ↗
Read from 19 of their posts and comments; links to the 12 this page draws on

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Summary

Spruce 88863 had long COVID, with months of panic attacks, intrusive thoughts and insomnia that were new to them, plus arm and wrist pain. They improved gradually by mid-2021, until a second Moderna dose brought panic attacks and insomnia back. Inositol helped the anxiety and mirtazapine helped sleep but was stopped after six days for tiredness. Arm pain settled, then returned after another covid infection.

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What they tried

Their words about each treatment
  • inositol · Helped a lotTry inositol for anxiety. It’s the only thing that really saved me In context ↗
  • melatonin · Not saidI had to take melatonin to go to sleep In context ↗
  • wrist brace · HelpedI ordered a wrist brace to wear on days it’s bad. It seemed to be the only thing to help take the pain away In context ↗
  • CBD oil · HelpedI also tried CBD oil and it helped some until it didn’t. In context ↗
  • Pepcid AC max strength · WorseI DO BOT RECOMMEND THIS CRAP! My heart beat has been pounding ALL DAY and I’m out of breath omg, this made my anxiety sooo much worse In context ↗
  • mirtazapine · WorseI unfortunately had to stop taking it 3 days ago due to the insane amount of tiredness I was experiencing during the day. In context ↗
  • more sleep · HelpedIt gets better with more sleep I’ve found. In context ↗
  • COVID vaccination as treatment · Not saidAfter getting by with no anxiety for about 4 months, to now 2 weeks post 2nd vaccine they are back again. In context ↗

Approaches: Radical rest · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2020long COVID onset with pain, anxiety and insomnia new to themnever in my entire life up until after I had covid had I experienced a single panic attack In context ↗Mild
early 2021three months of the worst panic attacks, intrusive thoughts and insomniaI had the worst panic attack and intrusive thoughts of my life, and it continued on from there for 3 months In context ↗Mild
April 2021began to feel a little betterI will say that I am starting to feel a little better! In context ↗Mild
July 2021panic attacks and insomnia returned two weeks after second Moderna doseAfter getting by with no anxiety for about 4 months, to now 2 weeks post 2nd vaccine they are back again. In context ↗Mild
August 2021arm pain largely subsided, only left wrist still soreYes, thank God most of this has subsided. I’m just getting pain in my left wrist now, but all other arm pain has gone. In context ↗Mild
before May 2022arm pain returned after another covid infectionsadly it came back when I got covid again In context ↗Mild
May 2022still improving; symptoms ease with more sleepYes it eventually did after a few months, sadly it came back when I got covid again. It gets better with more sleep I’ve found. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodI had the worst panic attack and intrusive thoughts of my life In context ↗
  • Sleep problemsI would lay awake for hours In context ↗
  • Pain & fibromyalgiaYes it eventually did after a few months, sadly it came back when I got covid again. In context ↗
  • Headaches & migraineI’ve been having a bad headache with racing heart In context ↗
  • Heart symptoms & palpitationswhen I calm myself down and breathe the pounding heart seems to go away slowly In context ↗
  • Brain fogMy thoughts were disorganized and I was scared I was losing my own mind. In context ↗
  • POTS & dysautonomiaI also feel like I’m going to faint when this happens In context ↗
  • Neuropathy & tinglingrandom pain s, numbness In context ↗
  • BreathlessnessI am having times where I am gasping for air even though I am breathing, but I still am hungry for air like I can’t get enough in. In context ↗

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