Long COVID with POTS and breathlessness, now near normal after cleaner diet and time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 1 year
- Last post
- Nov 2021
In their words
- Condition: Long COVID
Almost a year to the day, happy to report that I'm nearly past the long haul.
In context ↗ - At worst: Moderate
The toughest was certainly months 1-5 and it began to get better each day thereafter.
In context ↗ - Now: Near normal
It will get better, I'm back to 99% myself.
In context ↗ - Began after: COVID
had presumed Covid in Feb / March 2020
Read from 13 of their posts and comments; links to the 8 this page draws on
Summary
Mesa 98553, a 25-year-old previously healthy man, developed long COVID in February 2020 with heart palpitations at 180 bpm, breathlessness, tingling, dizziness and POTS, the worst months being the first five. He took no regular medicine apart from occasional propranolol, and credited a cleaner diet, electrolyte water and time as he improved over about a year. By November 2021 he was back to 99% of himself; in March 2021 he had said POTS symptoms lingered.
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What they tried
What they credit
Also tried
Their words about each treatment
- saline drip · Helped
In the hospital I had a saline drip which helped with the HR
In context ↗ - Propanolol · Helped
No medicine but doctor prescribed Propanolol 10mg - it definitely helps but I almost never take it
In context ↗ - Pedialyte · Helped
took down pedialite for a month or so which helped
In context ↗ - generic water with electrolytes · Helped
Probably took down a bottle of generic water w/ electrolytes thereafter a day but became less and less dependent on it
In context ↗ - cleaner diet rich in fruits, veggies and lean protein · Helped
I found that eating a much cleaner diet rich in fruits, veggies, and lean protein has been really helpful
In context ↗ - 5 second inhale, 5 second exhale breathing · Helped
I find the 5 second inhale, 5 second exhale for 1 min straight is helpful in general
In context ↗ - Pfizer vaccine · Helped
my year long left eye twitch ... has subsided to nearly unnoticeable after the second shot
In context ↗
Approaches: POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2020 | sudden onset of long COVID symptomsLast February, a week before the outbreak shut down major cities, I suddenly came down with heart palpitations at 180 bpmIn context ↗ | Moderate |
| months 1-5 | worst months, resting heart rate 95 and 160+ on standingat peak, my resting was 95 and my standing or moving would be like 160+In context ↗ | Moderate |
| after month 5 | began to slowly improveThe toughest was certainly months 1-5 and it began to get better each day thereafterIn context ↗ | Mild |
| February 2021 | nearly past the long haul, vitals back to normalMy stats are finally back to normal but still have random spikes here and thereIn context ↗ | Near normal |
| November 2021 | back to 99% of himselfIt will get better, I'm back to 99% myselfIn context ↗ | Near normal |
Adverse events
- COVID vaccination as treatment“I am 3 hours post shot and only feeling a sore arm so far ... thankfully just a sore arm and tired so far” Side effects
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
suddenly came down with heart palpitations at 180 bpm
In context ↗ - POTS & dysautonomia
I still have mini-POTS (like my HR goes from 55 resting to 95 when I stand)
In context ↗ - Neuropathy & tingling
tingling / vibrations through the body
In context ↗ - Tinnitus
tinnitus (lasted 2-3 months)
In context ↗ - Brain fog
my brain felt off... Forgot certain words
In context ↗ - Headaches & migraine
felt like the pressure in front of my head would explode
In context ↗ - Anxiety & low mood
The lasting effect, as I'm sure it is for most people, is the anxiety
In context ↗ - Pain & fibromyalgia
muscle pain / spasms (which continue)
In context ↗
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