Long COVID with chest pain and POTS, now almost back to normal after low-dose naltrexone
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2.5 years
- Last post
- Jul 2026
In their words
- Condition: Long COVID
my long COVID journey
In context ↗ - At worst: Mild
my job is mentally taxing, sitting at a computer all day, and I struggle to have enough energy to have short conversations with coworkers
In context ↗ - Now: Near normal
over time have gotten to about 95% better
In context ↗ - Began after: COVID
got infected in July of 2022 and didn’t notice real symptoms until Jan 2023
In context ↗
Read from 48 of their posts and comments; links to the 29 this page draws on
Summary
A Reddit user who developed long COVID after a July 2022 infection, with symptoms starting in January 2023 and worsening after a long course of doxycycline. Chest pain, breathlessness, POTS and tremors largely eased over about two and a half years while they worked on gut health, diet and low-dose naltrexone, later adding cromolyn; eye inflammation still flared with sugar. They reported about 95% better by late 2024, though they later said a golden retriever puppy had set their healing back significantly, and brain fog and fatigue lingered.
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What they tried
What they credit
Also tried
Their words about each treatment
- doxycycline · Worse
Most of my LC issues began after taking and stopping an extended dose of doxycycline for my rosacea.
In context ↗ - Garden of Life Mood Plus probiotics · Not said
and Garden of Life Mood Plus probiotics
In context ↗ - GI advantage by Dr. Gundry · Not said
Also taking something called GI advantage by Dr. Gundry
In context ↗ - yogurt · Not said
I also have been eating a little yogurt most days
In context ↗ - magnesium malate · Helped
I’m taking magnesium malate because I once heard it was good for the gut
In context ↗ - low histamine diet · Helped
eating a low histamine diet which seems to help lots of long covid symptoms
In context ↗ - CoQ10 · Helped
also taking lots of supplements (CoQ10, D3/K2, magnesium malate, 5 HTP, selenium, zinc, quercetin, nattokinase, serrapeptase, high immunoglobulin colostrum, b-complex, to name a few)
In context ↗ - selenium · Helped
I noticed improvements in my fatigue after consistent selenium supplementation
In context ↗ - b-complex · Helped
high immunoglobulin colostrum, b-complex, to name a few
In context ↗ - low dose naltrexone · Helped
LDN was best at 2.5 mg, went up to 4.5 mg and was worse so went back down
In context ↗ - Prolon · Not said
was able to recently complete a 5 day fasting mimicking diet called Prolon
In context ↗ - 24 hour water fast · Not said
I personally wan wasn’t able to do even a 24 hour water fast due to my long COVID
In context ↗ - nicotine patches · Helped
I have experienced relief from muscle twitches with 2 weeks of 7 mg nicotine patches
In context ↗ - CBD oil · Helped
now Im taking a CBD oil with a negligible amount of thc once in morning and once in evening and it has really helped alleviate my chronic fatigue-like symptoms
In context ↗ - digestive enzymes (Similase Sensitive Stomach) · Helped
the digestive enzymes at every meal, the slippery elm to soothe stomach, and the DHA which helps regulate hormones has helped
In context ↗ - slippery elm · Helped
the slippery elm to soothe stomach
In context ↗ - DHA · Helped
the DHA which helps regulate hormones has helped
In context ↗ - Pyloricil · Helped
I noticed pretty quickly the positive effects on my muscle twitches, shortness of breath, and rosacea when starting the metronidazole for the parasite, and the digestive enzymes, pyloricil, and DGL (stomach aide)
In context ↗ - vitamin C · Not said
Also taking lots of vitamin C because I think that’s supposed to help with the Epstein Barr
In context ↗ - metronidazole · Helped
I also had a positive response when on metronidazole.
In context ↗ - gluten-free diet · Helped
My naturopath was able to tell that I was sensitive to gluten with a G.I. map. And I am doing much better without it.
In context ↗ - B12 · Not said
I’m also taking sublingual B12 and Folic acid
In context ↗ - DGL · Helped
the digestive enzymes, pyloricil, and DGL (stomach aide) so I believe that it had to do with gut health
In context ↗ - Akkermansia · Not said
Also take Akkermansia each day
In context ↗ - Lauricidin · Not said
Now we are working on the reactivated Epstein Barr by taking Lauricidin and Olive Leaf Extract
In context ↗ - olive leaf extract · Not said
taking Lauricidin and Olive Leaf Extract, which is bringing my stomach pain back a little but that’s to be expected at first
In context ↗ - lactoferrin · Not said
lactoferrin, lutein, zeananthin, luteolin complex
In context ↗ - L-Tyrosine · Not said
As precursors to seratonin I’m taking L-Tyrosine, 5-htp, and choline
In context ↗ - no processed foods, zero sugar · Helped
No processed foods, zero sugar -no aspartame either, and trying to get a variety of fruits/veg to feed the good microbes.
In context ↗ - Buchinger fast · Helped
My mind was getting clearer since day 2, brain fog went away and didn’t experience the shortness of breath I get regularly.
In context ↗ - hydration and electrolyte mix · Helped
It seems to be helping me too!
In context ↗ - stretching · Not said
Also stretched to help dislodge any localized areas of lactate
In context ↗ - pacing · Helped
It seems to have helped my energy levels somewhat, as well as pacing.
In context ↗ - cromolyn sodium · Helped
It has helped me not react to food and environmental triggers and has helped my shortness of breath/air trapping, fatigue, rashes
In context ↗ - creatine · Not said
D3, K2, creatine, glycine, nattokinase
In context ↗ - thiamine (B1) · Not said
pantothenic acid (B5), thiamine (B1), vit E
In context ↗ - vit E · Not said
thiamine (B1), vit E, ferrous bisglycinate chelate (a gentle form of iron)
In context ↗ - ferrous bisglycinate chelate · Not said
ferrous bisglycinate chelate (a gentle form of iron)
In context ↗ - flaxseed oil · Not said
vit c, flaxseed oil, magnesium malate, and dhea and maca
In context ↗ - DHEA · Not said
dhea and maca for a hormone imbalance
In context ↗ - HRT · Not said
my naturopath said I wasn’t where he’d like to see me and put me on a supplement and HRT
In context ↗ - Restasis · Helped
Now I’m finally seeing a dry eye specialist and have been prescribed restasis, it’s been a huge difference.
In context ↗ - steroid drops · Helped
an episcleritis that needed treatment with steroid drops to go away
In context ↗ - eye health supplements · Not said
Also taking supplements for eye health.
In context ↗
Approaches: POTS medication · Anticoagulants · Antihistamines & MCAS · Diet · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| July 2022 | COVID infection, long COVID symptoms came latergot infected in July of 2022 and didn’t notice real symptoms until Jan 2023In context ↗ | Not stated | |
| July 2023 | deteriorated after a long course of antibiotics for rosaceaMy worst long Covid symptoms started about a week or two after stopping doxycycline, chest, pain, breathing issues, severe eye inflammation, internal tremorsIn context ↗ | Mild | |
| 2024 | got a puppy which set healing backI believe it set my healing back significantlyIn context ↗ | Mild | |
| April 2024 | slow improvement while restoring gut healthIve been working on restoring my gut health and have gotten a lot better over timeIn context ↗ | Mild | Probiotics and fermented foods |
| November 2024 | about 95% betterover time have gotten to about 95% better. Been about 2.5 years nowIn context ↗ | Near normal | Low-dose naltrexone |
| July 2026 | still improving under a naturopathI have gotten so much better under the care of a reputable oneIn context ↗ | Near normal | Cromolyn (Gastrocrom, Nalcrom) |
Adverse events
- Low-dose naltrexone“LDN was best at 2.5 mg, went up to 4.5 mg and was worse so went back down” In context ↗ Made symptoms worse
- Doxycycline (Vibramycin)“I had to restart the doxycycline and it came back, got off it again and it went away” In context ↗ Made symptoms worse
- Juice fasting and modified fasts“I’m on day 6 of the Buchinger but have to stop tomorrow because I’m about to be underweight” In context ↗ Other
- Monolaurin (Lauricidin), Olive leaf extract“which is bringing my stomach pain back a little but that’s to be expected at first” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I think this also plays into PEM
In context ↗ - Brain fog
I still have the brain fog and fatigue
In context ↗ - POTS & dysautonomia
triggered everything from chest pain, to POTS, to shortness of breath
In context ↗ - Mast cell (MCAS) & allergies
Just started cromolyn sodium for MCAS like issues
In context ↗ - Gut problems
My nausea and stomach aches have also gone away almost entirely
In context ↗ - Breathlessness
most of my shortness of breath
In context ↗ - Heart symptoms & palpitations
most of my chest pain
In context ↗ - Neuropathy & tingling
limbs falling asleep while sleeping
In context ↗ - Hair loss
I lost 2/5ths of my hair over the course of a few months during my long COVID journey
In context ↗ - Vision problems
I have been having dry eye and inflammation that flares up if I have any sugar
In context ↗ - Anxiety & low mood
I have a lot of anxiety tied to my job
In context ↗
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