Long COVID
RecoveredIll 14 months before improving or writing
Long COVID with brain fog, insomnia and POTS, now recovered after DLPA and magnesium
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 14 months
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I’m at 12 months longhaul from the virus, sick for a week, pretty mild infection.
In context ↗ - Now: Recovered
I am feeling amazing, honestly feeling better than I felt 3 years ago before I ever caught COVID.
In context ↗ - Began after: COVID
I had what I assume to have been covid January 2020 ... In December 2020 I had a major relapse that sent me into full on longhaul.
Read from 193 of their posts and comments; links to the 33 this page draws on
Summary
They assumed they had COVID in January 2020, recovered, then a December 2020 relapse after Advil Cold & Sinus brought long COVID with brain fog, insomnia, panic attacks, POTS and exercise intolerance; a Pfizer dose made things worse. In February 2022, after 14 months ill, they started DLPA, magnesium and methyl B vitamins, improved within days and reached 100% in about two months. They reported full recovery.
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What they tried
What they credit
Also tried
CBD· Helped a lotL theanine/GABA· HelpedL theanine/GABA· HelpedAshwaganda· HelpedVitamin D· HelpedIntermittent fasting· HelpedWalks/outside· HelpedTryptophan· HelpedNatto/serra· HelpedNatto/serra· HelpedBenadryl· HelpedTurmeric· HelpedBeet juice/Beetelite· HelpedStretching/massage· HelpedChiropractic/OMM· Helped · wore offHypervolt· Helped · wore offApple cider vinegar· HelpedElectrolytes· HelpedNasal breathing/nose strips· HelpedDiet change· HelpedThiamine / benfotiamine· No changeNAC· No changeZyrtec· No changeClaritin· No changeAcupuncture· No changeNaproxen· WorseSSRI· WorseCelexa· Worse5-HTP· WorsePepcid· WorseProbiotics· WorseAdvil Cold & Sinus· Much worsePfizer COVID vaccine· Much worseFish oil· Not saidPlant based diet· Not saidIron infusion / ferritin repletion· Not said
Their words about each treatment
- Naproxen · Worse
I reacted to naproxin before the advil c&s
In context ↗ - Advil Cold & Sinus · Much worse
before I took the Advil cold&sinus that triggered this
In context ↗ - Pfizer COVID vaccine · Much worse
got the first shot during my longhaul and it made everything 100x worse
In context ↗ - CBD · Helped a lot
CBD (non thc kind): help me immensely with anxious flair ups
In context ↗ - L theanine/GABA · Helped
L theanine/GABA: deep sleep through the night, calming/relaxing, mental relaxation
In context ↗ - L tyrosine · Helped a lot
L tyrosine: game changer for cognitive issues, also energy improved a lot
In context ↗ - Tart cherry · Helped
this was the biggest overall improvement supp I took
In context ↗ - Ashwaganda · Helped
ashwaganda: this helped me a lot with insomnia and general anxiousness
In context ↗ - Magnesium · Helped a lot
Yes Mg was what got me to be able to exercise
In context ↗ - Vitamin D · Helped
vitamin d: wasn’t seeing the sun much so this helped my energy/mood
In context ↗ - Fish oil · Not said
fish oil: mood/cognitive, also anti inflammatory
In context ↗ - Plant based diet · Not said
I’ve also been eating primarily plant based and intermittent fasting.
In context ↗ - Intermittent fasting · Helped
intermittent fasting helped me the most with that
In context ↗ - Walks/outside · Helped
Going on walks and spending time outside when I can is a game changer.
In context ↗ - SSRI · Worse
I tried an SSRI and it made me feel sick so I went with more natural stuff
In context ↗ - Celexa · Worse
I took 1 dose of celexa and was sent into a violent panic attack
In context ↗ - 5-HTP · Worse
I didn't do well with 5-htp (serotonin precursor)
In context ↗ - Tryptophan · Helped
I’ve had good results with tryptophan
In context ↗ - DLPA · Helped a lot
DLPA significantly and quickly improved almost all of my symptoms
In context ↗ - Methyl B vitamins · Helped a lot
DLPA & b vitamins helped me not have brain fog in general though
In context ↗ - Thiamine / benfotiamine · No change
I didn't feel any super big benefits from thiamine itself
In context ↗ - NAC · No change
I'm not sure NAC did much for me
In context ↗ - Natto/serra · Helped
I took natto serra a few months before that may have helped a little with some stuff like SOB
In context ↗ - Benadryl · Helped
I managed to Benadryl myself out of it after a few days
In context ↗ - Zyrtec · No change
I didn’t think Zyrtec or Claritin helped me at all
In context ↗ - Pepcid · Worse
Pepcid made me sick
In context ↗ - Turmeric · Helped
tart cherry, fish oil, turmeric helped me some
In context ↗ - Beet juice/Beetelite · Helped
I was on it before the tart cherry and thought it helped me some
In context ↗ - Stretching/massage · Helped
Also stretching and massaging breathing/chest muscles (serratus/pecs/subscap especially) and the diaphragm.
In context ↗ - Chiropractic/OMM · Helped
I would get temporary relief from chiropractic/OMM rib treatments
In context ↗ - Hypervolt · Helped
My hypervolt was one of the only things that gave me any relief for the longest time
In context ↗ - Acupuncture · No change
went to an acupuncturist (didn't help but)
In context ↗ - Probiotics · Worse
I tried a couple of the probiotics mentioned and they made me super itchy and feel worse
In context ↗ - Apple cider vinegar · Helped
I crutched this with apple cider vinegar and it went away with everything else
In context ↗ - Reishi mushroom · Helped
If I do start feeling sick I just take NAC + Reishi mushroom
In context ↗ - Electrolytes · Helped
electrolytes (avoid sugary ones, check ingredients)
In context ↗ - Nasal breathing/nose strips · Helped
I started wearing better nose strips and taping my mouth and that helped my sleep
In context ↗ - Diet change · Helped
Cut out all the crap from your diet. Emphasize meats, fruits, nutrient dense foods.
In context ↗ - Iron infusion / ferritin repletion · Not said
Yeah plus the pills make you hella constipated, I can never stay on them long enough to really dig into my issue
In context ↗
Approaches: Amino acids and carnitine · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2020 | major relapse into long COVID after taking Advil Cold & SinusIn December 2020 I had a major relapse that sent me into full on longhaul.In context ↗ | Moderate | |
| September 2021 | first Pfizer dose: reaction within minutes, ER from heart troubles, everything worseI got the first shot during my longhaul and it made everything 100x worse.In context ↗ | Moderate | |
| December 2021 | down to POTS symptoms only after amino acids, tart cherry, ashwagandha and theanineNow I’m just down to the POTS symptomsIn context ↗ | Moderate | |
| February 2022 | DLPA cleared brain fog, focus and mood within daysafter a few days of DLPA I was a person with some mild POTSIn context ↗ | Mild | |
| February 2022 | added magnesium threonate and methyl B vitamins; barely any symptoms, long walks easyIn my day to day life I barely have any symptomsIn context ↗ | Near normal | Magnesium |
| April 2022 | 100% better after about two months of magnesium; brief stop caused no relapseBeen taking Mg for about 2 months now and no longer have any symptoms.In context ↗ | Recovered | Magnesium |
| April 2023 | about a year fully recovered; added iron and felt better than ever, running and biking againI am feeling amazing, honestly feeling better than I felt 3 years ago before I ever caught COVID.In context ↗ | Recovered |
Adverse events
- “before I took the Advil cold&sinus that triggered this I ran 10 miles sub 7 pace the day before” In context ↗ Made symptoms worse
- COVID vaccination as treatment“within 2 minutes of getting the shot my body was freaking out. Sweaty, anxious, nauseous, very lightheaded, hr 30 bp 70/40” In context ↗ Low blood pressure or fainting
- COVID vaccination as treatment“Got the first dose of the vaccine and almost ended up in the ER from low BP/HR.” In context ↗ Low blood pressure or fainting
- COVID vaccination as treatment“Same here, got the shot at a hospital and had to leave in a wheelchair.” In context ↗ Other
- COVID vaccination as treatment“I got vaccinated and ended up in the ER from heart troubles buddy” In context ↗ ER visit
- COVID vaccination as treatment“I got the first shot during my longhaul and it made everything 100x worse.” In context ↗ Made symptoms worse
- Antidepressants (unspecified), Citalopram (Celexa)“I tried an SSRI and it made me feel sick so I went with more natural stuff” In context ↗ Made symptoms worse
- Citalopram (Celexa)“I took 1 dose of celexa and was sent into a violent panic attack (literally almost called 911)” In context ↗ Mood or psychiatric effects
- 5-HTP“then 5htp (which is on the serotonin line, not nad+) made me feel worse” In context ↗ Made symptoms worse
- Tyrosine“For me when I continued to take it after getting back to normal I started getting some insomnia, so I went off of it.” In context ↗ Insomnia from treatment
- Famotidine (Pepcid)“and then I didn’t think Zyrtec or Claritin helped me at all. Pepcid made me sick.” In context ↗ Side effects
- Diphenhydramine (Benadryl)“Haven’t tried like long term Benadryl cuz it makes me tired” In context ↗ Side effects
- Naproxen (Aleve)“I reacted to naproxin before the advil c&s(but benadryled myself out of it)” In context ↗ Side effects
- Magnesium“sometimes the threonate makes me a little drowsy now” In context ↗ Side effects
- Magnesium“it did make me SUPER tired so maybe it does get absorbed idk” In context ↗ Side effects
- Probiotics and fermented foods“I know I tried a couple of the probiotics mentioned and they made me super itchy and feel worse” In context ↗ Side effects
- Iron infusion / ferritin repletion“Yeah plus the pills make you hella constipated, I can never stay on them long enough to really dig into my issue” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Brain fog
brain fog, cognitive slowness
In context ↗ - Sleep problems
Started out longhaul having super bad adrenaline/anxious flair ups, insomnia
In context ↗ - POTS & dysautonomia
No diagnosed POTS but def orthostatic issues. Completely normal now
In context ↗ - Anxiety & low mood
literally just uncontrollable panic attacks
In context ↗ - Muscle weakness
muscle weakness, POTS symptoms
In context ↗ - Heart symptoms & palpitations
heart pounding 24/7, chest pain, exercise intolerance
In context ↗ - Pain & fibromyalgia
I did have very bad chest pains and back/spinal pains
In context ↗ - Gut problems
nausea, gi irregularity
In context ↗ - Headaches & migraine
muscle twitching, headaches
In context ↗ - Breathlessness
shortness of breath, heart pounding, exercise intolerance
In context ↗ - Neuropathy & tingling
helping my numbness/circulation type symptoms
In context ↗ - Mast cell (MCAS) & allergies
tons of strange allergy like reactions to things I’d never reacted to before like medicines and airborne allergens
In context ↗
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