Long COVID
Mild → somewhat betterIll 16 months before improving or writing
Long COVID headaches and chest pain, some improvement by mid-2025
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 16 months
- Last post
- Aug 2025
In their words
- Condition: Long COVID
I've finally had a doctor actually give me a LC diagnosis due to my heart rate elevation and how I describe my cognitive symptoms/pain
In context ↗ - At worst: Mild
Over the late summer, I had trouble eating and sleeping it was so bad. Taking a bite of food would require me to lay down!
In context ↗ - Now: Somewhat better
I think mine has gotten slightly better over time. I find my headaches aren't as severe when I think hard like they were a year ago. Still happen, but I think it's getting better.
In context ↗ - Began after: COVID
two (known) COVID infections, one in summer 23 and spring 22
- Says they never had: Light & noise sensitivity
Thankfully I don't have any light/sound sensitivity.
Read from 22 of their posts and comments; links to the 15 this page draws on
Summary
Hare 99617, 29, in New York, dates her long-COVID symptoms to April 2024, months after a second infection in summer 2023: tension headaches, word-finding trouble, chest pain and a high resting heart rate. Late that summer brought panic attacks, night adrenaline dumps and trouble eating; that settled by January 2025 but headaches and chest symptoms stayed, and a stress wave that autumn left her feeling worse than ever. By March 2025 the headaches were still her most debilitating symptom; by mid-2025 she was working remotely and said they were less severe.
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What they tried
Also tried
Zoloft (sertraline)· No changeLDN· No changeshots of steroids/muscle relaxers straight to my neck· No changeMagnesium L-Threonate· No changeNattokinase· No changeHuperzine-A· No changeVitamin D· No changecustom night guard· Not saidphysical therapy· Not saidmuscle relaxers· Not saidlight blood pressure meds· Not saidbaby aspirin· Not saidWegovy· Not saidantiviral study· Not saidvitamin gummies· Not saidAdderall· Not saidWellbutrin· Not saidEscitalopram (Lexapro)· Not said
Their words about each treatment
- custom night guard · Not said
in 2022 spent $3000 on a custom piece of plastic night guard that was supposed to help, sometimes it does, sometimes it doesn't
In context ↗ - physical therapy · Not said
Physical therapy helps sometimes, but not always.
In context ↗ - muscle relaxers · Not said
she prescribed me a ton of muscle relaxers to help with my tension headaches... tbh I'm not sure any have helped.
In context ↗ - light blood pressure meds · Not said
He did finally put me on some light blood pressure meds a week ago but I'm not sure they've made a difference yet.
In context ↗ - Zoloft (sertraline) · No change
I've been on 25mg for almost 2 weeks, haven't felt a difference yet.
In context ↗ - baby aspirin · Not said
I'm on baby asprin right now, but that's not enough.
In context ↗ - Wegovy · Not said
I'm a few months on Wegovy now, still getting acclimated to the side effects (may stick with .5mg for a while)
In context ↗ - LDN · No change
Just starting my third week on LDN, haven't seen a difference yet.
In context ↗ - shots of steroids/muscle relaxers straight to my neck · No change
She's also tried a few shots of steroids/muscle relaxers straight to my neck, but nothing.
In context ↗ - Magnesium L-Threonate · No change
Nature Made - Magnesium L-Threonate - 3 Capsules
In context ↗ - Nattokinase · No change
Double Wood - Nattokinase 4000FU - 200mg
In context ↗ - Huperzine-A · No change
Double Wood - Huperzine-A - 200mcg
In context ↗ - Vitamin D · No change
Vitamin D - 5000U
In context ↗ - antiviral study · Not said
I'm apart of a antiviral study but I either got the placebo or it's doing nothing for me.
In context ↗ - vitamin gummies · Not said
For the last several months, I've only taken my standard prescriptions, and a few vitamin gummies, nothing more
In context ↗ - Adderall · Not said
it made me tired, but thinking back it could've been the adderall that was doing that
In context ↗ - Wellbutrin · Not said
I only took it for a week in the past so I can't say how my body handles it
In context ↗ - Escitalopram (Lexapro) · Not said
I stopped years ago cuz it made me tired
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| April 2024 | tension headaches with neck pain began, plus word-finding troubleStarting back in April / May, I started getting these headaches that usually came with neck pain.In context ↗ | Mild |
| late summer 2024 | stress wave: could not eat or sleep, panic attacks at nightOver the late summer, I had trouble eating and sleeping it was so bad. Taking a bite of food would require me to lay down!In context ↗ | Mild |
| January 2025 | eating, sleeping, twitching and panic symptoms calmed; cognitive and chest symptoms remainedSomehow all this cleared up. I'm not fully recovered by any stretchIn context ↗ | Mild |
| 2025-07-31 | headaches less severe, still living with themI think mine has gotten slightly better over time.In context ↗ | Mild |
Adverse events
- Escitalopram (Lexapro)“I stopped years ago cuz it made me tired” In context ↗ Side effects
- Semaglutide (Ozempic, Wegovy)“I worry it may be worsening my fatigue, but I think that's just the day or two after injection, when my body is acclimating.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Headaches & migraine
my most debilitating LC symptom are my headaches
In context ↗ - Brain fog
I forget words I should know all the time
In context ↗ - Anxiety & low mood
I'm insanely stressed out, all the time
In context ↗ - Heart symptoms & palpitations
but the chest pain continues
In context ↗ - Breathlessness
intermittent chest pain / shortness of breath / nerve circulation issues
In context ↗ - Neuropathy & tingling
Limbs go numb, feel weakness in my chest
In context ↗ - Muscle weakness
I still get chest weakness and mild fatigue
In context ↗ - Sleep problems
I had trouble eating and sleeping it was so bad
In context ↗ - Gut problems
Sensitive stomach to many foods
In context ↗ - Pain & fibromyalgia
the worst symptom are my tension headaches and right neck pain
In context ↗ - POTS & dysautonomia
I think I have a mild case of it, triggered by immense stress.
In context ↗