ME/CFS with pain, brain fog and days in bed, now recovered after tonsil removal
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 2 years
- Last post
- Jul 2013
In their words
- Condition: ME/CFS
I was told by my doctor that I had cfs
In context ↗ - Now: Recovered
aside from the 2 weeks post op, I am feeling amazing. I have energy again, I havent required pain killers, I can think easily
In context ↗ - Began after: glandular fever or EBV
Easter 2011 I had a very bad case of mono.
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
An Australian student fell ill after mononucleosis at Easter 2011 and was diagnosed with CFS that October, with body pain, headaches, brain fog and days in bed. A contraceptive pill gave slight energy gains; painkillers helped pain but left her drowsy. Chronic tonsillitis was found and her tonsils were removed in June 2013, after which she reported feeling amazing, with energy again and improved thinking and attention span.
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What they tried
What they credit
Also tried
Their words about each treatment
- Painkillers (Panadol / Nurofen) · Worse
they work for pain but make me more lethargic
In context ↗ - Vitamin B, D, C and zinc tablets · Not said
I take vitamin B, D, C and zinc tablets every day
In context ↗ - Oruvail · Not said
and oruvail for days where it is particularly bad
In context ↗ - Sugar (boiled lollies, chocolate) · Helped
the thing that makes me feel the best is sugar in the form of boiled lollies or chocolate
In context ↗ - Cold water treatment · No change
tried for about a month until I couldnt bear it anymore) the cold water treatment. It didnt seem to help me
In context ↗ - Contraceptive pill · Helped
Ever since being on it I have felt slightly better and have a bit more energy because my body doesnt go through the natural extremes of a month
In context ↗ - Tonsillectomy · Helped a lot
June 3rd I had them removed. And aside from the 2 weeks post op, I am feeling amazing. I have energy again, I havent required pain killers, I can think easily
In context ↗
Approaches: Surgery & structural
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Easter 2011 | mononucleosis; energy never recoveredEaster 2011 I had a very bad case of mono. I never really recovered my energy after this and had periods of pain through out my body.In context ↗ | Mild | |
| June 2012 | slight energy gain on the contraceptive pillEver since being on it I have felt slightly better and have a bit more energyIn context ↗ | Mild | Hormonal birth control (unspecified) |
| July 2013 | after tonsillectomy: energy, thinking and attention backaside from the 2 weeks post op, I am feeling amazing. I have energy again, I havent required pain killers, I can think easily and my attention span has soared.In context ↗ | Recovered | Sinus, jaw and tonsil surgery |
Adverse events
- “they increase drowsiness, so the pain goes away but I feel more tired and sick after them ... they work for pain but make me more lethargic” Side effects
- Cryotherapy and cold exposure“I have looked into (and tried for about a month until I couldnt bear it anymore) the cold water treatment. It didnt seem to help me ... The cold water treatment was more torture than reward with me” Other
Symptoms mentioned
Their words about their symptoms
- Brain fog
This bacteria being held in my body was causing everything, my head aches, my body aches and even my brain fog.
In context ↗ - Pain & fibromyalgia
I never really recovered my energy after this and had periods of pain through out my body.
In context ↗ - Headaches & migraine
my head aches, my body aches and even my brain fog
In context ↗ - Sleep problems
I nap at least once a day and never really feel better for it.
In context ↗ - Anxiety & low mood
If he thinks I am being unreasonable and it is because of the cfs moodiness I have
In context ↗
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