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Long COVID Severe → much betterIll 1 year before improving or writing

Long COVID with brain fog and weeks in bed, now much better

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
1 year
Last post
Dec 2022
In their words
  • Condition: Long COVIDi had covid in December and the long covid kicked in immediately In context ↗
  • At worst: Severefor weeks i laid in bed and slowly slowly built back up to doing things In context ↗
  • Now: Much betterIt does get slowly better ... i feel around 80% now In context ↗
  • Began after: COVIDi had covid in December and the long covid kicked in immediately In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

A 29-year-old woman in England developed long COVID in December 2021, with fever, headaches, brain fog and palpitations, and spent weeks in bed. She tried many vitamins and antihistamines without benefit; cold baths relieved some pain. By July 2022 she felt around 80% of normal, though fatigue, head pressure and brain fog persisted; by September she said things were still hard.

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Asking aboutGull 60162’s story

What they tried

What they credit

Their words about each treatment
  • all the vitamins under the sun · No changeNothings helped as far as i know I've tried all the vitamins under the sun, antihistamines, etc... In context ↗
  • cold baths · Helpedcold baths are a relief of some of the pain for me personally In context ↗
  • laying in bed · Not saidfor weeks i laid in bed and slowly slowly built back up to doing things In context ↗
  • q10 · No changeStarted about a week ago and no difference yet In context ↗
  • wine · HelpedI do this regularly, it helps. Not long covid, but dealing with shit, it gives me an hour where i feel normal. In context ↗
  • time · HelpedIt does get slowly better, whether we ever get fully better i guess we don't know right now but i feel around 80% now. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December 2021COVID-19, with long COVID symptoms starting immediatelyi had covid in December and the long covid kicked in immediately i had a temperature, headaches, brain fog, palpitations straight away In context ↗Not stated
1 moin bed for weeks, unable to join family walksfor weeks i laid in bed and slowly slowly built back up to doing things In context ↗Severe
2022-07-25slowly better over time, around 80% of normal, brain fog lifted after about 4 monthsIt does get slowly better, whether we ever get fully better i guess we don't know right now but i feel around 80% now In context ↗Mild
2022-09-29still symptomatic, symptoms coming and going, but better than at 3 monthsi'm 9 months in now and yes it is still crap, things are hard still but i remember being 3 months in and how done i was with this life In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogI'm just battling a little fatigue, head pressure and brain fog now In context ↗
  • Heart symptoms & palpitationsmy heartrate used to skyrocket in the night for no reason In context ↗
  • Breathlessnessit'd feel like someone was sat on my chest, like i couldn't breathe, it has slowly gone away over time In context ↗
  • Sleep problemsit'd even wake me from the little sleep i did manage to get In context ↗
  • Anxiety & low moodi was so close to being done In context ↗
  • Post-exertional malaisei just couldn't do it anymore and it definitely made me feel worse after In context ↗
  • Pain & fibromyalgiacold baths are a relief of some of the pain for me personally In context ↗
  • Temperature regulationi had a temperature In context ↗

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