Bedridden with long COVID, now recovered after intensive exercise with LSD
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 8 months
- Last post
- Sep 2022
In their words
- Condition: Long COVID
January 2022 long haul covid for 8.5 month.
In context ↗ - At worst: Severe
Before that weekend, I was bedridden with psoriatic arthritis and near daily seizures.
In context ↗ - Now: Recovered
I am 100% recovered. 100%. Period.
In context ↗ - Began after: COVID
January 2022 long haul covid for 8.5 month.
In context ↗
Read from 47 of their posts and comments; links to the 22 this page draws on
Summary
After a second COVID infection in January 2022 she developed long COVID and over months became bedridden with seizures, tachycardia, brain fog and severe muscle pain. A plant-based diet and daily H1/H2 antihistamines eased some symptoms. She credits a weekend of intensive exercise, enabled by LSD, with taking her from about 30% to 90% almost overnight in August 2022, and reported being 100% recovered by September.
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What they tried
What they credit
Also tried
Their words about each treatment
- Paxlovid · No change
I didn't notice any difference.
In context ↗ - Benadryl · Helped a lot
Three days after starting antihistamines, it felt like the rubber band that had been squeezing my head was removed.
In context ↗ - Pepcid Ac (later Prilosec mentioned) · Helped a lot
Two types. H1 & H2. I did Pepcid Ac and Benadryl, daily, together. They work together.
In context ↗ - flaxseed oil · Helped
I take a spoonful of flaxseed oil each day and since starting have had improvements with my heart documented in scans.
In context ↗ - Biotin · Helped
The second bout of covid I was already on the biotin and loss significantly less.
In context ↗ - Iron / 'healthy blood' · Helped
I was at 2.9 million when I was in the hospital, BAD. ... I built 2 million rbcs in weeks.
In context ↗ - posture correction (cervical collar, posture brace, phone-time limits) · Helped
I wore a cervical collar for two weeks on doctors recommendation ... scans show vast improvement.
- LSD · Helped
Enabled me to dance extremely hard for several hours.
In context ↗ - intensive forced exercise / movement · Helped a lot
I fought physically and forced myself into insanely strenuous cardio.
In context ↗ - Ice baths to sauna, repeat · Not said
Ice baths to sauna, repeat.
In context ↗ - Wobenzym pancreatic enzymes · Not said
pancreatic enzymes to break up scar tissue
In context ↗ - Vitamin D · Not said
Vitamin D, quercetin, C, high quality probiotics, kimchi.
In context ↗ - probiotics, kimchi, kombucha, cultured foods · Helped
My fridge is nothing but probiotics, kimchi, kombucha, cultured everything. Helps enormously.
In context ↗ - Zithromax (azithromycin) · Helped
antibiotics (Zithromax helped with my first covid infection which was primarily lung.
In context ↗ - Ketamine · Worse
Ketamine makes me feel awful, no matter the dose.
In context ↗ - Sam-e · Helped a lot
Sam-e completely cured my depression, but the dosage was $400+ a month.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Proton pump inhibitors · Exercise and activity · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2022 | COVID infection; long COVID began, still functional at firstJanuary 2022 long haul covid for 8.5 month.In context ↗ | Mild | |
| April 2022 | completely incapacitated, could not work, stopped being able to walkI am completely incapacitated on month 4 of covid/long haul. ... I can’t work.In context ↗ | Severe | |
| May 2022 | quit alcohol, sugar and meat, went plant-based; joint swelling down, could walk and build a greenhouseI went from disabled to putting together a large scale greenhouse solo in two weeks.In context ↗ | Mild | |
| June 2022 | started daily H1 and H2 antihistamines; head pressure lifted and she worked on her farmThree days after starting antihistamines, it felt like the rubber band that had been squeezing my head was removed.In context ↗ | Mild | Diphenhydramine (Benadryl) |
| June 2022 | crashed after dancing for hours at a concertAfterwards, I was bedridden for two days, slept nearly 30 hours on and off, and haven't had energy for six days since.In context ↗ | Severe | |
| August 2022 | weekend of intensive exercise and dancing; back to driving, applied for a jobwent from 30% to 90% in a couple days, and have held thereIn context ↗ | Near normal | |
| September 2022 | reported 100% recovered, able to hike and smell againI am 100% recovered. 100%. Period.In context ↗ | Recovered |
Adverse events
- Everyday exercise and activity“I fought physically and forced myself into insanely strenuous cardio. I coughed and blew out large blood clots. It was frightening” In context ↗ Made symptoms worse
- Ketamine“Ketamine makes me unbalanced and nauseous in low doses, and hallucinate horrible things in higher doses.” In context ↗ Side effects
- Ketamine“Ketamine makes me feel awful, no matter the dose. Truly horrendously awful.” In context ↗ Mood or psychiatric effects
- Diphenhydramine (Benadryl)“I also can not shut up. ... I almost feel manic.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
The brain fog is so intense you realize what true brain fog is.
In context ↗ - POTS & dysautonomia
Can't exert myself without breaking a massive sweat and getting dizzy- at all.
In context ↗ - Heart symptoms & palpitations
Tachycardia, Tonic seizures, Suicidal depression, Severe exhaustion, Total brain fog.
In context ↗ - Headaches & migraine
I couldn’t wear a hat because it would cause headaches
In context ↗ - Temperature regulation
I could not regulate body temperature before antihistamines
In context ↗ - Anxiety & low mood
I deal with genetic depression anyway
In context ↗ - Post-exertional malaise
it would result in me being in bed for two days
In context ↗ - Sleep problems
slept nearly 30 hours on and off
In context ↗ - Pain & fibromyalgia
This time I had severe, debilitating body and muscle pain.
In context ↗ - Gut problems
My bathroom trips have normalized completely
In context ↗ - Mast cell (MCAS) & allergies
Then freaking corn because that was causing a reaction.
In context ↗ - Loss of smell or taste
And why would I be able to smell after they came out?
In context ↗ - Hair loss
The second bout of covid I was already on the biotin and loss significantly less.
In context ↗ - Muscle weakness
as the months wore on I stopped being able to walk
In context ↗ - Neuropathy & tingling
I spent years with numb fingers, thought I had cancer
In context ↗ - Breathlessness
Now I can think, move, and breathe.
In context ↗
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