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Long COVID Near normalIll 14 months before improving or writing

Long COVID brain fog and joint pain, nearly back to normal after maraviroc and a statin

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
14 months
Last post
Sep 2022
In their words
  • Condition: Long COVIDBeen LH since July ‘21 In context ↗
  • Now: Near normalI am certainly much better but there is still some symptomatic presentation. ... Overall about 90-95% improvement.
  • Began after: COVIDBeen LH since July ‘21 In context ↗
Read from 5 of their posts and comments; links to the 3 this page draws on

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Summary

Nightjar 31352 has been a long hauler since July 2021, with brain fog, dizziness, facial tingling, joint pain and swelling, and fatigue. After about four months of Incelldx/Dr Patterson treatment with maraviroc and a statin, the user reported roughly 90-95% overall improvement, with neuro symptoms and fatigue much improved. Some facial tingling and intermittent joint swelling and pain remained.

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Asking aboutNightjar 31352’s story

What they tried

Their words about each treatment
  • maraviroc · Helped a lotDoing much better on treatment. ... I am hoping to taper off the maraviroc In context ↗
  • statin · Helpedkeep on the statin for another few months In context ↗

Approaches: Antivirals · Statins

Their path

Very severeSevereModerateMildNear normalRecovered14 mo14 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 14 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
July 2021long COVID beganBeen LH since July ‘21 In context ↗Not stated
2022-09-27about 90-95% overall improvement on Incelldx/Dr Patterson protocolDoing much better on treatment. ... Overall about 90-95% improvement.Near normalMaraviroc (Selzentry)
2022-09-28still improved, some residual symptomsI am certainly much better but there is still some symptomatic presentation. In context ↗Near normal

Symptoms mentioned

Their words about their symptoms

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Asking aboutNightjar 31352’s story

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