Bedbound over 20 hours a day with long COVID, now much better with diet and vitamins
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 19 months
- Last post
- Dec 2022
In their words
- Condition: Long COVID
I ended up coming down with POTS like symptoms in my long haul covid.
In context ↗ - At worst: Severe
During months 1 and 2, I was stuck in bed thinking I was dying.
In context ↗ - Now: Much better
I’ve made so much progress after I gave the doctors the finger and did everything myself. ... lots of progress but still haven’t found my root cause so my issues are still recurrent
In context ↗ - Began after: COVID
after 2 months, my symptoms hit
Read from 31 of their posts and comments; links to the 18 this page draws on
Summary
A 22-year-old man developed POTS-like symptoms, fatigue and gut problems two months after an asymptomatic COVID infection in March 2021, and was bedbound over 20 hours a day at first. A week of ivermectin helped him walk more; he credits a clean diet, vitamins and electrolytes for progress to about 50-60% of his old self. A new job brought a relapse of chest pain and palpitations, and symptoms were still recurrent over a year and a half in.
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What they tried
What they credit
Also tried
Their words about each treatment
- ivermectin · Helped
it got me from being bedbound for 20+ hours a day to being able to walk a little bit more often within a week’s course of taking those pills
In context ↗ - vitamins and supplements · Helped
I’ve find that vitamins / supplements have really helped me get through days better than before
In context ↗ - electrolytes and sodium · Helped
these daily things have helped me improve (not 100% but symptoms are lessened): Drinking plenty of electrolytes, eating plenty of sodium
In context ↗ - adequate sleep · Helped
these daily things have helped me improve (not 100% but symptoms are lessened)
In context ↗ - Align probiotic · Helped
I’ve tried Align and I think that helped me but it’s pretty pricey.
In context ↗ - D3 · Helped
I take 125mcg (5000) of D3 and it’s helped me a bit, especially post COVID.
In context ↗ - magnesium Glycinate · Helped
magnesium Glycinate (helps my stomach more)
In context ↗ - salt water gargle · Helped
just went 24 hours symptom free (my new PR since symptoms started 5 months ago)
In context ↗ - clean / paleo diet · Helped
I’m now attempting to cut out gluten and I think that’s had the most success when it comes to regulating the digestive issues
In context ↗ - vagus nerve stimulation (pressing palms into eyelids) · Helped
I’ve noticed that my symptoms will subside for a bit or at least be less fierce than they were right before I stimulated it
In context ↗ - B complex · Not said
taking B complex, NAC, magniesum, turmeric, a probiotic
In context ↗ - quercetin · Not said
quercetin, zinc, an align probiotic, COQ10, and turmeric for inflammation
In context ↗ - turmeric · Not said
COQ10, and turmeric for inflammation
In context ↗ - super digestive enzymes · Not said
vitamins: B complex, D3 5,000, magnesium Glycinate (helps my stomach more), NAC, super digestive enzymes
In context ↗ - melatonin · No change
I haven’t had the best success with melatonin in the past
In context ↗ - exercise / staying active · Helped
trying to stay active helps big time
In context ↗
Approaches: POTS medication · Diet · Exercise and activity · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| May 2021 | POTS-like symptoms, fatigue and GI issues began two months after asymptomatic COVIDThis all started May 9th 2021 ... During months 1 and 2, I was stuck in bed thinking I was dying | Severe | |
| June 2021 | One-week ivermectin course; able to walk a little moreit got me from being bedbound for 20+ hours a day to being able to walk a little bit more often within a week's course of taking those pillsIn context ↗ | Severe | Ivermectin |
| November 2021 | About 50-60% of his old self on vitamins, supplements, electrolytes and diet changesToday, I’m much better than I was but far from perfect. If I had to estimate, I’d say I’m around 50-60% my old selfIn context ↗ | Mild | |
| May 2022 | relapse after starting a new full-time remote joba current relapse has me searching for new answers. The fatigue, chest pain and heart palpitations are much more frequent than ever. I’m sure it’s because of a new job I just started within the past monthIn context ↗ | Mild | |
| December 2022 | Lots of progress on self-directed supplements and diet, but symptoms still recurrentI’ve made so much progress after I gave the doctors the finger and did everything myself ... my issues are still recurrentIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I still do suffer from pots or pots like symptoms (midst of testing)
In context ↗ - Gut problems
Daily issues include: High heart rate, light headed, stomach / GI issues
In context ↗ - Muscle weakness
fatigue and weakness
In context ↗ - Neuropathy & tingling
pain, burning and tingling throughout arms and legs
In context ↗ - Breathlessness
sometimes I feel as if I gotta force myself to breathe
In context ↗ - Temperature regulation
inability to sweat
In context ↗ - Post-exertional malaise
that same flare (or episode if you call it that) can set me back and put me in bed for 1-2 weeks
In context ↗
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