Short of breath and off work with long COVID, somewhat better with montelukast and diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Mar 2024
In their words
- Condition: Long COVID
I've been struggling with this also since I was 20 after getting COVID going on 22 almost, only gotten worse.
In context ↗ - At worst: Moderate
Yeah mine is pretty bad there is no way I could work a job with the way I am at the moment.
In context ↗ - Now: Somewhat better
it's been a little over a month and my lungs function has definitely improved, though I still get short of breath often.
In context ↗ - Began after: COVID
I've been struggling with this also since I was 20 after getting COVID going on 22 almost
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Got COVID at age 20 and developed persistent shortness of breath and chest tightness that worsened over two years, forcing them to quit work and move to cleaner air. In early 2024 montelukast, a wixela inhaler and low-inflammation and antihistamine diets improved lung function within about a month, though breathlessness still comes often. Asthma inhalers, Trelegy and Singulair did little; Zyrtec gave bad side effects.
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What they tried
What they credit
Also tried
Their words about each treatment
- moved somewhere with less air pollution · Helped
I moved somewhere with less air pollution, I lived in southern California. ... Helped a little bit.
In context ↗ - staying in my room, keeping it clean, humidifier · Helped
Staying in My room mostly try to keep it clean and running a humidifier while distracting myself, books, games and indoor hobbies. ... Helps quite a bit.
In context ↗ - Quick acting inhaler · Helped
Quick acting inhaler ... Helps a tiny bit
In context ↗ - Trelegy · No change
Trelegy ... Didn't really help
In context ↗ - Singular / montelukast · Helped
Singular ... Doesn't seem to do a whole lot. ... I've start using montelukast and wixela inhub for about a month and have noticed improvements
- Zyrtec · Worse
Zyrtec ... Had bad side effects
In context ↗ - wixela inhub · Helped
I've start using montelukast and wixela inhub for about a month and have noticed improvements
In context ↗ - low inflammation diet · Helped
low inflammation diet and anti histamine diet seems to help also
In context ↗
Approaches: Antihistamines & MCAS · Diet · Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2022 | shortness of breath began, subtle and occasionalIt started very subtle and I got short of breath for like an hour.In context ↗ | Mild | |
| second year of illness, 2023 | breathlessness became constant; quit job and moved for cleaner airGoing on this second year I've had to quit my job and move somewhere with better air qualityIn context ↗ | Moderate | |
| 2024-02-04 | steadily worsening breathlessness, unable to workI've been struggling with worsening SOB over the past 2 years with it only seemingly getting worseIn context ↗ | Moderate | |
| 2024-03-13 | lung function improved on asthma-type medication and diet, still short of breath oftenit's been a little over a month and my lungs function has definitely improved, though I still get short of breath oftenIn context ↗ | Moderate | Montelukast / Singulair |
Adverse events
- Cetirizine (Zyrtec)“Zyrtec ... Had bad side effects” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
persistent shortness of breath and chest tightness
In context ↗ - Mast cell (MCAS) & allergies
When I breathe in certain things, especially like older damp buildings, I'm out for like a week or more.
In context ↗
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