Unable to work or do many chores with ME/CFS, somewhat better after turbinectomy
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2022
In their words
- At worst: Moderate
I consider myself moderate, maybe moderate-severe; can't work, can't do many chores, but can move around the house most of the time
In context ↗ - Now: Somewhat better
Life is much better now than before. My fatigue isn't significantly less but my quality of life did improve.
In context ↗
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
A Reddit user with CFS who could not work or do many chores but could walk 5-10 minutes on most days, calling themselves moderate to moderate-severe. A turbinectomy for swollen turbinates cleared their blocked nose permanently and improved quality of life, though fatigue was not much less and the operation brought days of fever, pain and weakness that they said was worth it.
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What they tried
What they credit
Also tried
Their words about each treatment
- turbinectomy · Helped
My fatigue isn't significantly less but my quality of life did improve.
In context ↗ - B-12 injections · No change
Works for some, didn't for me.
In context ↗ - Keto · Helped
Keto helped for me. Makes the body less dependent on fast carbohydrates for immediate energy.
In context ↗ - ADHD medication · Worse
I tried two kinds but they made by fatigue worse.
In context ↗ - drinking alcohol · Worse
I did for a while, but was hardly able to do much else and had to rest much in between drinking days.
In context ↗ - Buddhist philosophy · Helped
Oh one thing that has helped me is delving into the Buddhist philosophy
In context ↗
Approaches: Diet · Surgery & structural
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021-11-15 | Turbinectomy for swollen turbinates cleared nasal blockageAs for treatment, the turbinectomy solved nasal congestion for me.In context ↗ | Not stated | Sinus, jaw and tonsil surgery |
| 2022-07-31 | Housebound-ish, unable to work, short walks onlyI consider myself moderate, maybe moderate-severe; can't work, can't do many chores, but can move around the house most of the time and can also go for very short walks (5-10 min) on most days.In context ↗ | Moderate |
Adverse events
- Sinus, jaw and tonsil surgery“My ''PEM'' came in the form of feeling very weak post operation. This was very unpleasant for me” In context ↗ Made symptoms worse
- Sinus, jaw and tonsil surgery“I caught a fever and had a lot of pain.” In context ↗ Side effects
- Stimulants (unspecified)“I tried two kinds but they made by fatigue worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
The walks usually make me feel better instantly (and sometimes make me feel worse, especially when I went too far).
In context ↗ - Breathlessness
I could barely ever breathe through my nose, and literally not at all while doing anything physical, even walking.
In context ↗ - Pain & fibromyalgia
I get immediate pain and super fatigue, as if I'd been standing for hours.
In context ↗
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