Housebound with long COVID, now much better after low-histamine diet and rest
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 9 months
- Last post
- Sep 2024
In their words
- Condition: Long COVID
My long covid got miles worse when I had the cold.
In context ↗ - At worst: Moderate
I was never bedridden I was in bed for most of the day but never bedridden with the inability to shower or clean my teeth etc. I was mainly housebound
In context ↗ - Now: Much better
But I've recovered to say 80% with lasting damage
In context ↗ - Began after: COVID
I got covid in July 22 my acute infection was similar to a bad flu
Read from 55 of their posts and comments; links to the 27 this page draws on
Summary
A person who caught COVID in July 2022 was mainly housebound with long COVID from about six months in, with fatigue, gut inflammation, head pressure, brain fog and POTS-like symptoms. They credit a low-histamine, gluten- and dairy-free diet, rest and vitamins C and D. Crashes stopped by December 2023 and by 2024 they could hike five hours, though they called themselves only 80% recovered. A January 2024 reinfection caused no flare.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- low histamine diet · Helped
Again followed a low histamine diet for 8 months. Which has definitely helped.
In context ↗ - no gluten, no caffeine, no alcohol, no dairy diet · Helped
I noticed a big improvement in dpdr and terrible brain fog when I cut out gluten.
In context ↗ - glasses that gamers wear · Not said
I bought glasses that gamers wear as I can get terrible glare at times from watching the TV
In context ↗ - Vit C · Helped
Vit C 1000mg I feel has helped me a lot.
In context ↗ - vit d 5700iu with k2 · Not said
I also take vit c 1000g, vit d 5700iu with k2 and cod liver oil.
In context ↗ - Soaked chia seeds and cacao nibs · Not said
Soaked chia seeds and cacao nibs in coconut milk for every breakfast.
In context ↗ - anti histamine · Worse
I found when I took anti histamine, this made it worse.
In context ↗ - Baby Aspirin · Not said
Anything anti inflammatory. Vit C 1000g. Baby Aspirin.
In context ↗ - extreme rest · Helped
rest like mad when you can ( i know you dont need me saying that ) but I know that's helped me a lot.
In context ↗ - fermented foods · Not said
I introduced fermented foods to help my microbiome
In context ↗ - gentle walks · Not said
I was also able to take gentle walks every few days.
In context ↗ - Pepcid · Not said
prescribed me Omeprazole and Pepcid. I only took the Pepcid.
In context ↗ - Iron · Worse
Iron I took only temporarily, because it made my gut issues worse.
In context ↗
Approaches: Diet · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| July 2022 | COVID infection, bad flu with brain inflammationI got covid in July 22 my acute infection was similar to a bad flu but I also had crazy brain inflammation.In context ↗ | Mild | |
| October 2022 | energy plummeted, fatigue set inThen October came and my energy plummeted to something Ive never had before.In context ↗ | Moderate | |
| January 2023 | caught a cold, long-COVID symptoms exploded; months in bed and houseboundI was in bed for most of the day but never bedridden with the inability to shower or clean my teeth etc. I was mainly houseboundIn context ↗ | Moderate | |
| around 8-9 months after infection | POTS symptoms passed, gut began to improve, brain fog lessenedBut after 8 or 9 months. Things started to get better.In context ↗ | Moderate | Low-histamine diet |
| December 2023 | crashes stopped completely and she began gaining weightMy crashes stopped completely by December.In context ↗ | Mild | |
| January 2024 | many symptoms disappearedSo as of January this year I would say many of my symptoms dissapeared.In context ↗ | Mild | |
| August 2024 | hiked five hours with no repercussionsNever did I think I would be able to hike for 5 hours.In context ↗ | Mild | |
| September 2024 | about 80% better with lingering neuro, skin and connective-tissue issuesI am 80% better.In context ↗ | Mild |
Adverse events
- H1 antihistamines (unspecified)“I also experienced this strongly when I was taking anti histamine. When I stopped, this also stopped and when my sleep improved the vivid dreams dissapeared.” In context ↗ Made symptoms worse
- Iron infusion / ferritin repletion“Iron I took only temporarily, because it made my gut issues worse.” In context ↗ Gut side effects
- “Even certain supplements would cause this to happen.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
If I did too much for example I would crash the following day and be in this crash for a few days.
In context ↗ - Brain fog
it went from severe brain fog to mild
In context ↗ - POTS & dysautonomia
my now milder symptoms of autonomic dysfunction
In context ↗ - Mast cell (MCAS) & allergies
My main issues was I was intolerant to a lot of foods.
In context ↗ - Sleep problems
I used to get this.
In context ↗ - Pain & fibromyalgia
Yes it was painful, particularly in my lower legs.
In context ↗ - Headaches & migraine
I have minimal head pressure now. In fact it's is barely noticeable.
In context ↗ - Gut problems
I had terrible gastritis, weight loss, it felt like my body wasn't absorbing nutrients, loose yellow stools, ibs
In context ↗ - Light & noise sensitivity
I have light sensitivity still with occasional delays of what my brain takes in.
In context ↗ - Breathlessness
It felt like I couldn't get enough air.
In context ↗ - Heart symptoms & palpitations
Racing heart after eating certain foods
In context ↗ - Muscle weakness
my muscles turned to mush
In context ↗ - Neuropathy & tingling
Electric shocks all over including tongue
In context ↗ - Anxiety & low mood
Anxiety and Anhedonia
In context ↗ - Temperature regulation
Temperature dysregulation
In context ↗ - Vision problems
Low vision at night and astigmatism
In context ↗ - Hair loss
My hair fell out in clumps 6-8 months after my infection.
In context ↗
Ask Miruvor AI
Similar stories
-
Not enough detail to draw a path
Long COVID with POTS-like symptoms, now near normal after rest and vaccines
Summit 80190 caught COVID in July 2020 at 30, felt well for two months, then relapsed with neurological symptoms, palpitations, tingling and POTS-like heart jumps that made them stop running that winter. Rest, B12, fasting, diet changes and later Pfizer…
-
Long COVID with over 70 symptoms, now much better with diet change and low-impact exercise
A former CrossFit athlete, she fell ill in August 2019 after travelling to China and later lost the ability to walk after pushing through exercise (Guillain-Barré). Over six years and five reinfections she went from over 70 symptoms to about 20 with diet…
-
Bedbound for 18 months with long COVID, now much better on ivabradine and nicotine patches
Fjord 15222 got long COVID in April 2022, was mild for a year, then crashed in July 2023 into severe illness: bedbound for 18 months, unable to eat enough, with MCAS, IST dysautonomia and insomnia. Over the next 18 months they improved to a mild state,…
-
Long COVID with PEM crashes and brain fog, much better; Xyzal and inhaler eased breathing
They caught COVID in May 2023, then had pneumonia and repeated infections, PEM crashes, air hunger and brain fog while working full time. Xyzal and an inhaler eased their breathing, and they still paced and crashed.