Long COVID, unable to work and getting worse, iron pills caused stomach pain
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 5 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I have been diagnosed with Long Covid, shortness of breath, COPD, anemia, sleep apnea, asthma, chronic fatigue, PEM
In context ↗ - At worst: Moderate
I have an estimated 2-3 hours of energy per day which includes bathing , cooking , studying , cleaning , and walks my dog.
In context ↗ - Now: No benefit
I’ve not worked for almost two years now because I’m not getting better. ... It’s getting worse .
- Began after: COVID
I first had Covid in 2019, then 2020, and again in 2023.
Summary
Tern 11298 has had long COVID since a COVID infection in December 2019, with two reinfections since. She was diagnosed with COPD, asthma, sleep apnoea, anaemia, PEM and other conditions, and has not worked as a nanny for nearly two years. About a year ago she could walk 45-60 minutes, but a third infection in 2023 put her back at square one; she says she is getting worse. Iron pills caused stomach pain.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- iron pills · No change
I’d been taking iron pills for years and still my blood count is low.
In context ↗ - HRT treatment · Not said
I am on HRT treatment.
In context ↗ - inhaler · No change
I use an inhaler daily to help me breathe better but still cannot breathe normally.
In context ↗ - physical therapy · Not said
I’m going to physical therapy for my back.
In context ↗ - surgery to stop the menorrhagia · No change
I’ve had surgery twice to stop the menorrhagia. It didn’t help and I’m still having that issue.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.8 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| Dec 2019 | first COVID infection; long COVID beginsI first had COVID in Dec of 2019.In context ↗ | Not stated |
| 2020 | second COVID infection; health worse each timeI’ve had Covid 3 times and each time my health is progressively getting worse.In context ↗ | Not stated |
| about a year before Sept 2024 | able to walk 45-60 minutes, but PEM and 1-2 days in bed afterwardsI was able to start walking about 45min-1 hour about a year ago .In context ↗ | Moderate |
| 2023 | third COVID infection; back to square oneThen I got COVID for the 3rd time and I’m back at square one.In context ↗ | Moderate |
| Sept 2024 | still getting worse; not worked for almost two years; disability deniedI’ve not worked for almost two years now because I’m not getting better.In context ↗ | Moderate |
Adverse events
- Iron infusion / ferritin repletion“I was taking iron supplements that were KILLING my stomach” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
chronic fatigue, PEM
In context ↗ - Gut problems
I have GI issues
In context ↗ - Breathlessness
still cannot breathe normally
In context ↗ - Neuropathy & tingling
tingling & numbness
In context ↗