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Long COVID Moderate → near normalIll 19 months before improvingNeeds ongoing treatment

Dr. Sally Riggs: How Understanding Shutdown Response Can Speed Up Long Covid Recovery

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving
19 months
Published
No date given
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In their words
  • Condition: Long COVIDin my long covid clinical presentation Watch the video ↗From the video’s captions
  • At worst: ModerateI was still doing a lot of trainings three-day workshops which were just absolutely excruciating but I needed the money Watch the video ↗From the video’s captions
  • Now: Near normalI only take two new clients per month because I still need to honor my own recovery Watch the video ↗From the video’s captions
  • Began after: COVIDFriday my covid symptoms started

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Summary

Sally Riggs, a New York psychologist, was ill from March 2020 with long covid and ME/CFS, and by late 2020 she was barely able to walk. Yoga, breathwork, massage and acupuncture each caused crashes. After starting the Safe and Sound Protocol in September 2021, her brain fog and fatigue eased within about a month and she returned to full-time work. She says she has been recovered for about four years.

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What they tried

Their words about each treatment
  • physiotherapy at Mount Si PT clinic · WorseI started working with janit Toto did not do very well with that chess pain got worse and worse Watch the video ↗From the video’s captions
  • Susie Bolt yoga · Much worseI tried Susie Bolt yoga crashed after every Watch the video ↗From the video’s captions
  • Transcendental Meditation · No changeit was lovely I enjoyed it very much but it didn't really do anything for me Watch the video ↗From the video’s captions
  • St breath work program · WorseI did the St breath work program could not get on with that at all Watch the video ↗From the video’s captions
  • lymphatic massage · WorseI tried lymphatic massage I tried cranio sacral I tried raiki literally crashed every time Watch the video ↗From the video’s captions
  • acupuncture · Much worseoh acupuncture was the worst crash ever Watch the video ↗From the video’s captions
  • radical rest · No changeliterally not feeling any different than when I had taken off Watch the video ↗From the video’s captions
  • Safe and Sound Protocol · Helped a lotI did the safe and sound protocol starting the beginning maybe late September Watch the video ↗From the video’s captions
  • polyvagal and somatic practices (nervous system tracker, rocking, cushions, weighted blanket) · Helpedtrying out all kinds of different poly vagal and sematic practices and supports Watch the video ↗From the video’s captions
  • heart rate monitor · Not saidI was wearing heart rate monitor by that point Watch the video ↗From the video’s captions

Approaches: Trauma & somatic work

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The dashed part: the story doesn’t say when. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 13, 2020Mild acute COVID; kept seeing patients from bedFriday my covid symptoms started um and that was March 13 Watch the video ↗From the video’s captionsMild
August 2020Worse after a 7-hour flight to the UK; last run in Septemberunfortunately I hadn't factored in the fact that flying 7 hours at 10,000 ft whatever ever it is has a big impact on your body if you've got long covid Watch the video ↗From the video’s captionsMild
December 2020Second flight to London; chronic fatigue beganDecember I foolishly decided to also fly to London again and that was the beginning of the chronic fatigue Watch the video ↗From the video’s captionsModerate
2021Chronic fatigue year; cut back work, crashed after most things she triedgoing into 21 basically 2021 was chronic fatigue year Watch the video ↗From the video’s captionsModerate
end of October 2021Safe and Sound Protocol; brain fog and fatigue eased, back to full-time workbrain fog was better fatigue was better was able to be working full-time again Watch the video ↗From the video’s captionsMild
—Working and writing, still managing her nervous system through the day to avoid crashesif I have those things in place then that will keep me as safe as possible and avoid me going into a crash this afternoon Watch the video ↗From the video’s captionsNear normalSarno / TMS / somatic tracking / JournalSpeak

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseliterally crashed every time Watch the video ↗From the video’s captions
  • Brain fogwhen the brain fog lifts Watch the video ↗From the video’s captions
  • POTS & dysautonomiaI have a lot of pots Watch the video ↗From the video’s captions
  • Mast cell (MCAS) & allergiesI have a lot of mcast Watch the video ↗From the video’s captions
  • Pain & fibromyalgiathat lovely rib pain that a lot of people had had Watch the video ↗From the video’s captions
  • Heart symptoms & palpitationsstarting to notice chest pain at the end of my run Watch the video ↗From the video’s captions
  • Breathlessnessstarting to notice shortness of breath just walking up a small hill Watch the video ↗From the video’s captions
  • Flu-like symptomsbody aches chills Watch the video ↗From the video’s captions
  • Loss of smell or tasteI had a weird like metallic taste Watch the video ↗From the video’s captions

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