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ME/CFS No benefit

Unable to breathe in or out with ME/CFS, trying meditation and Buteyko breathing

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Sep 2023
In their words
  • Condition: ME/CFSThis of course worsened my overall condition, leading to even more sleep issues, fatigue, pain etc. In context ↗
  • Now: No benefitThis of course worsened my overall condition, leading to even more sleep issues, fatigue, pain etc. In context ↗
  • Began after: injury or surgerynew symptoms after the surgery were only related to breathing and anxiety which were not present before at all In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A Reddit user in r/cfs says breathing and anxiety symptoms appeared after surgery (turbinate reduction and septoplasty) and worsened their overall condition, with more sleep problems, fatigue and pain; they also report a diagnosis of empty nose syndrome. Their worst issue is being unable to breathe in or out, with stomach/chest bloating and high anxiety. They manage it with meditation, Buteyko breathing and relaxation.

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What they tried

Their words about each treatment
  • turbinate reduction and septoplasty · Worsenew symptoms after the surgery were only related to breathing and anxiety which were not present before at all. This of course worsened my overall condition In context ↗
  • breathing exercises · HelpedThere are only 2 things which really help me which are breathing exercises and everything related to mental health In context ↗
  • meditation · HelpedI usually try to meditate and do some Buteyko breathing, until I feel a bit drowsy and more relaxed In context ↗
  • using cotton · Helpedthis may help me to feel the air a bit better in the short-term (only sometimes) In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—sinus surgery (turbinate reduction and septoplasty), followed by breathing and anxiety symptoms and worse overall conditionnew symptoms after the surgery were only related to breathing and anxiety which were not present before at all. This of course worsened my overall condition In context ↗
2023-09-02still unable to breathe normally, uses breathing exercises and relaxation to copeI currently do nothing special except trying to relax, not to stress about it In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessMy worst issue is feeling like a fish in the water, unable to breathe in or breathe out In context ↗
  • Anxiety & low moodnew symptoms after the surgery were only related to breathing and anxiety which were not present before at all In context ↗
  • Sleep problemsleading to even more sleep issues In context ↗
  • Pain & fibromyalgiafatigue, pain etc In context ↗
  • Brain foghave high anxiety and can't concentrate In context ↗

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