Long COVID with POTS-like dysautonomia, breathlessness and brain fog, now somewhat better
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 8 months
- Last post
- Sep 2023
In their words
- Condition: Long COVID
almost 3 months of long covid
In context ↗ - At worst: Moderate
When I’m going for a 15 minute walk I get so out of breath ... my significant other does everything (god bless her)
In context ↗ - Now: Somewhat better
I did have chest pain and brain fog (felt high) but those went away ... my long Covid symptoms is mainly shortness of breath
- Began after: COVID
I got covid around 6 weeks ago
- Says they never had: Post-exertional malaise
I do not have PEM
Read from 24 of their posts and comments; links to the 15 this page draws on
Summary
Crocus 15319, a 27-year-old man, developed long Covid after a spring 2021 infection, with POTS-like dysautonomia, breathlessness, chest pain, brain fog and weight loss. He improved over months, but a Pfizer vaccination in August 2021 worsened breathlessness, chest pain and tachycardia for about two months while fatigue and brain fog eased. In his latest comment he said a second Covid infection caused two months of symptoms, less harsh than before.
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What they tried
What they credit
Also tried
Their words about each treatment
- PPI / omeprazole · Helped
I have always been dealing with Gerd 7 months before when I got covid ... I’ve been taking ppi and it’s helped drastically
In context ↗ - resting / not doing anything · Helped
What has helped me is not doing anything and just relaxing as much I can sitting down
In context ↗ - Zyrtec · Helped
days I don’t take it my shortness of breath comes back
In context ↗ - magnesium · Not said
one of my meds in my stack have been working (Zyrtec (prob not), magnesium)
In context ↗ - b12 · Helped
I'm assuming it's the b12 cus it's either that or I recovered from fatigue which I doubt
In context ↗ - albuterol inhalers · No change
even albuterol inhalers don’t work
In context ↗ - Pfizer vaccine (1st dose) · Worse
my shortness of breath and chest pain was still there after 5 months but they improved until the vax and then it got way worse
In context ↗ - prednisone · Helped
prednisone works, cut my inflammation a lot ... I can breathe! And the chest pain isn’t so bothersome
In context ↗
Approaches: Other drugs and medicines · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2021 | COVID infection; GERD worsenedI got covid around 6 weeks ago. Covid worsened my gerdIn context ↗ | Not stated | |
| 2021-07-02 | Chest pain, tachycardia and breathlessness improved; new bulging veinsI’m feeling better in certain areas such as chest pain, tachycardia and SOB (still happens)In context ↗ | Moderate | |
| 2021-08-10 | Month four; mental symptoms and weight loss worsenedMonth four has been really toughIn context ↗ | Moderate | |
| 2021-08-17 | Zyrtec relieved breathlessnessdays I don’t take it my shortness of breath comes backIn context ↗ | Moderate | Cetirizine (Zyrtec) |
| 2021-08-20 | Pfizer vaccine worsened breathlessness, chest pain and tachycardiaMy shortness of breath was tremendously worse as bad as it was post acute phase of CovidIn context ↗ | Moderate | |
| 2021-09-24 | Prednisone eased breathing and chest pain; thought he could return to workI can breathe! And the chest pain isn’t so bothersome. I feel like I can go back to work if I kept feeling this.In context ↗ | Mild | Corticosteroid pulses |
| 2022-04-29 | Chest pain and brain fog resolved; other symptoms remainedI did have chest pain and brain fog (felt high) but those went awayIn context ↗ | Mild | |
| 2023-04-18 | Cold/flu worsened breathlessness during acute illnessduring the acute phase of any cold I get my lungs are in Pain and my SOB gets worse, but dies down after I feel betterIn context ↗ | Mild | |
| 2023-09-19 | Second Covid infection; symptoms lasted two months, less harsh2nd time I got Covid, I’m not shitting you my symptoms were bad for exactly 2 months so yeah gets less harsher everytimeIn context ↗ | Not stated |
Adverse events
- COVID vaccination as treatment“8/20 6 pm: some light chest pain on both sides. Physical fatigue is there, higher heart rate about 120-125 bpm standing. (All not typical long haul symptoms for me)” In context ↗ Side effects
- “Omeprazole I feel like messes with my appetite I’m tapering off it right now to see if I go on Pepcid” In context ↗ Gut side effects
- COVID vaccination as treatment“my shortness of breath and chest pain was still there after 5 months but they improved until the vax and then it got way worse as bad as the first month if not worse tbh” In context ↗ Made symptoms worse
- COVID vaccination as treatment“went to the ER yesterday because my shortness of breath has gotten way worse since the vaccine” In context ↗ ER visit
- Corticosteroid pulses“The pots symptoms didn’t disappear but still (might’ve gotten worse because of the high blood pressure)” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Gut problems
I have always been dealing with Gerd
In context ↗ - Brain fog
bad brain fog / mental fatigue
In context ↗ - POTS & dysautonomia
pots was there from the start
In context ↗ - Mast cell (MCAS) & allergies
Dermatographia / skin gets inflamed and red with light touch
In context ↗ - Pain & fibromyalgia
joints are super achy
In context ↗ - Breathlessness
my long Covid symptoms is mainly shortness of breath
In context ↗ - Heart symptoms & palpitations
My main symptoms are shortness of breath and palpitations. Tachycardia has gotten better but still happens sometimes
In context ↗ - Muscle weakness
my limbs don’t feel heavy in the morning when I wake up
In context ↗ - Neuropathy & tingling
pins and needles
In context ↗ - Anxiety & low mood
I’ve been feeling really down
In context ↗ - Temperature regulation
inability to sweat anywhere aside from armpits
In context ↗
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