Long COVID
Moderate → somewhat betterIll 2 years before improving or writingNeeds ongoing treatment
Long COVID with panic, gut and chest pain, somewhat better after water fast and ivermectin
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Oct 2024
In their words
- Condition: Long COVID
Have had long covid for a little over two years.
In context ↗ - At worst: Moderate
I now have severe chest pain and if I go on even a slight walk I get chest palpitations
In context ↗ - Now: Somewhat better
I have started getting better in the last few weeks after years of hell.
In context ↗ - Began after: a vaccination
No diagnosis but definite vax injury.
Read from 13 of their posts and comments; links to the 10 this page draws on
Summary
Petrel 23382 fell ill in early 2022, calling it a vaccine injury, with arm pain and numbness, visual disturbance, dizziness, tinnitus, panic attacks and depersonalisation. Panic attacks eased after a year, but gut pain, headaches, chest pain and palpitations followed, worsening sharply in late 2023. A water fast brought some relief; ivermectin helped most, though temporarily, and they were still improving by October 2024.
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What they tried
What they credit
Also tried
cranial sacral work (massage therapist)· Helped a lot48 hour water fast· Helped a lotexercise· Helpedmeditation and yoga· Helpedcolonoscopy· Helped · wore offwellness formula· Helpedantibiotics· Worseglycine· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- cranial sacral work (massage therapist) · Helped a lot
I have started seeing a massage therapist that specializes in cranial sacral work and I think it has made a huge difference.
In context ↗ - 48 hour water fast · Helped a lot
I finally tried one the other day. Did a 48 hour water fast. I feel so incredibly different now.
In context ↗ - glycine · Not said
Started taking glycine a few days ago.
In context ↗ - exercise · Helped
Exercise, along with meditation and yoga really helped me with the anxiety.
In context ↗ - nicotine patches · Helped a lot
I was skeptical until I did it and it started giving me my life back
In context ↗ - colonoscopy · Helped
Definitely noticed a difference. It wasn’t like 100 percent but there was a definite noticeable improvement.
In context ↗ - antibiotics · Worse
I had to start taking antibiotics shortly thereafter for a different reason and that pretty much ruined the improvement I had within 3-4 days
In context ↗ - Milk thistle/dandelion supplement · Helped
Milk thistle/dandelion supplement(liver health is very important.
In context ↗ - Vitamin d3/k2 supplement · Helped
Vitamin d3/k2 supplement
In context ↗ - Fish oil · Helped
Fish oil(brain health and inflammation are very important to work on with this disease)
In context ↗ - Vitamin b complex · Helped
Vitamin b complex
In context ↗ - wellness formula · Helped
I take an immune support vitamin complex every day called “wellness formula” as well as “Stamets 7” powder
In context ↗ - Stamets 7 powder · Helped
I take an immune support vitamin complex every day called “wellness formula” as well as “Stamets 7” powder that contains legal medicinal mushrooms
In context ↗ - Probiotics · Helped
Probiotics(this one is really important, the gut plays such a big role in mental and physical health it cannot be overstated.
In context ↗ - Ivermectin · Helped a lot
Ivermectin(This one makes the biggest noticeable impact in the shortest amount of time.
In context ↗ - COVID vaccination as treatment · Not said
experienced serious side effects that have permanently changed my life
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2022 | long COVID symptoms beganMy main symptoms at the beginning where arm pain and numbness, extreme vision problems, dizziness, tinnitus, panic attacks, and depersonalization/derealization.In context ↗ | Mild | |
| after first year | panic attacks mainly went awayAfter first year panic attacks mainly went away.In context ↗ | Mild | |
| summer 2023 | best they had felt since onsetThis last summer was the best I had felt since this all started.In context ↗ | Mild | |
| October or November 2023 | symptoms worsened as the weather turned coldRight around October or November(which is when it really starts getting cold and cloudy where I live) my symptoms started getting worse.In context ↗ | Mild | |
| late December 2023 | sudden severe worseningIn late December it suddenly got really horrible and has been that way ever since.In context ↗ | Moderate | |
| March 2024 | felt completely different after a 48-hour water fastDid a 48 hour water fast. I feel so incredibly different now.In context ↗ | Mild | |
| March 2024 | heart attack symptoms after a long walkSecond day went on long walk, started having heart attack symptoms. Barely made it home.In context ↗ | Moderate | |
| May 2024 | nicotine patches started giving them their life backI was skeptical until I did it and it started giving me my life backIn context ↗ | Mild | Nicotine patches |
| September 2024 | noticeable improvement after a colonoscopyDefinitely noticed a difference. It wasn’t like 100 percent but there was a definite noticeable improvement.In context ↗ | Mild | |
| October 2024 | antibiotics for another reason undid the colonoscopy improvementI had to start taking antibiotics shortly thereafter for a different reason and that pretty much ruined the improvement I had within 3-4 daysIn context ↗ | Mild | |
| October 2024 | getting better after years of illnessI have started getting better in the last few weeks after years of hell.In context ↗ | Mild | Ivermectin |
Adverse events
- COVID vaccination as treatment“experienced serious side effects that have permanently changed my life” In context ↗ Side effects
- COVID vaccination as treatment“definite vax injury. Floaters, ocilopssia, visual snow. Derealization, depersonalization, depression, panic disorder. Tinnitus, dizziness, arm pain that has now turned into chest pain.” In context ↗ Side effects
- Antibiotics (unspecified)“I had to start taking antibiotics shortly thereafter for a different reason and that pretty much ruined the improvement I had within 3-4 days” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaTinnitusVision problems
Their words about their symptoms
- Pain & fibromyalgia
Now have pain in both arms and full chest as well as legs.
In context ↗ - Neuropathy & tingling
Last few days stomach and chest pain have been getting worse as well as burning sensation all over body.
In context ↗ - Vision problems
Floaters, ocilopssia, visual snow.
In context ↗ - POTS & dysautonomia
At the end of December Extreme dizziness, lightheaded, and panic attack symptoms came back.
In context ↗ - Tinnitus
Tinnitus, dizziness, arm pain that has now turned into chest pain.
In context ↗ - Anxiety & low mood
panic attacks that are also far more physically traumatic then mentally
In context ↗ - Brain fog
My brain fog lifted and I remembered what it felt like to think.
In context ↗ - Gut problems
Started experiencing extreme GERD last fall. Abdominal pain soon followed.
In context ↗ - Headaches & migraine
Daily headaches soon followed.
In context ↗ - Heart symptoms & palpitations
if I go on even a slight walk I get chest palpitations
In context ↗
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