Long COVID
Severe → near normalIll 1 year before improving or writingNeeds ongoing treatment
Long COVID hospitalised with head and chest pain, now near normal with pacing and CBD/CBDA
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2025
In their words
- Condition: Long COVID
It was all post Covid issues.
In context ↗ - At worst: Severe
I was an athlete prior to this and could do absolutely nothing.
In context ↗ - Now: Near normal
I am recovered at 95% but it did take a full year. ... I occasionally will have an off day but I can recover.
In context ↗ - Began after: COVID
I had my only case of Covid in December
- Says they never had: Brain fog
Never brain fog but definitely major anxiety which I had never had before.
Read from 89 of their posts and comments; links to the 33 this page draws on
Summary
An athlete caught Covid in December 2023; their initial illness was mild, but four weeks later they were hospitalised with severe head and chest pain, electric zings, breathlessness and a racing heart. They developed insomnia, anxiety, gut problems and vision changes, and spent a great deal on supplements. Over about a year they recovered to roughly 95% by pacing, treating their gut and using CBD/CBDA, with occasional off days remaining.
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What they tried
Also tried
d-limonene (d-limeone)· Helped a lotCBD/CBG tincture (full-spectrum CBD)· Helped a lotCBDA· Helped a lotCBN· Helped a lotTHCA· Helped a lotAllegra· HelpedSun Chlorella· HelpedMiralax· HelpedSan Leng· HelpedReishi mushroom capsule· HelpedMelatonin· HelpedZyrtec· HelpedL-tryptophan· HelpedBPC-157· HelpedB1· HelpedDelta 8 gummy· HelpedFiber (kiwi, chia, flaxseed)· HelpedLutein· HelpedNattokinase· No changeTrazodone· No changeNAC· WorseFish oil· WorseUbiquinol· WorseMagnesium glycinate· WorsePaxlovid· Not saidVitamin D· Not saidYoga· Not saidVagus nerve exercises· Not saidEpicor· Not saidBioAstin· Not saidR-lipoic acid· Not said
Their words about each treatment
- Paxlovid · Not said
I took a 10 day course of Paxlovid but did not test negative until day 16.
In context ↗ - St. John's Wort · Helped a lot
The only thing that truly makes me feel normal is St. John’s Wort.
In context ↗ - NAC · Worse
All of those caused me insomnia as well.
In context ↗ - Vitamin D · Not said
I do use NAC and my usual supplements like D and fish oil.
In context ↗ - Rest and pacing · Helped
If I was tired or feeling off, I rested.
In context ↗ - Allegra · Helped
The one Covid infection I had also required Allegra in the morning but I was able to wean myself off that.
In context ↗ - Yoga · Not said
if I feel off, I just do some yoga and listen to my body.
In context ↗ - d-limonene (d-limeone) · Helped a lot
I developed the reflux as well but some people recommended d-limeone and that solved the issue.
In context ↗ - Sun Chlorella · Helped
what helped with my fatigue was Sun Chlorella.
In context ↗ - Nattokinase · No change
I just didn’t see a difference using it.
In context ↗ - Miralax · Helped
Miralax helped me and recently tried San Leng…Chinese herb with great success.
In context ↗ - Probiotics · Helped
I started with Miralax and then healed my gut with probiotics.
In context ↗ - CBD/CBG tincture (full-spectrum CBD) · Helped a lot
I have been using full spectrum CBD to calm the inflammation and for me, it has helped tremendously.
In context ↗ - Reishi mushroom capsule · Helped
my current combo working is Cbd/Cbg tincture along with a Reishi mushroom capsule and a melatonin.
In context ↗ - Melatonin · Helped
I take melatonin, Zyrtec, l-tryptophan and a liquid CBG.
In context ↗ - L-tryptophan · Helped
I added melatonin, Zyrtec and l-tryptophan to sleep.
In context ↗ - Vagus nerve exercises · Not said
I actually watched some YouTube videos to stimulate the vagus nerve.
In context ↗ - Trazodone · No change
My doctor prescribed Trazadone which did nothing.
In context ↗ - BPC-157 · Helped
I used BPC157 for gut issues along with d-limeone and a probiotic for 30 days and my gut is back to normal
In context ↗ - B1 · Helped
Are you able to take B1? That helped a lot.
In context ↗ - Epicor · Not said
I also still take Epicor, BioAstin and R-lipoic acid.
In context ↗ - Magnesium glycinate · Worse
Magnesium glycinate made my insomnia worse.
In context ↗ - CBDA · Helped a lot
I started taking CBDA and it completely stopped that feeling.
In context ↗ - CBN · Helped a lot
I started taking CBN at night and it completely calmed my symptoms down.
In context ↗ - THCA · Helped a lot
THCA got rid of the burning/tingling in my extremities.
In context ↗ - Fiber (kiwi, chia, flaxseed) · Helped
I started eating kiwi every day which helped a lot.
In context ↗ - Lutein · Helped
I started taking Lutein supplement for my eyes.
In context ↗
Approaches: Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2023 | mild Covid infectionI had my only case of Covid in December…mildIn context ↗ | Mild | |
| January 2024 | hospitalised with severe pain, electric zings and breathlessnessEnded up in the hospital 4 weeks after infection which they thought I was having a heart attack or stroke.In context ↗ | Severe | |
| 2024-02-14 | turned a corner; light bike and weightsI think I have finally turned a corner. I was finally able to get on my bike trainer and lift weights, lightly but felt good.In context ↗ | Mild | St John's Wort |
| 2024-06-21 | about 95%, back to workouts6 month’s recovery for me and I am at about 95%.In context ↗ | Near normal | Probiotics and fermented foods |
| 2025-03-24 | about 95% after a full year, occasional off daysI am recovered at 95% but it did take a full year. I occasionally will have an off day but I can recover.In context ↗ | Near normal |
Adverse events
- Nattokinase“It caused insomnia for me regardless of what time I took it.” In context ↗ Insomnia from treatment
- NAC (N-acetylcysteine)“All of those caused me insomnia as well.” In context ↗ Insomnia from treatment
- CoQ10 / ubiquinol“All of those caused me insomnia as well.” In context ↗ Insomnia from treatment
- Omega-3 and fish oil“All of those caused me insomnia as well.” In context ↗ Insomnia from treatment
- BPC-157“All of those caused me insomnia as well.” In context ↗ Insomnia from treatment
- Magnesium“Magnesium glycinate made my insomnia worse.” In context ↗ Insomnia from treatment
Symptoms mentioned
Anxiety & low moodBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Post-exertional malaise
It took several months to not crash
In context ↗ - POTS & dysautonomia
My doctor said she believes it set my autonomic system on fire.
In context ↗ - Mast cell (MCAS) & allergies
some foods do seem to create histamine issues as well.
In context ↗ - Sleep problems
Insomnia was terrible which contributed to feeling awful each day.
In context ↗ - Pain & fibromyalgia
Rolling pain from head to feet.
In context ↗ - Headaches & migraine
severe chest and head pain
In context ↗ - Gut problems
I could only eat like 4 foods. Nothing would digest.
In context ↗ - Breathlessness
I struggled to breathe and my heart would race.
In context ↗ - Heart symptoms & palpitations
my heart would race
In context ↗ - Neuropathy & tingling
I had pins and needles in my extremities for 18 months.
In context ↗ - Anxiety & low mood
major anxiety which I had never had before.
In context ↗ - Vision problems
My vision became worse and my eye doctor had to send me to a retina specialist
In context ↗
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