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Long COVID Moderate → no benefitIll for 4.5 years

Long COVID with brain fog, pain and breathlessness, no improvement from treatments

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
4.5 years
Last post
Jul 2025
In their words
  • Condition: Long COVIDi was a reasonably healthy and fit person before getting covid last march In context ↗
  • At worst: Moderatehalf an hour in the grocery store and i'm sweating, out of breath, exhausted. can't exercise anymore. In context ↗
  • Now: No benefitluckily my iron levels are stabilizing (although my symptoms are as debilitating as ever) In context ↗
  • Began after: COVIDbefore getting covid last march
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

Bramble 19060 was fit and healthy until catching COVID in March 2021, then developed long COVID with brain fog, migraines, pain, breathlessness, palpitations and insomnia. Treatment for depleted iron/ferritin brought levels up but in January 2022 symptoms were as debilitating as ever, with an hour on their feet enough to need to lie down. They later reported sertraline exacerbating concerns, bupropion making things worse in May 2025, and burns from patch adhesive in July 2025.

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What they tried

Their words about each treatment
  • ADHD medication · Not saidmy PCP at the time took me off my ADHD medication In context ↗
  • sertraline · WorseSSRIs didn't help me at all ... it exacerbated quite a few of my concerns In context ↗
  • proper treatment for depleted iron/ferritin · No changeluckily my iron levels are stabilizing (although my symptoms are as debilitating as ever) In context ↗
  • wellbutrin · Worsewellbutrin turned me into a monster In context ↗
  • nicotine patches · Not saidi've had terrible reactions to the adhesive used in the patches i tried — gave me chemical burns In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2021caught COVID while fit and healthyi was a reasonably healthy and fit person before getting covid last march. In context ↗Not stated
January 2022all symptoms persisting; iron and ferritin normalised but no relieftired after even an hour of doing stuff on my feet, have to lay down but can't sleep In context ↗Moderate
2025-05-15bad reaction to bupropion (Wellbutrin)wellbutrin turned me into a monster In context ↗Not stated
2025-07-14still ill; chemical burns from nicotine patch adhesivei've had terrible reactions to the adhesive used in the patches i tried — gave me chemical burns. notably i had no issues prior to this medical hellscape. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogcan't remember things (dates, names, etc., feels like there are gaps in my memory) In context ↗
  • Headaches & migrainesevere migraines (left, right, front— eyesight) chronically In context ↗
  • POTS & dysautonomiafrequently dizzy, lightheaded In context ↗
  • Heart symptoms & palpitationsrapid heart rate (168 in cvs, regularly over 110 or 120), heart palpitations In context ↗
  • Breathlessnessharder to breathe, feels like i'm not getting enough air In context ↗
  • Mast cell (MCAS) & allergiespatches of hives or rash. no known allergies In context ↗
  • Neuropathy & tinglingprickly and tingly In context ↗
  • Pain & fibromyalgiabone/joint/muscle pain. sometimes unable to move arms. In context ↗
  • Muscle weaknesseasily fatigued, out of breath, weak, clumsy, poor balance In context ↗
  • Light & noise sensitivityworsening eyesight, especially at night, light sensitivity In context ↗
  • Vision problemschronically extremely dry eyes In context ↗
  • Temperature regulationoccasional excessive sweating (actual drops of sweat), usually when i'm lying in bed or not doing anything strenuous In context ↗

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