Nine months mostly in bed with long COVID, now much better after rest and pacing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5.5 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I have long covid from the vaxx.
In context ↗ - At worst: Severe
literally in bed for 9 months, then in bed or jome bound A LOT during the recent 4 years
In context ↗ - Now: Much better
I can walk, work, drive, go to shopping, cook all of it on the same day. Sometimes a day after day. However I still need to rest more than the usual person.
In context ↗ - Began after: a vaccination
I got long covid/haul 24 hrs post second vaxx.
Read from 125 of their posts and comments; links to the 35 this page draws on
Summary
A woman became ill within 24 hours of a second Moderna dose in June 2021: racing heart first, later chest pain and breathlessness, and nine months mostly in bed. She credits time, heavy rest and pacing, black garlic and lysine for a very slow improvement. By late 2025 she was about 80-85% of her former self, crashed roughly every six weeks and needed 12 hours a day in bed; by 2026 she was working remotely and significantly better, but still not herself. Hot weather helped; cold winters made her worse.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped
I took this advice super seriously and I think it saved me from years of suffering.
In context ↗ - complete rest · Helped
REST BEYOND IMAGINATION. This is the only thing that helped me overcome my 5 week relapse.
In context ↗ - time · Helped
Time is the major healer
In context ↗ - Lysine (with Zinc and C), Gamison brand · Helped
1 gr. Lysin (with Zinc and C), specifically Gamison brand is particularly helpful in prevention
In context ↗ - black garlic · Helped a lot
half/third a clove of black garlic *every day* with food is making a tremendous change for me
In context ↗ - increased animal protein / much less carbs · Helped
I Substantially increased animal protein intake this week, and definitely improved.
In context ↗ - vivo smart [Garmin smart watch] · Helped
I already had 3 occasions since yesterday in which I reached 105, and immediately was able to lower activity to a safer range, thanks to this real time information.
In context ↗ - creatine · Worse
I took for 3 days during a flare up. I think it worsened my symptoms.for sure did not help.
In context ↗ - NAC · Worse
On Sun I gave NAC a try and took 600 mg around 9 pm. Immediately after, my vision was not as good, my chest tightened.
In context ↗ - physical therapy · Helped
Yes. It subsides but comes and goes. Physical therapy helps.
In context ↗ - breathing from my diaphragm · Helped
Generally for me breathing from my diaphragm- meaning from my belly - helps.
In context ↗ - collagen · Helped
Better healing, nicer skin
In context ↗ - warm/hot weather, flying to Florida · Helped
If I change climate mid winter to a warmer one, I am getting better within 2 days.
In context ↗ - D3 · Not said
Lysine, D3, Zinc - occasionally
In context ↗ - walking every morning · Not said
Last summer walked every morning for 4 months.
In context ↗ - COVID vaccination as treatment · Worse
I developed PEM as a result of my second.
In context ↗
Approaches: Amino acids and carnitine · Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| June 2021 | Second Moderna dose; ill within 24 hours24 hours post 2nd Moderna i became a sick woman.In context ↗ | Severe | |
| Oct 2021 | Horrible flare-up, rested almost three monthsI rested like crazy for almost 3 months when I had my horrible flare up in oct-dec 2021.In context ↗ | Severe | |
| March 2022 | Out of bed after nine months, still mostly homeboundTook me 9 months to get out of bed.In context ↗ | Moderate | |
| Oct 2022 | Autumn relapseI am right in the middle of a relapse that started early Oct....In context ↗ | Moderate | |
| Dec 2022 | Somewhat functional, travelling for work every six weeksFor me it was about 1.5 year to start being somewhat functional.In context ↗ | Moderate | |
| June 2023 | Very bad relapseI am in a very bad relapse right now, after a long time in which it was manageable.In context ↗ | Moderate | |
| July 2025 | Around 85% of her former selfI am around 85% of myself pre 2021, and trying my best to assess when I cross the line.In context ↗ | Mild | |
| late Aug 2025 | Autumn slide as weather cooledThe summer ended abruptly. ... I am sick for almost two weeks now.In context ↗ | Moderate | |
| Dec 2025 | Trip to Florida; PEM lifted in the heatThe pem disappeared.In context ↗ | Mild | Altitude and climate change of location |
| June 2026 | Significantly better at the 4.5 year pointAt 4.5 year point i started feeling significantly better.In context ↗ | Mild | Time and spontaneous remission |
| Aug 2026 | Working remotely, ups and downs, never fully herselfThere are ups and downs (more ups with time), but I never returned to myself.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“Since my 2nd jab (within 24 hrs) I started suffering from racing heart, irregular heartbeats.” In context ↗ Heart rhythm problems
- COVID vaccination as treatment“First dose was severe brain fog and very slight joint pain” In context ↗ Side effects
- COVID vaccination as treatment“I developed PEM as a result of my second.” In context ↗ Made symptoms worse
- Creatine“I took for 3 days during a flare up. I think it worsened my symptoms.for sure did not help.” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“Immediately after, my vision was not as good, my chest tightened.” In context ↗ Made symptoms worse
- NAC (N-acetylcysteine)“After 2 hours I became energetic, that I could not sleep until 1 am.” In context ↗ Insomnia from treatment
- Keto and low-carb diets“The most I was able to survive on this was.... 3 days. I simply hated it so much that I barely ate.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Main symptom is PEM and it's derivatives.
In context ↗ - Heart symptoms & palpitations
Yesterday I had joint pain, some heart pounding.
In context ↗ - Breathlessness
SOB is a big problem. I am going through a really bad episode.
In context ↗ - Brain fog
even when your brain does not work half the time
In context ↗ - Pain & fibromyalgia
fatigue, muscle aches, and general couch potato state
In context ↗ - POTS & dysautonomia
I get PEM, dizziness, shortness of breath, etc. from time to time.
In context ↗ - Anxiety & low mood
Fear is always there.
In context ↗ - Temperature regulation
The minute it gets colder, I become weak and fatigued.
In context ↗ - Flu-like symptoms
I immediately feel very sick, like strong flue, for several days
In context ↗ - Muscle weakness
I am wrecked and heavy like a stone, even with a small effort.
In context ↗
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