Long COVID
Moderate → much betterIll 6 months before improving or writing
Long COVID with palpitations, tremors and constant headaches, now much better
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- May 2021
In their words
- Condition: Long COVID
I'm on my fifth month as a covid long hauler 24M.
In context ↗ - At worst: Moderate
months 2-3 were the worst so far for me. Heart palpitations, weakness, fatigue, tremors in my hands and lip, crippling anxiety, and terrible headaches
In context ↗ - Now: Much better
my brain fog has lifted since the vaccine which is an upside. My POTS has largely subsided ... My main persistent symptoms are neurological
In context ↗ - Began after: COVID
I'm on my fifth month as a covid long hauler 24M.
In context ↗
Read from 13 of their posts and comments; links to the 7 this page draws on
Summary
Lagoon 19099, a 24-year-old man, fell ill in September 2020 with migraines and by month five had heart palpitations, limb weakness, tremors, anxiety and constant headaches, worst in months two and three. He improved slowly, relapsed in February 2021 after overexertion and life stress, and by May 2021 said his brain fog had lifted and POTS had largely subsided, though headaches, electric shocks and limb weakness remained.
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What they tried
Also tried
Their words about each treatment
- Pfizer · Helped
my brain fog has lifted since the vaccine which is an upside
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| September 2020 | symptoms began with migrainesmy symptoms started in September with migrainesIn context ↗ | Mild |
| November-December 2020 | worst months with palpitations, weakness, tremors, anxiety, headachesmonths 2-3 were the worst so far for me. Heart palpitations, weakness, fatigue, tremors in my hands and lip, crippling anxiety, and terrible headaches.In context ↗ | Moderate |
| 2021-01-28 | slow improvement by month fiveOverall heading into month five I feel like I'm heading in the right direction.In context ↗ | Mild |
| 2021-02-05 | nasty relapse after overexertion and life stressI'm currently in the middle of a nasty relapseIn context ↗ | Mild |
| 2021-03-16 | more good days, bad days still paralyzingThere are more good days now instead of bad but when the bad ones come roaring back it's paralyzing.In context ↗ | Mild |
| 2021-05-02 | brain fog lifted and POTS largely subsided, neurological symptoms persistHowever my brain fog has lifted since the vaccine which is an upside.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“The first dose I had no immediate side effects outside of a sore arm and mild fever that night.” In context ↗ Side effects
- COVID vaccination as treatment“Over the course of two weeks I had a mild relapse of elevated HR and a bad migraine that resulted in my right arm and leg going weak for a few days.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgia
Their words about their symptoms
- Headaches & migraine
I never had a migraine before this, now I get them constantly.
In context ↗ - Heart symptoms & palpitations
Heart palpitations aren't as exaggerated as they were in months 2-3.
In context ↗ - POTS & dysautonomia
My POTS has largely subsided though this is most likely due from time and not the vaccine itself.
In context ↗ - Brain fog
However my brain fog has lifted since the vaccine which is an upside.
In context ↗ - Muscle weakness
weakness in limbs that comes and goes
In context ↗ - Neuropathy & tingling
the pins and needles aren't as prevalent as they once were
In context ↗ - Breathlessness
Shortness of breath happens much more rarely
In context ↗ - Anxiety & low mood
I'll have bouts of anxiety still hit from time to time
In context ↗ - Pain & fibromyalgia
I get pain in my calves that comes and goes along with weakness in my arms.
In context ↗ - Gut problems
I had the exact same experience. Now my appetite has gone back to normal.
In context ↗