Long COVID
Severe → near normalIll 4 years before improving or writing
A year horizontal with long COVID, now near normal after diet and naproxen with Botox
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I’ve had LC for 4 years now
In context ↗ - At worst: Severe
Given I was horizontal, in and out of hospital for a year and off work, that’s a really big improvement.
In context ↗ - Now: Near normal
I’ll always be left with allergic asthma that can kick my backside at times, but the constant fatigue, brain fog, confusion, pain, swelling etc I was experiencing have pretty much gone
In context ↗ - Began after: COVID
Covid triggered a huge eosinophilic reaction (my eyes were swollen, as were my glands, airways etc)
Read from 31 of their posts and comments; links to the 18 this page draws on
Summary
Glade 83850 got long COVID in 2020 and spent a year horizontal, in and out of hospital and off work, with swelling, tachycardia, allergies and severe brain fog. A diet overhaul with pre/probiotics, omega-3, turmeric and magnesium brought steady improvement, and naproxen with Botox gave further relief. Fatigue and brain fog have largely gone, though allergic asthma persists.
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What they tried
What they credit
Mediterranean / elimination diet· Helped a lot · mainMediterranean / elimination diet· Helped a lot · mainPre, pro and post biotics· Helped a lot · mainNaproxen· Helped a lot · mainBotox· Helped a lot · mainPrednisolone· HelpedInulin· HelpedOmega 3· HelpedTurmeric· HelpedIntermittent fasting· HelpedDaily walking· Helped
Also tried
Magnesium· HelpedTRT· HelpedtDCS device· HelpedSports massages· HelpedHRT dose adjustment· HelpedSSRIs· WorseDoxycycline· Not saidMontelukast· Not saidSymbicort and Ventolin inhalers· Not saidAntihistamine tablets· Not saidSteroid eye drops· Not saidMindfulness· Not saidRed light therapy· Not saidCryotherapy· Not saidInfrared sauna· Not said
Their words about each treatment
- Prednisolone · Helped
Yes I was on it for the best part of a year. It definitely helped.. saved my life I’d say
In context ↗ - Doxycycline · Not said
I was on constant cycles of prednisolone, doxycycline, montelukast
In context ↗ - Symbicort and Ventolin inhalers · Not said
have Symbicort and Ventolin inhalers
In context ↗ - Antihistamine tablets · Not said
plus take antihistamine tablets and steroid eye drops on top
In context ↗ - SSRIs · Worse
Tried them for 6 months and if anything felt worse
In context ↗ - Mediterranean / elimination diet · Helped a lot
I felt so much better in just a matter of days
In context ↗ - Pre, pro and post biotics · Helped a lot
Even if you only took the pre, pro and post biotics and changed your diet, I would bet my life you’d start to find symptoms improve
In context ↗ - Inulin · Helped
I take a daily dose of inulin dissolved in water, and find it gives me a slight lift in energy
In context ↗ - Omega 3 · Helped
I take high dose omega 3 (not 6), and turmeric to try and help with inflammation
In context ↗ - Magnesium · Helped
I take magnesium to get a better nights sleep so I’m less likely to need to sleep in the day.
In context ↗ - Intermittent fasting · Helped
One of the most useful tools I found to be was intermittent fasting.
In context ↗ - TRT · Helped
Yes I was prescribed TRT whilst having long covid.. and yes it helped with some symptoms in part
In context ↗ - Daily walking · Helped
I finally reached a point where I could start walking every day for a short while. Over time I was able to increase it
In context ↗ - Mindfulness · Not said
I also practice mindfulness to try to keep stress levels as low as possible.
In context ↗ - tDCS device · Helped
I’m using at bedtime as it makes me sleepy.. in fact I’m sleeping better due to it
In context ↗ - Sports massages · Helped
They hurt, but the tension relief.. my god.. they’re worth every penny!
In context ↗ - Red light therapy · Not said
I’ve started red light therapy, but I’ve only had 2 sessions so far.
In context ↗ - Cryotherapy · Not said
I’m also booked in for cryotherapy which I start on Saturday.
In context ↗ - Naproxen · Helped a lot
the only thing that’s killed it off is Naproxen
In context ↗ - Botox · Helped a lot
naproxen along with Botox to relax the mcs muscle in my neck are proving to be complete game changers for me
In context ↗ - Infrared sauna · Not said
I also started going for infrared saunas.. which can be another great tool for aiding repair of your mitochondria.
In context ↗ - HRT dose adjustment · Helped
covid exacerbated menopausal symptoms ... When my HRT dose was adjusted it improved.
In context ↗
Approaches: Diet · Exercise and activity · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | COVID-19; in and out of hospital, horizontal, off work4 years ago I was in and out of hospital.. my face, eyes and glands in the neck were swollen.In context ↗ | Severe |
| 2024-03 | diet overhaul, probiotics and supplements; walking again and back to the gymIt’s taken me 3 years and im certainly not 100%, but I’m considerably better than I was.In context ↗ | Mild |
| 2024-10-11 | naproxen plus Botox for neck muscles; more energy than in yearsnaproxen along with Botox to relax the mcs muscle in my neck are proving to be complete game changers for me. I’m 10 days in and have more energy than I’ve had in yearsIn context ↗ | Mild |
| 2025-08-18 | fatigue, brain fog, confusion, pain and swelling largely gone; allergic asthma remainsthe constant fatigue, brain fog, confusion, pain, swelling etc I was experiencing have pretty much goneIn context ↗ | Near normal |
Adverse events
- Antidepressants (unspecified)“Tried them for 6 months and if anything felt worse” In context ↗ Made symptoms worse
- Corticosteroid pulses“My sides were moon face, water retention, insomnia, significant weight gain, even worse memory loss / confusion than LC” In context ↗ Side effects
- Corticosteroid pulses“I’d say the effects of prednisolone took me about 18 months to shift” In context ↗ Withdrawal problems
- tDCS (transcranial direct current stimulation)“It stings somewhat, but nothing unbearable” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHair lossHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesMuscle weaknessPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Brain fog
the worst memory / brain fog / confusion
In context ↗ - Post-exertional malaise
On the days I make it through, I crash as soon as I close the laptop.
In context ↗ - Mast cell (MCAS) & allergies
I also developed asthma and a whole new bunch of allergies
In context ↗ - Heart symptoms & palpitations
I was tachycardic with high blood pressure
In context ↗ - Pain & fibromyalgia
constant pain in the body; shooting pains in my chest
In context ↗ - Headaches & migraine
Chronic head pain, confusion, loss of memory
In context ↗ - Muscle weakness
body pain pain, paralysis in muscles, intermittent slurred speech
In context ↗ - Breathlessness
restriction of airways; throat would close somewhat like anaphylaxis
In context ↗ - Sleep problems
I take magnesium to get a better nights sleep so I’m less likely to need to sleep in the day.
In context ↗ - Anxiety & low mood
I felt emotionally flat at best
In context ↗ - Hair loss
my hair came out in clumps
In context ↗
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