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Long COVID Moderate → no benefit

Long COVID breathlessness and chest pain stopped school; treatments gave no benefit

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Jul 2022
In their words
  • Condition: Long COVIDi was vaccinated with pfizer too, and have had loads of the other long haul symptoms too for 2 months In context ↗
  • At worst: Moderatei cant speak on how long it will last since my shortness of breath is pretty debilitating ... stopped going to school
  • Now: No benefitI still struggle daily, but my best advice is to power through, and remember that one day you will feel better. In context ↗
  • Began after: a vaccinationmy long haul symptoms began from the vaccines and were made much worse from covid
Read from 15 of their posts and comments; links to the 10 this page draws on

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Summary

Bluebell 63244, a UK student, traced long COVID to vaccine doses: the second caused odd, infrequent symptoms, the third made them worse and frequent, and a COVID infection later made everything 24/7. Breathlessness at rest, chest pain and anxiety left them struggling daily and sent to the ER twice; they stopped school. Colchicine, ibuprofen and prednisone did nothing; a sleep and vision problem settled on its own.

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What they tried

Their words about each treatment
  • steam inhalation · Helpedsteam inhalation helps with the pain In context ↗
  • lavender pillow · Helpedholding a lavender pillow up to my nose helps with the suffocation feeling In context ↗
  • daily walk · Helpeddaily walk down the street definitely helps clear my head In context ↗
  • vitamin D · Helpedvitamin D and protein powder helped a lot with the mental side In context ↗
  • asthma inhaler · No changeprescribed me anti psychotics after i said the asthma inhaler was ineffective In context ↗
  • medicines for anxiety · No changemedicines for anxiety were practically useless In context ↗
  • colchicine · No changethey put me on colchicine and ibuprofen, neither of which made any difference to my symptoms In context ↗
  • prednisone · No changehe prescribed prednisone, it didn't help for me In context ↗
  • marijuana · Worsea joint gave me a severe panic attack and heart pounding In context ↗
  • Pfizer COVID vaccine and booster · Worse2nd jab: odd symptoms, very infrequent ... 3rd jab: symptoms became worse and frequent In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2nd jabsecond vaccine dose; odd infrequent symptoms began2nd jab: odd symptoms, very infrequent In context ↗Mild
3rd jabbooster; symptoms became worse and frequent3rd jab: symptoms became worse and frequent In context ↗Mild
Christmas 2021COVID infection made everything worse and constantpost covid infection: everything made significantly worse and 24/7 In context ↗Moderate
June 2022shaking vision and pre-sleep jolts settled on their owngot better on its own, i know everyone says it but it’s true, time is your best friend In context ↗Moderate
2022-05-12still struggling dailyI still struggle daily, but my best advice is to power through In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Breathlessnessi've had shortness of breath as my main symptom at rest with long covid In context ↗
  • Heart symptoms & palpitationsstarted getting incredibly short of breath, chest pain and anxiety In context ↗
  • Anxiety & low moodmy anxiety is about my breathing- which is a constant reminder In context ↗
  • Brain fogi have trouble concentrating In context ↗
  • Pain & fibromyalgiadissociation and body aches In context ↗
  • Sleep problemswent days without sleep and had the body jolt feeling right before falling asleep ... got better on its own In context ↗
  • Vision problemsfelt like my vision was shaking ... got better on its own In context ↗
  • POTS & dysautonomiamy whole body was falling ... got better on its own In context ↗

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