Moderate ME/CFS for two decades, almost full remission two weeks then worse after Covid
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 20 years
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
I had struggled with moderate ME/CFS for two decades
In context ↗ - At worst: Moderate
I had struggled with moderate ME/CFS for two decades ... have been moderate-severe ever since
In context ↗ - Now: Relapsed
experienced an almost full remission after moving to the San Francisco Bay Area ... it only lasted for two weeks ... I got Covid, too, and have been moderate-severe ever since
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Harbor 63436 had moderate ME/CFS for two decades, then an almost full remission after moving to the San Francisco Bay Area that lasted only two weeks. Their husband brought home Omicron; they caught Covid and have been moderate-severe since, with thoughts of ending their life. Air hunger came with low thyroid and went once properly medicated.
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What they tried
What they credit
Their words about each treatment
- moving to the San Francisco Bay Area · Helped a lot
experienced an almost full remission after moving to the San Francisco Bay Area
In context ↗ - LDN · No change
LDN didn’t help me
In context ↗ - thyroid medication · Helped a lot
I had bad air hunger when my thyroid was low. Once I was properly medicated it went away.
In context ↗ - Paxlovid · No change
I used Paxlovid when I got Covid and still ended up with LC.
In context ↗ - IVIG · No change
I took it for one month and didn’t notice any improvement so stopped.
In context ↗
Approaches: Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | moderate ME/CFS beganI had struggled with moderate ME/CFS for two decadesIn context ↗ | Moderate | |
| 2021-2022, before the Omicron spike | almost full remission after movingexperienced an almost full remission after moving to the San Francisco Bay AreaIn context ↗ | Near normal | Relocation and environmental change |
| early 2022 (Omicron spike) | caught Covid from their husband; long Covidit only lasted for two weeks because my husband brought home Covid during the omicron spike. I got Covid, too, and have been moderate-severe ever sinceIn context ↗ | Moderate | |
| 2024-12-14 | still moderate-severe with long Covidhave been moderate-severe ever sinceIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
It has been so utterly devastating that I have thought many, many times of ending my seemingly useless life.
In context ↗ - Breathlessness
I had bad air hunger when my thyroid was low. Once I was properly medicated it went away.
In context ↗
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