Long COVID
Severe → somewhat betterIll 5 years before improving or writingNeeds ongoing treatment
Long COVID: stopped work, a week largely in bed, somewhat better with psilocybin
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I'm currently doing significantly better with the LC CFS than I was several months ago.
In context ↗ - At worst: Severe
not being able to sit upright is a demoralizing state
In context ↗ - Now: Somewhat better
I'm about 50% recovered from my worst state.
In context ↗ - Began after: COVID
I got covid back in the fall of 2021
- Says they never had: POTS & dysautonomia
No POTS.
Read from 54 of their posts and comments; links to the 24 this page draws on
Summary
Fit and running 5-10k a day, they caught COVID in autumn 2021, kept working remotely as fatigue grew and stopped work in early 2022, spending a week largely in bed and limited afterward. From 2024 a supplement cocktail, and later psilocybin (microdoses helpful; macrodoses every 10-14 days), improved their brain fog and cognition. They remain about 50% recovered: unable to work, but managing their household with frequent lying down. Reinfections caused at most about a month-long flare, sometimes none.
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What they tried
What they credit
Also tried
meditation and grounding· Helpedself reiki type stuff· Helpedeating clean and more vegetables· Helpedorganic coffee· Helpedkinesiology (exercise therapy)· Helpedcannabis· No changecouch to 5k· WorseMethylphenidate (Ritalin, Concerta)· Worsewellbutrin· Not saidvitamin d· Not saidcalcium· Not saidgreen tea· Not saidiron· Not saidsupplements for hair density· Not said
Their words about each treatment
- radically cutting back on my activities · Helped
the supplements and radically cutting back on my activities are what allows me to function
In context ↗ - couch to 5k · Worse
I've made a few attempts to do the couch to 5k since I got over my original covid infection, and each time I get worse and worse.
In context ↗ - meditation and grounding · Helped
I've found meditation and grounding to be helpful.
In context ↗ - self reiki type stuff · Helped
I do some self reiki type stuff too, and its good for the aches and pains and headaches and stuff.
In context ↗ - wellbutrin · Not said
I was already taking wellbutrin, vitamin d (very deficient) and calcium.
In context ↗ - psilocybin · Helped a lot
I've had good luck with psilocybin. It hasn't cured me, but its made a huge difference.
In context ↗ - nattokinase · Helped
I added nattokinase, zinc, turmeric, bromelain, salmon oil and a multivitamin. ... It seems to be helpful.
In context ↗ - green tea · Not said
replacing some of my coffee intake with green tea
In context ↗ - eating clean and more vegetables · Helped
Eating clean does help, but I don't always have time.
In context ↗ - iron · Not said
I also take zinc, vit d, iron, turmeric, calcium.
In context ↗ - cannabis · No change
I haven't found cannabis helpful, but psilocybin is the only thing that makes a significant difference.
In context ↗ - ADHD meds · Helped
My ADHD meds help reduce the energy expenditure of decision making, which is surprisingly exhausting by the end of the day.
In context ↗ - organic coffee · Helped
I can only drink organic coffee without feeling weak and nauseous after.
In context ↗ - kinesiology (exercise therapy) · Helped
I actually had a lot of luck with kinesiology (its like exercise therapy). It was all about building up my stamina without triggering a crash.
In context ↗ - supplements for hair density · Not said
a bunch of stuff to help my hair density (hair loss is one of my symptoms)
In context ↗ - time · Helped
Time did a some, but I think the supplements and radically cutting back on my activities are what allows me to function.
In context ↗ - Methylphenidate (Ritalin, Concerta) · Worse
the amphetamines work better for the ADHD, but they're also harder on my LC, so I have to be careful.
In context ↗
Approaches: Anticoagulants · Other drugs and medicines · Pacing · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| fall 2021 | COVID-19 infection while very fit; long COVID followsI got covid back in the fall of 2021, and I was in the best shape of my life.In context ↗ | Mild |
| 2022 | kept working and deteriorated, cut to half days with restsI even cut my hours and tried to keep going by working for 2 hours, laying down for an hour, and then doing another 2.In context ↗ | Moderate |
| early 2022 | stopped working; in bedI pretty much didn't get out of bed for a week, and not much after that.In context ↗ | Severe |
| 2023-12 | reinfection flared symptoms for about a monthMy LC symptoms got so much worse after my recentish infection, for about a month. Back to baseline nowIn context ↗ | Moderate |
| 2024-09 | anti-inflammatory supplement cocktail; brain fog and psoriasis improvedthe new cocktail of supplements I'm taking had given me back about 50% of my cognitive functionIn context ↗ | Moderate |
| 2025-03 | psilocybin macro-doses every 7-10 daysan actual psychoactive dose every week to ten days gives me back at least 50% cognitive functionIn context ↗ | Moderate |
| 2025-09 | crashed after trying cardio on a stationary bikelast time I tried to do any cardio (stationary bike) it threw me into a crash that took over a week to climb out ofIn context ↗ | Moderate |
| 2026-09 | stable at about 50% recovered, not workingI'm about 50% recovered from my baseline once I recovered from how hard I pushed to keep working.In context ↗ | Moderate |
Adverse events
- “Now I have a permanently tingly and weaker pinky and ring finger on one hand that goes to sleep super fast if I lean on it wrong.” In context ↗ Nerve pain
- Graded rehab and self-made programmes“They spent some money trying to rehabilitate me, which made limited gains until a crash wiped them out.” In context ↗ Made symptoms worse
- “I'm allergic to the vape pen/cartridges. The propylene glycol makes me quite ill.” In context ↗ Allergic reaction / anaphylaxis
- Methylphenidate (Ritalin, Concerta)“the amphetamines work better for the ADHD, but they're also harder on my LC, so I have to be careful.” In context ↗ Made symptoms worse
- Psilocybin (magic mushrooms)“It just sucks having to lose a day because I'm tripping balls, but its better than the alternative.” In context ↗ Other
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
the flu-like achy feeling post exertion is a dead giveaway
In context ↗ - Brain fog
I've mostly managed to treat my brain fog. It's not cured, but I can keep it at bay
In context ↗ - Breathlessness
getting winded going up the stairs
In context ↗ - Muscle weakness
It also treats other symptoms like fatigue and limb heaviness.
In context ↗ - Heart symptoms & palpitations
Pretty sure my resting heart rate is higher now than my heart rate used to be when I was running before I got sick.
In context ↗ - Hair loss
hair loss is one of my symptoms
In context ↗ - Pain & fibromyalgia
its good for the aches and pains and headaches and stuff
In context ↗ - Headaches & migraine
I've been using psilocybin for migraines for years.
In context ↗ - Neuropathy & tingling
Now I have a permanently tingly and weaker pinky and ring finger on one hand
In context ↗ - Loss of smell or taste
this morning I was able to enjoy salsa for the first time since my tastebuds decided that peppers taste like gasoline
In context ↗ - Mast cell (MCAS) & allergies
I'm allergic to the vape pen/cartridges. The propylene glycol makes me quite ill.
In context ↗ - Gut problems
I can only drink organic coffee without feeling weak and nauseous after.
In context ↗ - Anxiety & low mood
My mental health suffers when I can't run.
In context ↗
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