ME/CFS with pain, fatigue and depression, now somewhat better with tapping and ubiquinol
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Feb 2024
In their words
- At worst: Moderate
I had to leave my job and now I’m on disability. ... Usually I would take a long nap and still sleep from 7pm-7am.
- Now: Somewhat better
I have some other things that I am currently trying that have made quite an improvement as well.
In context ↗ - Began after: stress or burnout
I swear that’s what finally did me in.
Read from 21 of their posts and comments; links to the 12 this page draws on
Summary
A Reddit user with fatigue and anxiety, and severe depression and anhedonia for at least three years, described pain and long naps and had left work for disability. Tapping (EFT) gave a quick shift in pain, fatigue, depression and anxiety, and ubiquinol with red light and vibration therapy was called the only thing that ever helped. Antibiotics for a pelvic infection restored near-normal function, but symptoms returned; oregano oil caused die-off.
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What they tried
What they credit
Also tried
Their words about each treatment
- CBD · No change
CBD didn’t help me at all.
In context ↗ - THC · Helped
THC works but causes me to immediately fall asleep so I tend to only use it as a last resort.
In context ↗ - light exercise · Not said
I’m trying my best to engage in some type of light exercise as my body will allow.
In context ↗ - shake away depression video · Helped
I also started exercising to a video called shake away depression, which seems to help.
In context ↗ - tapping (EFT) · Helped
I have started tapping this last week. I feel a shift already, in my pain, fatigue, depression and anxiety.
In context ↗ - heat and sweating · Helped
Heat and sweating always helps me! I believe it!!
In context ↗ - antibiotics · Helped a lot
Last week I was on antibiotics for a pelvic infection, and I felt almost back to normal.
In context ↗ - oregano oil · Helped
oregano oil and intermittent fasting…all of these seem to be helping a great deal.
In context ↗ - modafinil · No change
I’m on modafinil and it honestly didn’t help.
In context ↗ - ubiquinol · Helped a lot
what I found super helpful was Ubiquinol, it’s the activated form of COQ10.
In context ↗ - red light therapy · Helped a lot
But ubiquinol combined with Red Light and vibration therapy certainly did!
In context ↗ - intermittent fasting · Helped
intermittent fasting, oregano oil and intermittent fasting…all of these seem to be helping a great deal.
In context ↗ - tanning · Helped
straight up, tanning seems to help
In context ↗ - prayer · Not said
And I pray everyday, I get down on my knees and give everything to the Lord
In context ↗ - meds · No change
So far no meds that have put me on have helped.
In context ↗
Approaches: Alternative therapies · Antibiotics · Diet · Supplements · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | fell into constant fatigue after a traumatic relationship and never climbed outI finally fell into the hole of fatigue and never really climbed out.In context ↗ | Moderate | |
| November 2023 | severe depression and anhedonia, left work onto disability, long daily napsI had to leave my job and now I’m on disability.In context ↗ | Moderate | |
| 2023-11-22 | started tapping; got a haircut, carried groceries, stopped needing napsI feel a shift already, in my pain, fatigue, depression and anxiety.In context ↗ | Mild | Trauma work (EFT, EMDR, TRE) |
| 2024-01-03 | felt almost back to normal while on antibiotics for a pelvic infectionLast week I was on antibiotics for a pelvic infection, and I felt almost back to normal.In context ↗ | Near normal | Antibiotics (unspecified) |
| 2024-01-10 | ubiquinol with red light and vibration therapy helpedBut ubiquinol combined with Red Light and vibration therapy certainly did!In context ↗ | Mild | CoQ10 / ubiquinol |
| 2024-02-04 | still helped by ubiquinol and red light; symptoms return after each antibiotic courseevery time I am out on antibiotics I feel better. But after treatment all my symptoms quickly return.In context ↗ | Mild |
Adverse events
- Cannabis (THC, marijuana)“THC works but causes me to immediately fall asleep so I tend to only use it as a last resort. Some strains also make me quite anxious as well and I already have bad anxiety” In context ↗ Mood or psychiatric effects
- Oregano oil“When I took the oregano oil drops, dilluted of course, it was way too strong and caused horrible die off effects.” In context ↗ Herx / die-off reaction
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Usually I would take a long nap and still sleep from 7pm-7am.
In context ↗ - Pain & fibromyalgia
I feel a shift already, in my pain, fatigue, depression and anxiety.
In context ↗ - Gut problems
very, very sluggish digestion and severe constipation at times
In context ↗
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