Long COVID
Moderate → much betterIll 6 months before improving or writingNeeds ongoing treatment
Long COVID with chest pain and gut problems, now much better with diet and pacing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Oct 2025
In their words
- Condition: Long COVID
My first bout of LC started in November 2021
In context ↗ - At worst: Moderate
I feel as if I’ve aged 10-15 years. ... Right now I’m having horrible nerve pain in my legs, fatigue, crashes
- Now: Much better
I’m doing much better. ... I’m not 100 percent, andI doubt I ever will be ... I’m functional now
In context ↗ - Began after: COVID
I got LC after my second infection, and another LC flare after my 3rd infection.
Read from 27 of their posts and comments; links to the 21 this page draws on
Summary
Marsh 25393, 45, got long COVID in November 2021 after a second infection, with chest pain, palpitations, nerve pain, hair loss and gut problems. She improved after six months, then relapsed repeatedly after later COVID infections and viruses, including her worst flare after a family Christmas. An anti-inflammatory diet, supplements, probiotics and pacing helped; by October 2025 she was functional but still pacing and resting.
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What they tried
What they credit
garden of life probiotic· Helped a lot · mainmulti vitamin· Helpedb12 or b complex· Helpedb12 or b complex· Helpedd3· Helpedantihistamines· Helpedanti inflammatory/potassium rich diet· Helped · mainantibiotic· Helpedplain Greek yogurt with honey· Helpedlight exercises with hand weights· Helpedelectrolytes· Helpedzinc· Helpedvitamin C· Helpedmagnesium· Helpedpacing· Helped
Also tried
vestibular neuritis exercises· Helped a lotCBG· Helped a lotCBT· Helpedthe ordinary peptide serum· HelpedKitsch rice water protein shampoo· Helpednutrition shakes and increased protein· Helpedmulti vitamin with iron· Helpedsteroids· Worseminoxidil· Worseotc meds for my heartburn· Not saidsleepy time tea with spearmint· Not saidsmart watch· Not saidcollagen powder· Not saidNitrozol shampoo· Not saidprebiotic· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- multi vitamin · Helped
What helped me is a good multi vitamin, b12 or b complex, d3, and antihistamines.
In context ↗ - b12 or b complex · Helped
I’ve had to take supplemental B12 and D3 to get my levels up
In context ↗ - d3 · Helped
What worked for me was taking extra vitamin D3
In context ↗ - anti inflammatory/potassium rich diet · Helped
I’ve been on the anti inflammatory diet for weeks, and started doing light exercises for the heavy/fatigued arms and legs and it has helped tremendously.
In context ↗ - CBT · Helped
I did CBT for a while, and I found it helpful.
In context ↗ - steroids · Worse
I can’t tolerate steroids at all, either.
In context ↗ - vestibular neuritis exercises · Helped a lot
My ent gave me some exercises you can do for vestibular neuritis and they helped tremendously.
In context ↗ - antibiotic · Helped
Finally got an antibiotic for it, and doing much better now.
In context ↗ - plain Greek yogurt with honey · Helped
Plain Greek yogurt with honey gave me a lot of relief
In context ↗ - otc meds for my heartburn · Not said
I just had a restrictive diet for a while, and took otc meds for my heartburn.
In context ↗ - CBG · Helped a lot
I recently started taking CBG and it has been a life saver for me for my depression and anxiety.
In context ↗ - electrolytes · Helped
What helped me was an anti inflammatory/potassium rich diet (refrain from sugar if you can), electrolytes and increase vitamin intake
In context ↗ - zinc · Helped
increase vitamin intake ( vitamin d, zinc, C, b vitamins and magnesium)
In context ↗ - magnesium · Helped
adding a magnesium and D3 supplement to my multivitamin help with the POTS symptoms
In context ↗ - sleepy time tea with spearmint · Not said
I drink a sleepy time tea that has spearmint and I tolerate that well.
In context ↗ - smart watch · Not said
I was using a smart watch for a while, but I had to put that away.
In context ↗ - minoxidil · Worse
I went to a dermatologist who prescribed minoxidil, but I couldn’t take it because of cardiac symptoms.
In context ↗ - garden of life probiotic · Helped a lot
I found the probiotic to be a game changer.
In context ↗ - collagen powder · Not said
I also take collagen powder and probiotic and prebiotic
In context ↗ - the ordinary peptide serum · Helped
the ordinary peptide serum for regrowth
In context ↗ - Kitsch rice water protein shampoo · Helped
I started using Kitsch rice water protein shampoo for regrowth
In context ↗ - nutrition shakes and increased protein · Helped
I added nutrition shakes, more protein and vitamin fortified foods for a while
In context ↗ - multi vitamin with iron · Helped
in addition to a multi vitamin with iron I also supplemented with an additional vitamin D supplement
In context ↗ - Nitrozol shampoo · Not said
I alternate between Kitsch rice water protein shampoo and Nitrozol shampoo
In context ↗ - pacing · Helped
I’m forever pacing, watching what I eat, and taking supplements and probiotics.
In context ↗ - COVID vaccination as treatment · Not said
The vaccine caused me to experience neurological symptoms so I didn’t get the 2nd vaccine ... I had myoclonic jerks after the vaccine in Aug 2021
Approaches: H1 antihistamines · POTS medication · Antibiotics · Diet · Exercise and activity · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| November 2021 | long COVID began after a second COVID infectionMy first bout of LC started in November 2021In context ↗ | Not stated | |
| about six months later, 2022 | first bout improved, with lingering issuesstarted improving after 6 months with some lingering issuesIn context ↗ | Mild | |
| December 2022 | worst LC flare after a family Christmas where everyone was illOur family ended up getting COVID, flu and some other illness all at once ... leading to my worst LC flareIn context ↗ | Moderate | |
| February 2023 | relapse after COVID reinfection in JanuaryThen I got reinfected in January and I had a LC relapse in February.In context ↗ | Moderate | |
| March 2023 | anti-inflammatory diet and light exercise helpedI’ve been on the anti inflammatory diet for weeks, and started doing light exercises for the heavy/fatigued arms and legs and it has helped tremendously.In context ↗ | Mild | Anti-inflammatory diet |
| August 2023 | relapse after third COVID infectionI recovered from LC after my second infection, but then after my third I relapsed and I feel as if I’ve aged 10-15 years.In context ↗ | Moderate | |
| December 2023 | flare after a virus and bacterial bronchitisI was recently sick with some horrible virus that led to me getting bacterial bronchitis, and now I’m having another flare.In context ↗ | Moderate | |
| May 2025 | another LC relapseCurrently having another LC relapse, but my hair is holding steady.In context ↗ | Mild | |
| August 2025 | confirmed COVID with brain fog, fatigue and nerve painThen in August I had a confirmed case of Covid.In context ↗ | Moderate | |
| October 2025 | functional but not fully recovered; pacing, diet and supplementsThere are a lot of days where I have to take a nap or a rest to get through the day, but I’m functional now so I’m thankful for that.In context ↗ | Mild |
Adverse events
- Corticosteroid pulses“I can’t tolerate steroids at all, either.” In context ↗ Side effects
- Antibiotics (unspecified)“I took the antibiotic in October, but it caused damage to my esophagus so I’ve had bouts of heartburn since then” In context ↗ Gut side effects
- COVID vaccination as treatment“The vaccine caused me to experience neurological symptoms so I didn’t get the 2nd vaccine ... I had myoclonic jerks after the vaccine in Aug 2021” Side effects
- “I went to a dermatologist who prescribed minoxidil, but I couldn’t take it because of cardiac symptoms.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgia
Their words about their symptoms
- Brain fog
I had derealization, some brain fog, fatigue
In context ↗ - POTS & dysautonomia
My bp will still get low sometimes, but not as low as it used to.
In context ↗ - Heart symptoms & palpitations
I’m doing much better now, bit still have palpitations from time to time.
In context ↗ - Gut problems
My husband and I have both had horrible digestive issues since COVID.
In context ↗ - Hair loss
I’ve lost close to 2/3 off my hair since February after my last infection.
In context ↗ - Neuropathy & tingling
a resurgence of muscle twitching, spasms, nerve pain, headaches, and facial and neck pain
In context ↗ - Headaches & migraine
I’ll still get occasional flare ups of headaches and burning skin.
In context ↗ - Muscle weakness
started doing light exercises for the heavy/fatigued arms and legs
In context ↗ - Anxiety & low mood
I have depression and anxiety and there are so many medications that send me down the rabbit hole.
In context ↗ - Pain & fibromyalgia
The fatigue and body aches were bad.
In context ↗ - Mast cell (MCAS) & allergies
Fall and spring allergy season also set me off like clockwork.
In context ↗
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