Long COVID
Moderate → near normalIll 6 months before improving or writing
Long COVID that kept them out of work; amitriptyline and montelukast helped, almost normal
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Jan 2023
In their words
- Condition: Long COVID
I have been a lh since Nov. 2020
In context ↗ - At worst: Moderate
I was pretty useless until April, even then I was working maybe 15-20 hours a week.
In context ↗ - Now: Near normal
Most of my long hauling symptoms have subsided. The only two that linger are brain fog/memory problems and the migrines. ... Now I work a physically demanding job
In context ↗ - Began after: COVID
I got sick Nov 2020
Read from 15 of their posts and comments; links to the 14 this page draws on
Summary
Fell ill with COVID in November 2020, was so sick they went to the ER twice and were out of work until April 2021, then worked 15-20 hours a week. Migraines that worsened in 2021 improved on nightly amitriptyline; montelukast in late 2022 eased breathing. A 2022 reinfection put them down for under a week. By January 2023 most symptoms had subsided, but brain fog, migraines and lungs lingered; they worked a physically demanding job.
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What they tried
Also tried
Their words about each treatment
- antibiotics · Not said
I was on antibiotics that also was an anti-inflammatory.
In context ↗ - abuterol · Not said
I also got put on two inhalers, but quickly got taken off one for a bad reaction, still am using the abuterol though.
In context ↗ - inhaler to open lungs / address inflammation · Worse
I developed thrush after using it so I got pulled off. ... I didn't feel like it was making a huge difference so my dr just left it alone at that point.
In context ↗ - Rizatriptan · Not said
prescribed me with Rizatriptan to take the edge off when they got bad
In context ↗ - Amitriptyline · Helped
It wasn't until I got put on Amitriptyline which is a nightly pill that I actually felt more okay ... I still get them, but it's less frequent and mostly less severe when they occur.
- small hikes / building lungs back up · Helped
I have switched gears to attempt to build them back up, by going for hikes that a child can do. But it's progress
In context ↗ - anxiety meds · Helped
I got on anxiety meds after covid because my anxiety went through the roof. ... I asked mine about it, she upped the dose a bit and I leveled off.
In context ↗ - Singulair / montelukast · Helped
When I first started it I realized that it was the easiest breathing I had in 2 years. ... Now I can exert myself more without feeling like I am lacking air.
In context ↗ - COVID vaccination as treatment · Not said
The first shot my arm was sore, I got a few headaches and my stomach got screwy the first day.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| November 2020 | COVID-19; very sick, ER visits, out of workFirst time I got covid was back when it began. I was so sick I landed in the ER a couple of times.In context ↗ | |
| late December 2020 | COVID-related pneumoniaThe pneumonia was a month later(late December).In context ↗ | |
| April 2021 | able to work part-time againI was pretty useless until April, even then I was working maybe 15-20 hours a week.In context ↗ | |
| 2021 | migraines got much worseI'm two years post covid and last year they got real bad so I got put on my med to try and help.In context ↗ | |
| 2021 | headaches became manageableIt wasn't until I got put on Amitriptyline which is a nightly pill that I actually felt more okay and that the headaches were manageable.In context ↗ | |
| April 2022 | most of body feeling better, lungs still badnow that the rest of me is feeling mostly better aside from rogue headaches, I have switched gears to attempt to build them back up, by going for hikes that a child can do.In context ↗ | |
| August 2022 | COVID reinfectionI had horrible body aches, mega fatigue and brain fog. The migrines didn't resurface until after.In context ↗ | |
| December 2022 | breathing much easierI feel like I can breathe better than I could in 2 years.In context ↗ | Montelukast / Singulair |
| January 2023 | working a physically demanding job, some symptoms lingerNow I work a physically demanding job and see the major accomplishments I have overcome.In context ↗ |
Adverse events
- COVID vaccination as treatment“The first shot my arm was sore, I got a few headaches and my stomach got screwy the first day.” In context ↗ Side effects
- “I also got put on two inhalers, but quickly got taken off one for a bad reaction ... I developed thrush after using it so I got pulled off.” Side effects
- Amitriptyline (Elavil), Antidepressants (unspecified)“When I first got on it I had a few days where I was a complete mess.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHeadaches & migraineLight & noise sensitivityLoss of smell or tastePain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
sometimes I feel like I overdue it and then need to crash
In context ↗ - Brain fog
The only two that linger are brain fog/memory problems and the migrines.
In context ↗ - Headaches & migraine
I still get them, but it's less frequent and mostly less severe when they occur.
In context ↗ - Breathlessness
I still hate my lungs they haven't gotten 100% better.
In context ↗ - Loss of smell or taste
For a while everything smelt like bad onions to me.
In context ↗ - Anxiety & low mood
I got on anxiety meds after covid because my anxiety went through the roof.
In context ↗ - Light & noise sensitivity
Light sensitivity is the worst.
In context ↗ - Pain & fibromyalgia
I had horrible body aches, mega fatigue and brain fog.
In context ↗