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Long COVID Mild → near normalIll 1 year before improving or writingNeeds ongoing treatment

Long COVID crashes from going downstairs, now nearly back to normal after diet and rest

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
1 year
Last post
May 2026
In their words
  • Condition: Long COVIDSo basically long haul since initial infection. In context ↗
  • At worst: MildI did make it to work but those crashes are very real. In context ↗
  • Now: Near normalBeen at 95% for two years now and have accepted that is my new normal. Thankfully most days it feels like 100% but every so often there's something to remind me my body went through some serious shit. In context ↗
  • Began after: COVIDSo basically long haul since initial infection. In context ↗
Read from 15 of their posts and comments; links to the 13 this page draws on

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Summary

A 28-year-old woman developed long COVID in December 2022 with low fever, brain fog, back pain, tinnitus, sensory overload and anxiety; her worst days left her unable to go downstairs to do laundry without crashing, though she kept her desk job. A low-histamine diet, rest, vitamins, a probiotic, quercetin and omega-3s helped her improve to 90-95% over a year; she later said she had got past it, still hiking miles. THC caused severe anxiety.

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What they tried

Their words about each treatment
  • Antibiotics · No changeAntibiotics also didn't do anything for me. In context ↗
  • rest · HelpedLots of rest, vitamins/probiotic, and a low histamine diet were the biggest help. In context ↗
  • low histamine diet · HelpedI have since begun a food journal and low histamine diet. In context ↗
  • vitamin C · WorseI was taking vitamin C but stopped due to mixed emotions. In context ↗
  • vitamin D · HelpedI also take vitamin D, zinc, and magnesium. In context ↗
  • probiotic · HelpedThe Shaklee has remained a slow but steady consistent. In context ↗
  • quercetin · HelpedI just started the supplement quercetin after reading others positive results with taking it. In context ↗
  • antihistamines · Helpedonce I started quercetin and antihistamines all my symptoms slowly started to get better In context ↗
  • Omega 3s · HelpedId say Quercetin and Omega 3s were the most helpful In context ↗
  • THC · WorseTHC made things worse for me. In context ↗

Approaches: H1 antihistamines · Diet · Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
December 2022long COVID after infection; brief false improvement in week 2December 2022. Had maybe a few days in week 2 where I thought I was getting better but then was hit with more symptoms. In context ↗Mild
February 2023crashed after shoveling snowHad an incident a few weeks back after shoveling some snow. It was difficult to breathe and was very exhausted In context ↗Mild
early 2023worst days; too weak to do laundry downstairs without crashingIn my worst days I couldn't even go downstairs to do laundry without crashing. In context ↗Mild
July 2023clearly better but still rough days7 months. Definitely better but still have rough days. In context ↗MildLow-histamine diet
August 2023about 80% betterI'd say about 80% better at this time. In context ↗MildLow-histamine diet
about a year inback to about 90% normal after a gradual year of healingTook about a year for me to get back to about 90%. In context ↗Near normalLow-histamine diet
January 2025plateaued at 90-95%Just came up on two years since infection and would say I've plateaued at 90-95%. In context ↗Near normal
May 2026says she has got past long COVID, still taking vitamins and pacing herselfThankfully I have been blessed to get past my bout of long covid. In context ↗Near normal

Adverse events

  • Cannabis (THC, marijuana)“THC made things worse for me. I stopped for about 4 months completely because of the severe anxiety it caused.” In context ↗ Mood or psychiatric effects
  • Vitamin C“I was taking vitamin C but stopped due to mixed emotions. Some swear it helped them but for me it almost felt it was causing auto immune issues.” In context ↗ Autoimmune or inflammatory flare
  • Probiotics and fermented foods“Thorne women's probiotic was causing severe breakouts. Did not use long enough to see if it was a purge or what.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Temperature regulationhave/had a persistent low fever, hot flushes In context ↗
  • Brain fogNo respiratory issues but have/had a persistent low fever, hot flushes, brain fog In context ↗
  • Headaches & migrainebrain fog, head pressure, severe back pain, tinnitus In context ↗
  • Pain & fibromyalgiahead pressure, severe back pain, tinnitus In context ↗
  • Tinnitussevere back pain, tinnitus, overstimulation of light and sound at times In context ↗
  • Light & noise sensitivityoverstimulation of light and sound at times In context ↗
  • Anxiety & low moodand increased anxiety. Basically my nervous system got hit hard. In context ↗
  • Mast cell (MCAS) & allergiesI already believed I was dealing with MCAS but this continues to confirm. In context ↗
  • Post-exertional malaiseI did make it to work but those crashes are very real. In context ↗
  • BreathlessnessIt was difficult to breathe and was very exhausted In context ↗
  • Heart symptoms & palpitationsMy resting heart rate was fast and I was so weak. In context ↗

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