Long COVID
Moderate → relapsedNeeds ongoing treatment
Long COVID since 2020, limited gains from pacing and HBOT, then crashed again
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2026
In their words
- At worst: Moderate
Since January I have done nothing but light stretching before and after bed and a small walk once a week.
In context ↗ - Now: Relapsed
Had been improving over time but just had a horrible crash now and got horrible gut issues that wake me up at night, disassociation and neurological spasms have come back in the temporal part of my head left side.
In context ↗ - Began after: a vaccination
It started a week after my first vaccine where I got Myocarditis chest pain after a strenuous bike ride.
Read from 127 of their posts and comments; links to the 51 this page draws on
- Apr 2024
- Sep 2026
- Feb 2025
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Summary
A UK man in his early 40s has had long COVID since 2020, beginning with chest pain a week after his first vaccine and a long bike ride. Advised to push on, he walked three miles a day and climbed 22 mountains, then declined after antibiotics and infections. Pacing, supplements, HBOT and a meat-heavy low-carb diet brought only limited gains; in 2026 he crashed again, cannot work and has spent his savings.
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What they tried
What they credit
Also tried
Naproxen· HelpedDiclofenac gel· HelpedNiacin (B3)· HelpedMelatonin· HelpedElectrolyte powders· HelpedDuloxetine· Helped · wore offTea tree oil· HelpedProbiotics after a bowel flush· HelpedFasting with food reintroduction· Helped · wore offAloe Vera cooling gel· HelpedAlternate nostril breathing· HelpedHBOT· HelpedCod Liver Oil· HelpedPeppermint oil tablets· HelpedEucalyptus lozenges· HelpedGarlic essential oil· HelpedGarlic essential oil· HelpedFludrocortisone· No changeSSRIs· No changeAjovy· No changeSupplements· No changeNAC and glutathione· No changeRest and light stretching· No changeIvermectin· No changeLidocaine patches· No changeIbuprofen· WorseTurmeric· WorseStatin· WorseNortryptyline· WorseCiprofloxacin (Cipro)· WorseMassage guns and handheld massagers (Theragun)· WorseAntibiotics· Much worseDaily walks, mountains, swimming, gym· Much worseIron· Not saidLDN· Not saidAntihistamines· Not saidYoga· Not saidCBOT· Not saidMassage· Not saidPacing· Not saidOmeprazole· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- Antibiotics · Much worse
after being on 3 courses of antibiotics while having LC my advice is do not. They almost killed me.
In context ↗ - Daily walks, mountains, swimming, gym · Much worse
I climbed 22 mountains in 6 months as I was advised by Docs to push and move on with my life. Messed me up big time.
In context ↗ - Naproxen · Helped
The only NSAID I got relief with was Naproxen
In context ↗ - Diclofenac gel · Helped
Naproxen and Diclofenac gel helps me but does not get rid of pain completely.
In context ↗ - Ibuprofen · Worse
This was happening to me on Turmeric and Ibuprofen
In context ↗ - Turmeric · Worse
Could also be supplements. I was bruising when taking too much turmeric and or ibuprofen.
In context ↗ - Statin · Worse
They put me on a statin as I had high cholestrol but that ended up lowering my BP too much.
In context ↗ - Fludrocortisone · No change
Even fludrocortisone isnt helping and I am dizzy and absolutely exhausted due to the chronic low blood pressure.
In context ↗ - Iron · Not said
Iron Ferritin B12 and Folate are all supplemented and good from last test.
In context ↗ - Vitamin B · Helped
Vitamin B helps with building Haemoglobin and healthy blood.
In context ↗ - Magnesium · Helped
Magnesium, Natto and Vitamin B are probably my most effective.
In context ↗ - Nattokinase · Helped
Natto Kinase breaks up fibrinogen or collagen that scarred blood vessels from inflammation can cause and therefore improves circulation.
In context ↗ - Niacin (B3) · Helped
absolutely drained and got relief from niacin
In context ↗ - Melatonin · Helped
I get to sleep with melatonin and get 3 hours before my body jerks me awake again with headaches and gurgling in my head.
In context ↗ - Electrolyte powders · Helped
I have started taking electrolyte powders before bed and havent had any moments like that since.
In context ↗ - SSRIs · No change
I have tried every SSRI for a long time each one. They did not help me.
In context ↗ - Duloxetine · Helped
Worked ok for a few months but then started getting horrible headaches.
In context ↗ - Nortryptyline · Worse
Doc wanted to do it with Nortryptyline. A few months later I was back with blood in my sinuses and gastro issues.
In context ↗ - Tea tree oil · Helped
Inhaling tea tree oil helps clear me out.
In context ↗ - Probiotics after a bowel flush · Helped
I was grateful for that as it stabilised my bowel and intestinal issues inside 2 weeks.
In context ↗ - Fasting with food reintroduction · Helped
While I thought it did work for a few days, it didnt really help my muscle aches etc. and a week later my old symptoms just returned.
In context ↗ - Aloe Vera cooling gel · Helped
Not a moisturiser but Aloe Vera cooling gel has been helping me and calms my skin down.
In context ↗ - Alternate nostril breathing · Helped
The only thing I did do was some alternate nostril breathing. Max exhalation until nothing left in lungs while lying flat.
In context ↗ - HBOT · Helped
I have recently tried HBOT sessions and starting to notice a difference after my 4th session
In context ↗ - Ajovy · No change
No. Made no noticeable difference. Came off after 3 months
In context ↗ - Cod Liver Oil · Helped
I get this if I miss my does of Magnesium and Cod Liver Oil. By midmorning Ill have arthiritis like pains.
In context ↗ - LDN · Not said
Done it all. Supplements, Rest, LDN, Anti histamines, CBOT, massage, yoga. Getting worse.
In context ↗ - Antihistamines · Not said
I have been tested for mast cell disorder and take antihistamines
In context ↗ - Supplements · No change
I have tried every supplement listed here and elsewhere but they are not helping.
In context ↗ - Peppermint oil tablets · Helped
I got prescribed peppermint Oil tablets from my GP and its helping.
In context ↗ - Eucalyptus lozenges · Helped
I learnt to sleep better by sucking on eucalyptus lozenges at night.
In context ↗ - Garlic essential oil · Helped
A garlic essential oil got me my smell and taste back
In context ↗ - NAC and glutathione · No change
Did nothing physically speaking but i like taking them as they have evidence chemically they help you and i get no side effects.
In context ↗ - Pacing · Not said
Under a chronic fatigue clinic but my symptoms are perplexing that they dont really know what to do with me there and just help with pacing.
In context ↗ - Rest and light stretching · No change
Since January I have done nothing but light stretching before and after bed and a small walk once a week.
In context ↗ - Ivermectin · No change
Tried it. Did fuck all.
In context ↗ - Lidocaine patches · No change
Tried Lidocaine patches for months. Did not help longterm.
In context ↗ - Omeprazole · Not said
It could also be caused by acid reflux even with omeprazole as when I fast I do feel better.
In context ↗ - Meat-heavy low-carb diet · Helped
I have felt better since eating meat with every meal eggs steak slices chicken even for breakfast and cutting carbs like breads and pasta.
In context ↗ - Ciprofloxacin (Cipro) · Worse
I took Ciprofluoxin for a stomach bug and my stomach and neuro issues escalated when I came off them.
In context ↗ - Massage guns and handheld massagers (Theragun) · Worse
I got a massage gun and pressed where it hurt, only for it to then move to the opposite side of my back where the rib joins the spine.
In context ↗ - COVID vaccination as treatment · Not said
Ever since I have slowly become disabled. I have internal tremors, rashes, muscle and joint pain and I have been medically certified as being vaccine injured.
In context ↗
Approaches: Anticoagulants · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 years after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023 | pushed through with mountain climbing on doctors' adviceI climbed 22 mountains in 6 months as I was advised by Docs to push and move on with my life. Messed me up big time.In context ↗ | Mild | |
| December 2023 | crashed after a sinus infection and antibioticsI was stable for the past year but got a sinus infection just before Christmas. I took antibiotics and feel it pushed my immune system back.In context ↗ | Moderate | |
| February 2024 | too exhausted to do his daily walk, felt he was dyingIm too exhausted to do this walk now. ... I feel I am dying at this point in my Long Covid journey.In context ↗ | Moderate | |
| June 2024 | noticed a difference after the 4th hyperbaric sessionI have recently tried HBOT sessions and starting to notice a difference after my 4th sessionIn context ↗ | Moderate | Hyperbaric oxygen (HBOT) |
| November 2024 | getting worse despite trying everythingDone it all. Supplements, Rest, LDN, Anti histamines, CBOT, massage, yoga. Getting worse.In context ↗ | Moderate | |
| December 2024 | crashed after a spin classyesterday I stupidly tried to do a spin class, had chest pains in the class and here I am today absolutely PEM'dIn context ↗ | Moderate | |
| November 2025 | crashed after swimming on a good spellBeen doing well last few weeks. Even went swimming saturday. Yesterday evening had bleeding gums and sinuses and internal vibrations. Back to square one.In context ↗ | Moderate | |
| January 2026 | more energy after eating meat with every meal and cutting carbsI have felt better since eating meat with every meal eggs steak slices chicken even for breakfast and cutting carbs like breads and pasta.In context ↗ | Moderate | Keto and low-carb diets |
| September 2026 | horrible crash with gut issues and neurological spasmsHad been improving over time but just had a horrible crash nowIn context ↗ | Moderate | |
| October 2026 | slowly able to play easy video games againYes slowly returning to them. Games with easy repetition but anything fast like FPS or fast scrolling no chance.In context ↗ | Moderate |
Adverse events
- Antibiotics (unspecified)“I took antibiotics and feel it pushed my immune system back. I have to sleep sat up in bed with a hat on as the pressure in my head is so painful.” In context ↗ Made symptoms worse
- “I was on them for 6 months and I think they have done more damage than helped. ... had to stop as my blood pressure tanked too much and i had dysautonomia.” Low blood pressure or fainting
- Duloxetine (Cymbalta)“Worked ok for a few months but then started getting horrible headaches. ... Duloxetine messed me up and started my headaches.” Side effects
- Ciprofloxacin (Cipro)“I took Ciprofluoxin for a stomach bug and my stomach and neuro issues escalated when I came off them.” In context ↗ Made symptoms worse
- Turmeric / curcumin, Ibuprofen (Advil, Nurofen, Motrin)“I was bruising when taking too much turmeric and or ibuprofen.” In context ↗ Side effects
- Massage guns and handheld massagers (Theragun)“I got a massage gun and pressed where it hurt, only for it to then move to the opposite side of my back where the rib joins the spine.” In context ↗ Made symptoms worse
- Antibiotics (unspecified)“Had antibiotics in December and they wiped my gut biome out and I got horrible gastro issues and candida.” In context ↗ Gut side effects
- Antibiotics (unspecified)“the antibiotics knocked my immune system out that was already tanking long covid and gave me terrible neuro and gastro issues. Made my symptoms so much worse.” In context ↗ Made symptoms worse
- Nortriptyline (Pamelor)“Had this same experience but Doc wanted to do it with Nortryptyline. A few months later I was back with blood in my sinuses and gastro issues.” In context ↗ Side effects
- Everyday exercise and activity“I climbed 22 mountains in 6 months as I was advised by Docs to push and move on with my life. Messed me up big time.” In context ↗ Made symptoms worse
- Everyday exercise and activity“When walking I got dizzy so bad I had to rest on benches but the whole ordeal and set backs mean I do not want to try to swim or do walks anymore.” In context ↗ Made symptoms worse
- Antibiotics (unspecified)“Twice I had antibiotics and twice my conditioned worsened.” In context ↗ Made symptoms worse
- Ciprofloxacin (Cipro)“Cipro fucked up my ligaments and connective tissue. Stay clear.” In context ↗ Side effects
- Statins (unspecified)“They put me on a statin as I had high cholestrol but that ended up lowering my BP too much.” In context ↗ Low blood pressure or fainting
- Antibiotics (unspecified)“They almost killed me. They wipe your biome out which adds to stomach and GI issues and also alter your skin which can cause lesions.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Ever since I have slowly become disabled. I have internal tremors, rashes, muscle and joint pain and I have been medically certified as being vaccine injured.” In context ↗ Other
Symptoms mentioned
Anxiety & low moodBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
here I am today absolutely PEM'd
In context ↗ - POTS & dysautonomia
This is all part of dysautonomia
In context ↗ - Mast cell (MCAS) & allergies
I have been identifying which foods flare my MCAS
In context ↗ - Sleep problems
I sleep from 9pm until 2am then awake all night.
In context ↗ - Pain & fibromyalgia
I have internal tremors, rashes, muscle and joint pain
In context ↗ - Headaches & migraine
I have to sleep sat up in bed with a hat on as the pressure in my head is so painful.
In context ↗ - Gut problems
horrible gut issues that wake me up at night
In context ↗ - Breathlessness
My first symptom was pain when exhaling, now im up to internal vibrations and skin and fungal infections but my breathing is ok now.
In context ↗ - Heart symptoms & palpitations
I have had muscle spasms, nerve pain, chest and breast pain
In context ↗ - Muscle weakness
horrible muscle spasms with visible wasting with clicking joints
In context ↗ - Neuropathy & tingling
terrible neuropathy and bad circulation
In context ↗ - Anxiety & low mood
the anxiety that my body is no longer under my control is horrible
In context ↗ - Flu-like symptoms
I still have ongoing malaise
In context ↗ - Loss of smell or taste
My sense of taste has gone
In context ↗ - Temperature regulation
my blood pressure is so low it makes me cold
In context ↗
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