Long COVID that made stairs exhausting, improved then relapsed after stopping LDN
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
Afterwards, I got reinfected with COVID 3 more times which ended up in long haul covid.
In context ↗ - At worst: Moderate
I couldn't even walk down my stairs one time without being exhausted.
In context ↗ - Now: Relapsed
I was feeling better but quit the LDN. ... I noted I started to decline again after being off LDN for a couple of months.
In context ↗ - Began after: COVID
Afterwards, I got reinfected with COVID 3 more times which ended up in long haul covid.
In context ↗
Read from 10 of their posts and comments; links to the 9 this page draws on
Summary
Dew 41661 got COVID twice, then persistent Lyme disease from March to July 2023, before three COVID reinfections left them with long COVID. They were exhausted by walking down the stairs once. Low-dose naltrexone, antihistamines and therapy slowly improved things; they declined after quitting LDN and later restarted, still having near-daily migraines, nerve pain and PEM crashes after exercise.
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What they tried
What they credit
Also tried
Their words about each treatment
- low dose naltrexone · Helped a lot
it has tremendously increased my quality of life. I was really struggling before. I couldn't even walk down my stairs one time without being exhausted.
In context ↗ - antihistamines like allergy medications and hydroxyzine · Helped
I've also started taking antihistamines like allergy medications, famotidine, and hydroxyzine and it has helped a lot.
In context ↗ - famotidine · Helped
I also take famotidine. It's over the counter. That helps with the nausea I randomly get.
In context ↗ - antibiotics · Helped
I was on multiple rounds of antibiotics before it went away.
In context ↗ - other supplements · Helped
it does seem to be slowly getting better thanks to low dose naltrexone, other supplements, antihistamines, physical therapy, and regular therapy.
In context ↗ - physical therapy · Helped
thanks to low dose naltrexone, other supplements, antihistamines, physical therapy, and regular therapy.
In context ↗ - ibuprofen · Worse
I kept taking ibuprofen and ended up with an ulcer.
In context ↗ - massaging my neck · Not said
My neck sometimes gets really stiff and that's when I tend to get shortness of breath as well so I massage my neck out.
In context ↗ - somatic work with my therapist · Helped
I did a lot of somatic work with my therapist who has helped me accept being chronically ill and has also helped me separate out the different feelings in my body.
In context ↗ - vagus nerve stimulation · Not said
I also do vagus nerve stimulation and then try to push through a little to see if my brain will slowly respond differently.
In context ↗ - migraine medications · Helped
Sometimes the migraine medications works others hell no.
In context ↗ - Oura ring · Not said
I have an Oura ring and on the days I have more neuro symptoms even my heart rate trends different than other days.
In context ↗ - workout · Worse
I also have PEM crashes when I workout.
In context ↗
Approaches: CBT & mindset · H1 antihistamines · H2 blockers · Physiotherapy and rehab
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2023 | Long COVID after three COVID reinfections, following a bout of Lyme diseaseAfterwards, I got reinfected with COVID 3 more times which ended up in long haul covid.In context ↗ | |
| — | Really struggling before treatment; too exhausted to walk down the stairs onceI couldn't even walk down my stairs one time without being exhausted.In context ↗ | |
| 2025-05 | Slow recovery on low-dose naltrexone and antihistaminesit has tremendously increased my quality of life. I was really struggling before.In context ↗ | Low-dose naltrexone |
| 2025-12-29 | Declined after quitting LDN; new prescription restartedI noted I started to decline again after being off LDN for a couple of months.In context ↗ | |
| 2026-09-19 | Still slowly recovering; near-daily migraines, nerve pain and PEM crashes when working outThat is the only med that helped me even start to recover.In context ↗ | Low-dose naltrexone |
Adverse events
- Ibuprofen (Advil, Nurofen, Motrin)“I kept taking ibuprofen and ended up with an ulcer.” In context ↗ Gut side effects
- Low-dose naltrexone“I first started taking it at day time but I would have increased fatigue and could barely stay awake.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I also have PEM crashes when I workout.
In context ↗ - Brain fog
I couldn't think at all.
In context ↗ - POTS & dysautonomia
When I have dysautonomia symptoms nothing in the world can get me to deeply breathe.
In context ↗ - Mast cell (MCAS) & allergies
My long haul covid is sort of morphing into MCAS symptoms as of now.
In context ↗ - Headaches & migraine
I have migraines nearly ever f***ing day.
In context ↗ - Neuropathy & tingling
The nerve pain I get keeps me from sleeping.
In context ↗ - Breathlessness
I also get shortness of breath as well which usually transitions into an anxiety attack.
In context ↗ - Anxiety & low mood
I can tell pure anxiety from dysautonomia anxiety.
In context ↗ - Pain & fibromyalgia
My joints hurt sooooo fucking horrible.
In context ↗ - Temperature regulation
I am also super duper sensitive to weather.
In context ↗ - Gut problems
That helps with the nausea I randomly get.
In context ↗
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