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Long COVID Moderate → somewhat betterIll 3 years before improving or writing

Disabled by long COVID, some improvement over three years, crediting a biologic

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3 years
Last post
Aug 2026
In their words
  • Condition: Long COVIDI have long covid plus an auto immune disease which was triggered by Covid. In context ↗
  • At worst: ModerateI can barely keep up with my work and home because of physical limitations as well as severe fatigue. In context ↗
  • Now: Somewhat betterMy brain fog has pretty much disappeared and my memory is better ... I can barely keep up with my work and home because of physical limitations as well as severe fatigue.
  • Began after: COVIDFirst time I had Covid nearly crippled me. In context ↗
Read from 30 of their posts and comments; links to the 23 this page draws on

Request to remove this story

Summary

Badger 13705 was disabled by long COVID after a first infection and was set back by a second infection. They reported improvement over about three years, with brain fog and memory better, and thought they had recovered from long COVID, crediting a biologic for their autoimmune disease. They still had severe fatigue, joint problems and TB from immune suppression.

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What they tried

Their words about each treatment
  • Montelukast · Helpedthe Montelukast has helped a lot with my rhinitis In context ↗
  • Zoloft · HelpedI took Zoloft for years and after I had Covid, it stopped working. In context ↗
  • methylB12 sublingual · HelpedI take methylB12 sublingual. ... It does help a bit. In context ↗
  • taking shorter rests · Not saidRight now I’m just trying to take shorter rests and get stuff done in between. In context ↗
  • Wegovy · HelpedI’m on Wegovy and I’m tired a lot from it. ... On the positive side it lowers my inflammation so I have less pain In context ↗
  • Nasacort · Not saidI use Nasacort and take singulair for asthma and ‘allergies’. In context ↗
  • water pill · HelpedI just started a water pill for my kidneys due to stones. The pain and pressure disappeared. In context ↗
  • steroids · HelpedI was on steroids in August and had a glimpse of what my life could be like without all this. In context ↗
  • biologic · HelpedI’m also on a biologic drug that reduces inflammation which I believe has helped the LC symptoms to improve. In context ↗
  • counseling · No changeI tried counseling but the person wanted to focus on my father’s death when I was 9. In context ↗
  • Trazadone · HelpedI’m prescribed 100 mg but 50 mg is enough for me. ... I take it at bedtime but should really take it an hour before. In context ↗
  • theanine · HelpedIt’s not as effective as Xanax but if you take it as soon as you start feeling a little bit anxious, it works very well, for me anyway. In context ↗
  • Xanax · Not saidIt’s not as effective as Xanax In context ↗
  • Prozac · HelpedWe went back to basics, Prozac, and that worked! In context ↗
  • Wellbutrin · WorseWellbutrin made me anxious as did another one that I cannot remember. In context ↗
  • vitamin D3 with K · HelpedI take vitamin D3 with K and the bruising stopped In context ↗
  • network chiropractor · HelpedI go to a network chiropractor who helps a lot. In context ↗
  • Loaded Tea · Helped a lotI also started drinking Loaded Tea. ... The electrolytes were a game changer for me. In context ↗

Approaches: SSRIs · Alternative therapies

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetFirst COVID infection; nearly crippled and disabled themFirst time I had Covid nearly crippled me. In context ↗Moderate
July ‘24Second COVID infection set them backI was still in long covid when I got Covid again and yes I regressed In context ↗Moderate
2025-07-29Missed naps during daughter’s visit; crashedMy daughter visited last week. I wasn’t able to take my naps and really paid the price. In context ↗Moderate
August 2025Steroids gave a glimpse of life without symptomsI was on steroids in August and had a glimpse of what my life could be like without all this. In context ↗MildCorticosteroid pulses
2025-11-12Anxiety controlled with medication; sleep helped by trazodoneI take meds for anxiety and Trazadone for sleep. I have no anxiety anymore. In context ↗Mild
2025-11-14Brain fog lifting and memory improvingMy brain fog has lifted a lot and my memory too I think. In context ↗Mild
2025-12-03Thought they had recovered from long COVID; brain fog gone, mood stable; credited biologicI think that I’ve recovered from long COVID….. think is the operative word. In context ↗Mild
2026-03-06Severe fatigue, TB and joint problems; struggling with work and homeI can barely keep up with my work and home because of physical limitations as well as severe fatigue. In context ↗Moderate
2026-08-13Sleep and electrolyte drink gave energy without jittersMakes me feel energized without jitters. The electrolytes were a game changer for me. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI wasn’t able to take my naps and really paid the price. In context ↗
  • Brain fogMy brain fog has pretty much disappeared In context ↗
  • Mast cell (MCAS) & allergiesmy allergies triggered a flare in my autoimmune disease. In context ↗
  • Sleep problemsI take Trazadone for sleep. In context ↗
  • Pain & fibromyalgiamy shoulders wake me up. In context ↗
  • Muscle weaknessOne evening I couldn’t even sit up straight In context ↗
  • Anxiety & low moodI feel like I just don’t care anymore. In context ↗
  • Hair lossI have had hair loss but think it’s more from taking the GLP-1. In context ↗

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