Disabled by long COVID, some improvement over three years, crediting a biologic
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
I have long covid plus an auto immune disease which was triggered by Covid.
In context ↗ - At worst: Moderate
I can barely keep up with my work and home because of physical limitations as well as severe fatigue.
In context ↗ - Now: Somewhat better
My brain fog has pretty much disappeared and my memory is better ... I can barely keep up with my work and home because of physical limitations as well as severe fatigue.
- Began after: COVID
First time I had Covid nearly crippled me.
In context ↗
Read from 30 of their posts and comments; links to the 23 this page draws on
Summary
Badger 13705 was disabled by long COVID after a first infection and was set back by a second infection. They reported improvement over about three years, with brain fog and memory better, and thought they had recovered from long COVID, crediting a biologic for their autoimmune disease. They still had severe fatigue, joint problems and TB from immune suppression.
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What they tried
What they credit
Also tried
Their words about each treatment
- Montelukast · Helped
the Montelukast has helped a lot with my rhinitis
In context ↗ - Zoloft · Helped
I took Zoloft for years and after I had Covid, it stopped working.
In context ↗ - methylB12 sublingual · Helped
I take methylB12 sublingual. ... It does help a bit.
In context ↗ - taking shorter rests · Not said
Right now I’m just trying to take shorter rests and get stuff done in between.
In context ↗ - Wegovy · Helped
I’m on Wegovy and I’m tired a lot from it. ... On the positive side it lowers my inflammation so I have less pain
In context ↗ - Nasacort · Not said
I use Nasacort and take singulair for asthma and ‘allergies’.
In context ↗ - water pill · Helped
I just started a water pill for my kidneys due to stones. The pain and pressure disappeared.
In context ↗ - steroids · Helped
I was on steroids in August and had a glimpse of what my life could be like without all this.
In context ↗ - biologic · Helped
I’m also on a biologic drug that reduces inflammation which I believe has helped the LC symptoms to improve.
In context ↗ - counseling · No change
I tried counseling but the person wanted to focus on my father’s death when I was 9.
In context ↗ - Trazadone · Helped
I’m prescribed 100 mg but 50 mg is enough for me. ... I take it at bedtime but should really take it an hour before.
In context ↗ - theanine · Helped
It’s not as effective as Xanax but if you take it as soon as you start feeling a little bit anxious, it works very well, for me anyway.
In context ↗ - Xanax · Not said
It’s not as effective as Xanax
In context ↗ - Prozac · Helped
We went back to basics, Prozac, and that worked!
In context ↗ - Wellbutrin · Worse
Wellbutrin made me anxious as did another one that I cannot remember.
In context ↗ - vitamin D3 with K · Helped
I take vitamin D3 with K and the bruising stopped
In context ↗ - network chiropractor · Helped
I go to a network chiropractor who helps a lot.
In context ↗ - Loaded Tea · Helped a lot
I also started drinking Loaded Tea. ... The electrolytes were a game changer for me.
In context ↗
Approaches: SSRIs · Alternative therapies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | First COVID infection; nearly crippled and disabled themFirst time I had Covid nearly crippled me.In context ↗ | Moderate | |
| July ‘24 | Second COVID infection set them backI was still in long covid when I got Covid again and yes I regressedIn context ↗ | Moderate | |
| 2025-07-29 | Missed naps during daughter’s visit; crashedMy daughter visited last week. I wasn’t able to take my naps and really paid the price.In context ↗ | Moderate | |
| August 2025 | Steroids gave a glimpse of life without symptomsI was on steroids in August and had a glimpse of what my life could be like without all this.In context ↗ | Mild | Corticosteroid pulses |
| 2025-11-12 | Anxiety controlled with medication; sleep helped by trazodoneI take meds for anxiety and Trazadone for sleep. I have no anxiety anymore.In context ↗ | Mild | |
| 2025-11-14 | Brain fog lifting and memory improvingMy brain fog has lifted a lot and my memory too I think.In context ↗ | Mild | |
| 2025-12-03 | Thought they had recovered from long COVID; brain fog gone, mood stable; credited biologicI think that I’ve recovered from long COVID….. think is the operative word.In context ↗ | Mild | |
| 2026-03-06 | Severe fatigue, TB and joint problems; struggling with work and homeI can barely keep up with my work and home because of physical limitations as well as severe fatigue.In context ↗ | Moderate | |
| 2026-08-13 | Sleep and electrolyte drink gave energy without jittersMakes me feel energized without jitters. The electrolytes were a game changer for me.In context ↗ | Mild |
Adverse events
- Semaglutide (Ozempic, Wegovy)“I’m on Wegovy and I’m tired a lot from it.” In context ↗ Side effects
- Semaglutide (Ozempic, Wegovy)“I have had hair loss but think it’s more from taking the GLP-1.” In context ↗ Side effects
- “I just got the RSV vaccine and it wiped me out for a week.” In context ↗ Side effects
- Bupropion (Wellbutrin)“Wellbutrin made me anxious as did another one that I cannot remember.” In context ↗ Mood or psychiatric effects
- Sertraline (Zoloft), Trazodone (Desyrel), Fluoxetine (Prozac), Bupropion (Wellbutrin)“Some made me even more anxious.” In context ↗ Mood or psychiatric effects
- “Got TB due to the immune suppressing drugs I take for the auto immune disease.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I wasn’t able to take my naps and really paid the price.
In context ↗ - Brain fog
My brain fog has pretty much disappeared
In context ↗ - Mast cell (MCAS) & allergies
my allergies triggered a flare in my autoimmune disease.
In context ↗ - Sleep problems
I take Trazadone for sleep.
In context ↗ - Pain & fibromyalgia
my shoulders wake me up.
In context ↗ - Muscle weakness
One evening I couldn’t even sit up straight
In context ↗ - Anxiety & low mood
I feel like I just don’t care anymore.
In context ↗ - Hair loss
I have had hair loss but think it’s more from taking the GLP-1.
In context ↗
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