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Long COVID Mild → much betterIll 2.5 years before improving or writingNeeds ongoing treatment

Long COVID with painful joints, tingling and brain fog, much better after acyclovir

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
2.5 years
Last post
Nov 2025
In their words
  • Condition: Long COVIDAll the symptoms that i thought were long covid started 2 years ago. In context ↗
  • At worst: MildI had hard time doing any task, mental or physical, it is almost 60% harder then it actually is In context ↗
  • Now: Much betterIn general I feel much better as I actually work physical labor now and am able to carry weight. In context ↗
Read from 27 of their posts and comments; links to the 19 this page draws on

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Summary

Crocus 71610 had symptoms they thought were long COVID for about two years from 2023: cracking, painful joints, tingling and weak legs, brain fog, chills, low mood, and gluten intolerance after COVID; they also had a reaction to a second Pfizer dose. Gluten avoidance, heavy lifting, probiotics and B vitamins helped some; acyclovir, taken for suspected shingles, cut symptoms by about 95%. By mid-2025 they were 80% recovered, and by August were doing physical work, with flares after reinfection or stress.

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What they tried

Their words about each treatment
  • spinach · Not saidthese nail occurences are related to iron deficiency so i eat a lot more spinach In context ↗
  • quit gluten · HelpedWhen i stay away from gluten it is much less frequent and annoying In context ↗
  • exercises · HelpedDOing exercises and drinking water is the only thing that for sure helps a bunch ... Also, lifting heavy helpeed immensely.
  • drinking water · HelpedDOing exercises and drinking water is the only thing that for sure helps a bunch In context ↗
  • orthodox chritian prayers · HelpedAlso, trg reading or listening to orthodox chritian prayers and quit gliten. ... This really helped me i had hige problems with my hands In context ↗
  • B complex · Helped a lotThere is a medicine called periferisan in Serbia. It is a b complex thing. it has helped me the most out of all things I took. In context ↗
  • vitamin D · HelpedAlso vitamins d and b complex helped a bunch. In context ↗
  • magnesium · Not saidI have been using B complex, vitamin D magnesium, and other pills in order to help myself out In context ↗
  • curcumin tablets with vitamin c · Helpedwhat helped were curcumin tablets with vitamin c In context ↗
  • onion tea · HelpedFor sinus infection best thing i found for me to work and it is natural remedy, onion tea. In context ↗
  • tensing my glute muscles · Helped a lotend immediately after I tense up my glute muscles when I am sitting on standing. In context ↗
  • meditatiion · Helpedmeditatiion for brain fog helps and cleansing your sinuses tooo In context ↗
  • listening to music from specific periods · HelpedWhat i felt helped me was listening to music from specific periods. Maybe old playlists or playing old games. In context ↗
  • slowing down on purpose · HelpedI also felt that slowing down on purpose, makes a ton of difference In context ↗
  • probiotics · HelpedWhat has helped a bunch is probiotics (lately) . In context ↗
  • focusing on the pain and allowing it · HelpedLately i started focusing on something i read about and that is inner physical pain and emotional pain that is not expressed. ... and focusing on the pain and allowing it. In context ↗
  • Acyclovir · Helped a lotwhen I take 400mg of Acyclovir, my sympromps are reduced by 95% In context ↗
  • benzoes · Not saidnot in a way benzoes do, which i also tried In context ↗
  • no fap · HelpedI went on no fap and it slowly got better. In context ↗
  • dandelion root · Helped a lotI was taking different viatmins too , dandelion root helped the most. In context ↗
  • breathing exercises for lymph node drainage · HelpedAnother thing that has helped me is breathing exercises for lymph node drainage. In context ↗
  • spending time in nature · Not saidSpending time in nature In context ↗
  • ivermectin · Worseit is not as dangerpus as ivermectin. i had crazy things happen to me after that In context ↗

Approaches: POTS medication · Antivirals · Brain retraining · Exercise and activity · Mind-body practices · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2023 (about 2 years before May 2025)long COVID symptoms beganAll the symptoms that i thought were long covid started 2 years ago. In context ↗Mild
2024-01-19hand symptoms less frequent off glutenWhen i stay away from gluten it is much less frequent and annoying In context ↗MildGluten-free diet
2025-03-04heavy lifting and glute tensing brought big improvementI also noticed huge improvement when i lift heavy with my arms. In context ↗MildEveryday exercise and activity
2025-04-13joint cracking about 80% lessMy joints crack less overall. Maybe 80 percent less. In context ↗MildProbiotics and fermented foods
2025-05-19acyclovir reduced symptoms by about 95%I have recovered 80% but the last thing that has kept itself was this Shingles thing. In context ↗MildAcyclovir
2025-08-23 (latest report)doing physical labour and carrying weightIn general I feel much better as I actually work physical labor now and am able to carry weight. In context ↗Mild

Adverse events

  • Ivermectin“it is not as dangerpus as ivermectin. i had crazy things happen to me after that” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisei get flushes of flares when i get creatively invested or emotionally hightened In context ↗
  • Brain fogoverall brain fog In context ↗
  • Neuropathy & tinglingtingling in feet, depression, neuropathy, weak muscles in legs In context ↗
  • Pain & fibromyalgiaJoint cracking and pain after using keyboard In context ↗
  • Muscle weaknessweak muscles in legs In context ↗
  • Anxiety & low moodI feel depressed from this In context ↗
  • Temperature regulationweird chills throughout the body In context ↗
  • Light & noise sensitivityhypersensibility, sound irritability In context ↗
  • Mast cell (MCAS) & allergiesi also started being allergic to gluten after covid In context ↗

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