Long COVID
Moderate → relapsedIll 2.5 years before improving or writing
Long COVID with chest pain, POTS and anxiety, improved then relapsed
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2.5 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
I’ve had long covid since last August
In context ↗ - At worst: Moderate
I would also say mine is moderate. Some days were really bad, but most were manageable.
In context ↗ - Now: Relapsed
About 2 months ago, I was feeling about 95%, with an occasional pain here and there. But I relapsed a few weeks ago, back down to 65%.
In context ↗ - Began after: COVID
Caught Covid around August 6th. Recovered from that. August 16th is when everything went to shit.
In context ↗
Read from 208 of their posts and comments; links to the 36 this page draws on
Summary
A Mississippi 19-year-old who fell ill with long COVID in August 2022 had daily chest pain, exercise intolerance, POTS and anxiety. Antihistamine and Mediterranean diets, garlic and baby aspirin brought little relief, and a steroid injection made his heart symptoms worse. After about a year he was at about 70% better, crediting time.
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What they tried
What they credit
Also tried
breathing techniques· Helpedanti histamine diet· HelpedMediterranean/anti-inflammatory diet· HelpedMediterranean/anti-inflammatory diet· Helpedrest between activities· Helpedintermittent fasting (16:8 or 18:6)· Helpedsugar free Gatorade· No changebaby aspirin 81 mg· No changeibuprofen· No changepain cream· No changesteroid injection· Worsevitamin d3 400 IU· Worseraw garlic· Worsecold showers· Not saidsunlight· Not saidmultivitamin· Not saidNOW Foods Vitamin D3/K2· Not saidDoctor’s Best Magnesium Gylcinate· Not saidturmeric and ginger tea· Not saidturmeric and ginger tea· Not said
Their words about each treatment
- breathing techniques · Helped
I used to do wim hof which is great but I found the other technique better for me personally.
In context ↗ - anti histamine diet · Helped
I think it helped me somewhat as well for symptom relief, but like I said I was becoming malnourished and rapidly losing weight so I decided to quit.
In context ↗ - steroid injection · Worse
Steroids are not good for you in general, and they made my heart issues much worse.
In context ↗ - time · Helped a lot
The only thing that helped was time unfortunately.
In context ↗ - sugar free Gatorade · No change
I had sugar free Gatorade at one point. I was drinking it but didn’t really notice a difference.
In context ↗ - Mediterranean/anti-inflammatory diet · Helped
I haven’t noticed any huge improved but I can tell it is helping some, rather than eating anything and everything.
In context ↗ - cold showers · Not said
I’ve been taking cold showers for years. Haven’t really noticed a difference with long Covid
In context ↗ - rest between activities · Helped
I always rest every chance that I get. It’s helped a lot rather than me doing things back to back.
In context ↗ - vitamin d3 400 IU · Worse
I took vitamin d3 400 once and it made me feel weird.
In context ↗ - sunlight · Not said
Maybe sunlight too I guess. At one point I was getting about 30 minutes of sunlight everyday if I had the time.
In context ↗ - intermittent fasting (16:8 or 18:6) · Helped
I start eating around 1:00 PM and stop eating around 5-7:00 PM. Helps out a lot with many different issues such as digestion, blood sugar, etc.
In context ↗ - raw garlic · Worse
I developed GI issues unfortunately, and the garlic was making it so much worse.
In context ↗ - baby aspirin 81 mg · No change
It helped ease my mind a little, but I didn’t notice any change in symptoms. It also dropped my platelet counts by a good but, making them below normal range.
In context ↗ - ibuprofen · No change
The only thing I've tried was baby aspirin and ibuprofen. They didn't really help much.
In context ↗ - pain cream · No change
Tried using pain cream, didn’t really seem to help.
In context ↗ - multivitamin · Not said
I would take vitamins/multivitamin everyday too just for good measure.
In context ↗ - NOW Foods Vitamin D3/K2 · Not said
From what I can tell, they don’t really cause me any issues.
In context ↗ - Doctor’s Best Magnesium Gylcinate · Not said
I was taking magnesium daily for a while, but just recently had a bad experience with it.
In context ↗ - turmeric and ginger tea · Not said
I made that one time. It was so nasty I barely drank any of it.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2022 | Long COVID began after a mild COVID infectionCaught Covid around August 6th. Recovered from that. August 16th is when everything went to shit.In context ↗ | Moderate | |
| December 2022 | Started to be on the better side more oftenLately I’ve been on the “better” side thank God.In context ↗ | Moderate | Time and spontaneous remission |
| June 2023 | Relapsed from about 95% back down to 65%About 2 months ago, I was feeling about 95%, with an occasional pain here and there. But I relapsed a few weeks ago, back down to 65%.In context ↗ | Moderate | |
| August 2023 | Reached around 70% betteraround 70% betterIn context ↗ | Mild | Time and spontaneous remission |
| September 2023 | Body pain spread and became constant, pain above 5/10 everywhereBeen dealing with it since the very beginning, but has gotten significantly worse in the past month or 2.In context ↗ | Moderate | |
| October 2023 | Second COVID infection eased the constant body painI was reinfected, recovered form that so far, and the pain got better. It’s still there, but it’s gone from a 8-9/10 to a 5/10.In context ↗ | Mild | |
| March 2025 | Still mildly affected, symptoms less severe but more consistent; time the only helpIt’s about the same, little better I guess. Time is the only factor for me.In context ↗ | Mild | Time and spontaneous remission |
Adverse events
- Corticosteroid pulses“Steroids are not good for you in general, and they made my heart issues much worse.” In context ↗ Made symptoms worse
- Low-histamine diet“I lost a significant amount of weight and was at one point developing jaundice because of it.” In context ↗ Refeeding or deficiency problems
- Vitamin D and sun exposure“I took vitamin d3 400 once and it made me feel weird.” In context ↗ Side effects
- Garlic and garlic extract“Every time I would eat it I’d have terrible intestinal pains for hours.” In context ↗ Gut side effects
- Aspirin“I was taking it daily, and it turns out that I was making my platelets go low which was putting me at risk of internal bleeding.” In context ↗ Blood count problems
- Intermittent fasting“If I go to long without eating, I start experiencing an increase in symptoms (in number and severity).” In context ↗ Made symptoms worse
- Magnesium“I was taking magnesium daily for a while, but just recently had a bad experience with it.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Heart symptoms & palpitations
The palpitations, unfortunately, are still there for me.
In context ↗ - POTS & dysautonomia
I also developed POTS and it’s gotten a little better over time.
In context ↗ - Pain & fibromyalgia
It’s still there, but it’s gone from a 8-9/10 to a 5/10.
In context ↗ - Anxiety & low mood
One example is the terrible anxiety we all have. I still have it, but it’s gotten a lot better.
In context ↗ - Breathlessness
Still short of breath, especially at night.
In context ↗ - Gut problems
stomach problems that make it difficult to be out in public
In context ↗ - Brain fog
occasional mild brain fog
In context ↗ - Sleep problems
Mine went away overtime but I still have those days here and there
In context ↗ - Neuropathy & tingling
pain, blood pooling, and numbness snd tingling
In context ↗ - Mast cell (MCAS) & allergies
food intolerances that basically keep me from eating tasty food (histamine, sugar, carbs, etc)
In context ↗
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