ME/CFS
No benefit
ME/CFS with exhaustion, brain fog and pain, no improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- most of my life
- Last post
- Feb 2024
In their words
- Condition: ME/CFS
had ME/CFS diagnosed years prior to the Covid I had
In context ↗ - Now: No benefit
I'm so tired of being exhausted, in discomfort, stressed, bloated, and in the bathroom more than I care to be for sure.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Zephyr 93671 had ME/CFS diagnosed years before COVID-19. A first infection in February 2020 led to long COVID; a second in September 2023 resolved. July 2022 surgery for sleep apnoea and an overbite left lasting burning, stinging and numb lower lip and chin pain. At the latest post they still reported exhaustion, IBS, fibromyalgia, brain fog and visual blurriness, and were waiting for a stellate ganglion block for the lip pain.
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What they tried
Their words about each treatment
- C-Pap and Bi-Pap · Worse
Failed C-Pap and Bi-Pap due to more severe aerophagia and bloating.
In context ↗ - UPPP, genioglossus advancement and septoplasty · Much worse
The surgery was performed because of apnea, a severe overbite and choking all night ... it left me with a never-ending lower painful, burning, stinging and weirdly sort-of numb lower lip and chin
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| years prior to 2020 | ME/CFS diagnosedhad ME/CFS diagnosed years prior to the Covid I hadIn context ↗ |
| 2/2020 | first COVID-19; long COVID resultedfirst time 2/2020 with long covid resultingIn context ↗ |
| July 5, 2022 | surgery left lasting lip and chin nerve painI had a UPPP, genioglossus advancement and septoplasty done on July 5, 2022 and it left me with a never-ending lower painful, burning, stinging and weirdly sort-of numb lower lip and chin.In context ↗ |
| 2024-02-25 | still exhausted with IBS, fibromyalgia, brain fog and visual blurrinessI'm so tired of being exhausted, in discomfort, stressed, bloated, and in the bathroom more than I care to beIn context ↗ |
Adverse events
- Sinus, jaw and tonsil surgery“it left me with a never-ending lower painful, burning, stinging and weirdly sort-of numb lower lip and chin.” In context ↗ Nerve pain
- CPAP and sleep apnoea treatment“Failed C-Pap and Bi-Pap due to more severe aerophagia and bloating.” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsNeuropathy & tinglingPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Brain fog
brain fog, visual blurriness
In context ↗ - Vision problems
visual blurriness
In context ↗ - Gut problems
I have been dealing with IBS, chronic fatigue and Fibromyalgia for most of my life.
In context ↗ - Sleep problems
choking all night as soon as I lose consciousness and drift off to sleep
In context ↗ - Neuropathy & tingling
never-ending lower painful, burning, stinging and weirdly sort-of numb lower lip and chin
In context ↗