Long COVID
Severe → near normalIll 8 months before improving or writing
In bed with long COVID, now nearly back to normal after black seed oil and rest
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 8 months
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I believe I had COVID in early May 2020 and began having long haul symptoms in June-July 2020.
In context ↗ - At worst: Severe
I literally went from being in my bed, couldn’t cook for my kids, couldn’t drive, could barely walk to the bathroom without feeling like I would fall
In context ↗ - Now: Near normal
now I don’t really have any long haul symptoms except for around my period I get this weird thing that happens with my eyes
In context ↗ - Began after: COVID
I believe I had COVID in early May 2020 and began having long haul symptoms in June-July 2020
In context ↗
Read from 52 of their posts and comments; links to the 15 this page draws on
Summary
Canyon 41071, 35, developed long COVID after a mild infection in May 2020; by July she was in bed, unable to cook, drive or reach the bathroom without feeling faint. Black seed oil eased anxiety, gut and heart symptoms within two weeks, and with rest, electrolytes and time she improved over about eight months. A 2021 pregnancy initially brought symptoms she thought were a relapse, but they were early pregnancy symptoms; she felt near normal after the first trimester and later reported recovery.
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What they tried
What they credit
Also tried
magnesium salt baths· Helpedlavender oil· Helpedashwagandha· Helped · wore offantihistamine· Helpedvitamin injection· Helpedkombucha· Helped · wore offred meat and liver· Helpedhigh dose probiotics· No changevitamin C· No changevitamin D· No changezinc· No changemanuka honey· No changeherbal teas· No changeantivirals· No changeIBS peppermint pills· No changevitamin B12· Worsehomemade yogurt· Not saidmultivitamin· Not saidoregano oil· Not saidantibiotics· Not said
Their words about each treatment
- black seed oil (Nigella Sativa) · Helped a lot
I took one tsp every morning on an empty stomach. After 2 weeks I started to have normal bowel movements and felt a lot better, not cured, but started to feel like myself again.
In context ↗ - time · Helped a lot
I think it just got better with time. Each month was better than the last.
In context ↗ - high dose probiotics · No change
Probiotics did nothing to help my stomach issues so I stopped.
In context ↗ - homemade yogurt · Not said
I was making homemade yogurt to help my gut with good bacteria.
In context ↗ - vitamin C · No change
Vitamin C, D, b12, Zinc ... None of the supplements I took helped when I was very sick.
In context ↗ - vitamin B12 · Worse
vitamin B12 made me extremely irritable so I had to stop taking it
In context ↗ - manuka honey · No change
black seeds, manuka honey ... None of the supplements I took helped when I was very sick.
In context ↗ - herbal teas · No change
herbal teas ... None of the supplements I took helped when I was very sick.
In context ↗ - electrolyte water · Helped
Electrolyte water helped big time.
In context ↗ - magnesium salt baths · Helped
The only things that seemed to do anything or give me just a tiny bit of relief were the magnesium baths and electrolyte water.
In context ↗ - lavender oil · Helped
I used lavender oil to help sleep as well as during the day for calming effects
In context ↗ - ashwagandha · Helped
I was taking a stress reliever supplement that had ashwagandha in it and it helped at first but then I felt like it was messing with my sleep so I stopped that.
In context ↗ - low sugar/low carb, keto style diet · Helped
Other things that helped me were lots of rest, lots of water/electrolytes, lavender epsom salt baths, low sugar/low carb, minimal junk food
In context ↗ - multivitamin · Not said
I now take a multivitamin daily in addition to extra D and C.
In context ↗ - oregano oil · Not said
I also take oregano oil on and off.
In context ↗ - antihistamine · Helped
I was taking an antihistamine almost every day and I didn’t really have any long haul symptoms in April and May that I can think of.
In context ↗ - antibiotics · Not said
I did get a sinus infection last month though and had to take antibiotics.
In context ↗ - antivirals · No change
But I took antivirals and I still had long haul symptoms afterwards.
In context ↗ - vitamin injection · Helped
My doctor gave me a vitamin injection on Saturday and I am feeling less fatigued and have more energy.
In context ↗ - IBS peppermint pills · No change
I also tried ibs peppermint pills but I don’t think they helped much, I can’t really remember.
In context ↗ - kombucha · Helped
I also started drinking Kombucha and I felt amazing on that but then I felt like it wasn’t doing anything so I stopped.
In context ↗ - red meat and liver · Helped
I started to eat steak more often and I noticed I would ALWAYS feel better the next day.
In context ↗ - lots of rest · Helped
Other things that helped me were lots of rest
In context ↗ - prayer and Quran · Helped
I prayed a lot and listened to Quran on YouTube ... The Quran actually helped me sleep better most nights.
In context ↗
Approaches: POTS medication · Alternative therapies · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early May 2020 | COVID infection: chest burning, body aches, loss of taste and smellI believe I had COVID in early May 2020 and began having long haul symptoms in June-July 2020In context ↗ | Mild | |
| July 2020 | in bed with anxiety, brain fog, gut and heart symptoms; could not drive or cookI literally went from being in my bed, couldn’t cook for my kids, couldn’t drive, could barely walk to the bathroom without feeling like I would fallIn context ↗ | Severe | |
| second week of September 2020 | anxiety, fast heart rate and gut symptoms eased; able to drive and cook againTowards the second week of September I start to feel so much betterIn context ↗ | Mild | |
| February 2021 | relapse after shovelling snowFebruary I decided to shovel the snow and I relapse and symptoms are back for the rest of the month on and off.In context ↗ | Mild | |
| March 2021 | felt really good for several monthsI was feeling really good from March-early June 2021In context ↗ | Near normal | Time and spontaneous remission |
| June 2021 | relapse of brain fog, light-headedness and fatigue, later found to be early pregnancyJune-currently experiencing a relapse of symptoms. Brain fog, light headed, feeling off like I could pass out, very tired.In context ↗ | Moderate | |
| late 2021, after the first trimester | felt very close to normal through the rest of the pregnancyafter I got through the first trimester I felt very close to normalIn context ↗ | Near normal | |
| 2024-01-30 | back to normal life with four children; only an eye symptom around her period remainsI don’t really have any long haul symptoms except for around my period I get this weird thing that happens with my eyesIn context ↗ | Near normal |
Adverse events
- Vitamin B12“I found that it made my very irritable and angry so I had to stop taking it.” In context ↗ Mood or psychiatric effects
- Black seed oil (Nigella sativa)“I tried the pills first but they hurt my stomach really bad.” In context ↗ Gut side effects
- Ashwagandha“it helped at first but then I felt like it was messing with my sleep so I stopped that.” In context ↗ Insomnia from treatment
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Post-exertional malaise
any type of exercise or ANY light activity would make me feel worse
In context ↗ - Brain fog
could not drive, could not focus, brain fog
In context ↗ - POTS & dysautonomia
I get dizzy for a few days, anytime I moved my head I was dizzy
In context ↗ - Sleep problems
I had a very hard time falling asleep with all of the weird vibrations and the anxiety
In context ↗ - Pain & fibromyalgia
just all over pain from the minute I wake up
In context ↗ - Headaches & migraine
throbbing head, throbbing nose, sometimes felt like I had a rubberband around my head
In context ↗ - Gut problems
gastrointestinal issues, abnormal bowel movements, extreme nausea, loss of appetite
In context ↗ - Breathlessness
I felt like I couldn’t get a deep breathe esp when going up stairs.
In context ↗ - Heart symptoms & palpitations
a rapid heart rate that would not slow down all day
In context ↗ - Muscle weakness
shaking, jittery, wobbly legs
In context ↗ - Neuropathy & tingling
random nerve pain and tremors in my legs
In context ↗ - Anxiety & low mood
extreme anxiety/panic upon awakening
In context ↗ - Loss of smell or taste
loss of taste and smell (2-3 wks)
In context ↗ - Temperature regulation
chills, overheated, cold feet, and hands
In context ↗ - Vision problems
around my period I get this weird thing that happens with my eyes
In context ↗
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