Long COVID
Moderate → near normalIll 2 years before improving or writingNeeds ongoing treatment
Mostly housebound with long COVID for 18 months, now 80-90% better
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
Infected Dec '21. Long haul started in Jan '22.
In context ↗ - At worst: Moderate
I'm on mestinon and ivabradine which help quite a bit but I'm still mostly housebound. I can drive a little bit. Have to pace.
In context ↗ - Now: Near normal
I got to 95% better after a little over 2 years in 2024. I took 1 gummy 18 mg 4 weeks ago and it is flaring everything made worse by the heat and allergies.
In context ↗ - Began after: COVID
Infection Dec '21 likely omicron.
Read from 72 of their posts and comments; links to the 28 this page draws on
Summary
After a December 2021 COVID infection he was mostly housebound for much of the next 18 months with brain fog, POTS, exercise intolerance and nerve pain. He tried low-dose naltrexone, mestinon, ivabradine, cymbalta, amitriptyline and pregabalin. POTS, thinking and digestion improved by about two years, and by late 2024 he rated himself 80-90% better, golfing, with nerve discomfort left. A 2026 gummy flared his symptoms.
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What they tried
What they credit
Also tried
Mestinon· Helped a lotcorlanor· Helped a lotpropranalol / beta blocker· HelpedLow Dose Naltrexone· Helpedamitriptyline· Helped · wore offcymbalta· Helped · wore offiron supplement· Helpedcoq10 - ubiquinol· HelpedNAC· Helpedcbd cream· Helpedlyrica (pregabalin)· Helped · wore offalpha lipoic acid· Helpedvagus nerve work with functional neurologist· Helpedfish oil / omega 3 fatty acids· Helpedwalking daily / 3 lb weights· Helpedagmatine· Helpedbenfotiamine· Helpedbooster (Pfizer)· No changeTHC gummy· Much worsecognitive behavioral therapy· Not saidpacing· Not saidvit D· Not saidvit C· Not saidb12· Not saidb6· Not saidclaritin· Not saidacetyl carnitine· Not said
Their words about each treatment
- booster (Pfizer) · No change
I got booster a month after and it didn't help my LHC and had headaches for a few weeks.
In context ↗ - propranalol / beta blocker · Helped
take beta blocker and Mestinon which help
In context ↗ - Low Dose Naltrexone · Helped
Helping me with brain fog/cognitive/concentration and energy a little bit. On a very low dose 0.5 mg.
In context ↗ - cognitive behavioral therapy · Not said
I just started cognitive behavioral therapy and think it will be one of the things that turns it around for me.
In context ↗ - amitriptyline · Helped
Took 5 mg for one week seemed to help some but last day it got worse
In context ↗ - cymbalta · Helped
pins and needles it's 95% better with cymbalta
In context ↗ - Mestinon · Helped a lot
Mestion and corlanor have helped A LOT. Mestinon helps some with fatigue and gut motility as well.
In context ↗ - corlanor · Helped a lot
Mestion and corlanor have helped A LOT.
In context ↗ - strict diet (eating very clean, no sugar or salt, no red meat) · Helped
what helps is diet - no sugar or salt, no red meat and eating very clean
In context ↗ - breath work · Helped
Short walks and breath work have helped me
In context ↗ - quercetin complex / quercetin bromelain · Helped
quercetin bromelain and nac tho seems to help
In context ↗ - iron supplement · Helped
Also iron supplement helps as well as coq10 - ubiquol for lower energy.
In context ↗ - pepcid · Helped
pepcid,quercetin bromelain and nac tho seems to help
In context ↗ - NAC · Helped
I started nac seems to help.
In context ↗ - cbd cream · Helped
I use a cbd cream that helps a little.
In context ↗ - lyrica (pregabalin) · Helped
Now on lyrica 75 mg helps a lot
In context ↗ - acetyl carnitine · Not said
acetyl carnitine
In context ↗ - alpha lipoic acid · Helped
alpha lipoic acid
In context ↗ - vagus nerve work with functional neurologist · Helped
working with me on vagus nerve for pots which is helping
In context ↗ - infrared sauna blanket · Helped
started infrared sauna blanket. Think it's all helping
In context ↗ - fish oil / omega 3 fatty acids · Helped
I also take 3g a day of omega 3 fatty acids which helps
In context ↗ - walking daily / 3 lb weights · Helped
Things that help my sfn symptoms are lyrica, walking omega 3s
In context ↗ - agmatine · Helped
also benfotiamine 150 mg 2x a day, alpha lipoic acid, quercetin and agmatine
In context ↗ - THC gummy · Much worse
I took 1 gummy 18 mg 4 weeks ago and it is flaring everything
In context ↗ - time · Helped
I think it's gotten better over time and with functional neuro
In context ↗
Approaches: H2 blockers · Alternative therapies · Diet · Mind-body practices · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| Dec '21 / Jan '22 | COVID infection, long-haul symptoms beginInfection Dec '21 likely omicron. First 2 months brain fog so bad I could not drive.In context ↗ | |
| 2022-12 | LDN eases brain fog and energy; still housebound, off workLow dose naltrexone is helping me feel like a human again.In context ↗ | Low-dose naltrexone |
| 2023-07 | mostly housebound with POTS and worsening nerve symptomsI'm on mestinon and ivabradine which help quite a bit but I'm still mostly housebound. I can drive a little bit. Have to pace.In context ↗ | |
| 2024-02 | POTS and stamina improving around the two-year markYes my POTS symptoms started getting way better around the 2 year mark or slightly beforeIn context ↗ | |
| 2024-07 | POTS gone; walked 2,700 steps in one walk, can golf 9 holesMy pots is gone.I walked 2700 steps the other day in one walk can probably walk 2 or 3 miles. I can golf 9 holes again.In context ↗ | |
| 2024-12-30 | 80-90% better; golfing, working, socialisingI got 80 90% better. I golf, I work, I socialize.In context ↗ | |
| 2026-06-08 | current flare four weeks after an 18 mg cannabis gummy, worsened by heat and allergiesI took 1 gummy 18 mg 4 weeks ago and it is flaring everything made worse by the heat and allergies.In context ↗ |
Adverse events
- Low-dose naltrexone“I started on 1.5 and was helping a lot but heart was racing too much so had to start lower.” In context ↗ Heart rhythm problems
- Low-dose naltrexone“then i went up too fast to 3 mg and did not feel good” In context ↗ Side effects
- COVID vaccination as treatment“I got booster a month after and it didn't help my LHC and had headaches for a few weeks.” In context ↗ Side effects
- Amitriptyline (Elavil)“Took 5 mg for one week seemed to help some but last day it got worse” In context ↗ Made symptoms worse
- Low-dose naltrexone“Ldn helped my brain fog but even at 0.5 caused insomnia may try again st 0.25” In context ↗ Insomnia from treatment
- Pregabalin (Lyrica)“Nerve stuff worsened on lyrica now and using infrared sauna blanket.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseSleep problemsTinnitus
Their words about their symptoms
- Brain fog
First 2 months brain fog so bad I could not drive.
In context ↗ - POTS & dysautonomia
My pots is gone.
In context ↗ - Post-exertional malaise
Lower Energy, Occipital Head Pressure at times, Tinnitus (mild), PEM.
In context ↗ - Tinnitus
Still have mild tinnitus.
In context ↗ - Headaches & migraine
headaches gone for 6 months
In context ↗ - Gut problems
Still have the pots symptoms and gi symptoms of constipation.
In context ↗ - Sleep problems
My only issue left is is sfn symptoms (which is tough to deal with) and insomnia basically.
In context ↗ - Neuropathy & tingling
Still get tingling in my feet.
In context ↗ - Anxiety & low mood
My anxiety is bad because of this a lot worse than before.
In context ↗ - Heart symptoms & palpitations
I did have some SOB and chest issues in the beginning and those got better.
In context ↗
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