Bedridden with long COVID, a bit better but mostly bedridden on turmeric and NAC
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4.5 years
- Last post
- Sep 2025
In their words
- Condition: Long COVID
January will be four years since I’ve had long Covid
In context ↗ - At worst: Severe
I’m still bedridden for the most part so all I do is watch tv and sleep a lot.
In context ↗ - Now: Somewhat better
I take a pretty hefty cocktail of OTC meds that have helped me a lot.
In context ↗ - Began after: COVID
The old me died when I caught Covid and now I’m learning how to live life again in a foreign body that I don’t want to be in
Read from 38 of their posts and comments; links to the 27 this page draws on
Summary
Tide 22453, a woman in Boston, fell ill with long COVID in January 2021 and became bedridden, unable to sit up, with constant migraine, screaming tinnitus and distorted smell. She credited turmeric, fish oil, magnesium, NAC, vitamin D3 and prenatal vitamins with easing inflammation and stopping full-body migraine aches; she said metformin helped overall and Prozac eased COVID symptoms. Three years in she felt a bit better but stayed mostly bedridden with gut, vision and speech problems.
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What they tried
What they credit
Also tried
Their words about each treatment
- meditation, deep breathing and yoga stretches · Helped
I’ve been practicing the Polyvagal Theory for about a month and doing meditation and I’ve seen a drastic improvement in my LC symptoms.
In context ↗ - weed (also CBD and Delta 8) · Helped a lot
The only thing that’s helped my long Covid is weed.
In context ↗ - prenatal vitamins (Nature Made) · Helped
a doctor recommended that I take prenatal vitamins, which I’ve been doing for about a year
In context ↗ - turmeric with bioperine (Qunol) · Helped a lot
I was bedridden and couldn’t even sit up until I started taking turmeric.
In context ↗ - fish oil with omega 3 (Qunol Ultra) · Helped
I didn’t start feeling better until I started taking the Qunol brand of turmeric and fish oil.
In context ↗ - Levothyroxine · Not said
after switching from Levothyroxine to Armour Thyroid
In context ↗ - Metformin · Helped a lot
My doctor also prescribed Metformin, which has helped A LOT in feeling better over all
In context ↗ - D3 · Helped
I take 5,000 IU of D3 a day.
In context ↗ - Bayer aspirin · Not said
I also take Bayer because I fear blood clots.
In context ↗ - positive self-talk, smiling and gratitute exercises · Helped
Being positive, smiling and laughing (even out of nowhere at something funny I remember) has helped tremendously.
In context ↗ - NAC (N-acetyl cysteine, Double Wood) · Helped
N-Acetylene Cystine (I recommend the Double Wood brand from Amazon), sublingual B12
In context ↗ - elderberry · Helped
fish oil and elderberry. ... this is everything I did to get out of the situation you’re currently in.
In context ↗ - Apple Watch · Helped
My Apple Watch has been a godsend throughout these 30 months of hell.
In context ↗ - nicotine vaping · Helped
I also vape weed and nicotine because new studies (and the way I feel) show that TSH and nicotine are helpful
In context ↗ - magnesium (Qunol) · Helped
Qunol turmeric, Qunol magnesium and Qunol fish oil
In context ↗ - Prozac (fluoxetine) · Not said
I’m on 40mg/day and feel like it’s either doing nothing or more harm than good
In context ↗ - talking to Jesus and praying · Helped
I talk to Jesus and relatives who have passed and it’s become a daily ritual that’s helped me heal.
In context ↗ - real food / anti-inflammatory diet · Helped
My general rule of thumb is that if it came from the ground/tree/earth it’s healthy for my body.
In context ↗ - blueberries · Not said
Blueberries are definitely a helpful part of your diet.
In context ↗ - CoQ10 (Qunol Ultra) · Helped
I also take CoQ10 and Zyrtec.
In context ↗ - Sumatriptan · Helped
I also take Sumatriptan if needed, but I haven’t needed it that much since taking a bunch of natural anti inflammatory supplements.
In context ↗ - Tylenol · Not said
Tylenol and Advil are good for days when the pain is really bad.
In context ↗ - zinc · Helped
Zinc helps as well.
In context ↗ - 17 mushroom blend gummy · Not said
I also take this 17 mushroom blend gummy
In context ↗ - Forest Leaf Advanced Collagen · Not said
Forest Leaf Advanced Collagen
In context ↗
Approaches: Alternative therapies · Mind-body practices · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.2 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2021 | Long COVID began after Covid infectionJanuary will be four years since I’ve had long CovidIn context ↗ | Not stated |
| March 2023 | Bedridden, unable to sit up, constant migraine and screaming tinnitusI can’t function. I just hear screaming in my ears and my head is pounding.In context ↗ | Severe |
| April 2023 | Started turmeric and other anti-inflammatory supplements, first reliefI was bedridden and couldn’t even sit up until I started taking turmeric.In context ↗ | Severe |
| 2023-04-15 | Minor crash after sitting in the sun two days earlierI’m having a minor crash right now because I sat in the sun two days ago.In context ↗ | Severe |
| 2024-03-21 | Feeling a bit better on supplements, rest, meditation and stretches in bedI’m finally feeling a bit better.In context ↗ | Severe |
| 2024-07-30 | Full-body migraine aches stopped, but still mostly bedridden and sleeping a lotI’m still bedridden for the most part so all I do is watch tv and sleep a lot.In context ↗ | Severe |
Adverse events
- Fluoxetine (Prozac)“a couple of times I’ve tried to come off of the Prozac (just to reduce the amount of medications I’m taking) and felt like absolute crap” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
My whole body was a migraine until I started this regiment.
In context ↗ - Tinnitus
my tinnitus screaming for the past three weeks
In context ↗ - Brain fog
I have a hard time telling a story because my brain is slow and I fumble for common words.
In context ↗ - Gut problems
I still have awful GI issues that I can’t figure out how to tame.
In context ↗ - Vision problems
my vision is impaired
In context ↗ - Sleep problems
My body can’t stay awake.
In context ↗ - Post-exertional malaise
I’m having a minor crash right now because I sat in the sun two days ago.
In context ↗ - Pain & fibromyalgia
I smoke weed to help with the pain and body aches.
In context ↗ - Anxiety & low mood
I don’t feel like it’s doing anything for my depression, but perhaps I’m wrong.
In context ↗ - Loss of smell or taste
In the beginning all I would smell was cigarette smoke constantly
In context ↗ - Breathlessness
It’s basically all the time. Doing breathing exercises helps.
In context ↗
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