Long COVID: barely conscious, unable to work; sleep and vitamin D helped, then relapsed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 5 months
- Last post
- Apr 2023
In their words
- Condition: Long COVID
5 months post COVID, first infection, only 1 vaccine.
In context ↗ - At worst: Severe
I can't breathe, eat, move, sleep, and the palpitations and DpDr is terrifying me.
In context ↗ - Now: Relapsed
But now i feel like I'm dying again. No med is working.
In context ↗ - Began after: COVID
5 months post COVID, first infection, only 1 vaccine.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They fell ill after a first COVID-19 infection and were writing five months later. They were never hospitalised but spent five days barely conscious, then had to stop working after breathlessness, migraines, hair loss, vision and balance loss. Eating and sleeping more plus vitamin D gave partial improvement, but palpitations, breathlessness and DpDr left them terrified and no medication helped.
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What they tried
What they credit
Also tried
Their words about each treatment
- eating more · Helped
I ate more. Slept more. Took vit d. Lightly pushed my body. I was doing better.
In context ↗
Approaches: Exercise and activity · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 4 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | first COVID-19 infectionI remember nothing but brief moments of being concious for 5 days straight, and my fiance waking me up because he thought I wasn't breathing.In context ↗ | Severe | |
| — | back at work then sent home with shortness of breathAfter returning to work, I had to stay home again after experiencing shortness of breath.In context ↗ | Moderate | |
| — | migraines, hair loss, vision and balance loss; quit jobAfter that-severe migraines accompanied by fatigue, hair loss, vision loss, and balance loss. Quit my job.In context ↗ | Moderate | |
| — | pure hell: panic, insomnia, irregular heartbeat, painAfter that it was pure hell. Panic every night and day, insomnia, irregular heart rate and beat, oxygen dips, pain everywhere.In context ↗ | Severe | |
| — | partial improvement, left with brain fog and poor balanceI was doing better. Doing more. My panic subsided and was just left with brain fog and lack of balance.In context ↗ | Mild | Vitamin D and sun exposure |
| 2023-04-16 | relapse with breathlessness, palpitations and dissociationBut now i feel like I'm dying again. No med is working.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
I'm writing this as it's hard to breath
In context ↗ - Heart symptoms & palpitations
I'm having dissociation, chest pain, and palpitations
In context ↗ - Headaches & migraine
severe migraines accompanied by fatigue
In context ↗ - Hair loss
hair loss, vision loss, and balance loss
In context ↗ - POTS & dysautonomia
was just left with brain fog and lack of balance
In context ↗ - Sleep problems
Panic every night and day, insomnia
In context ↗ - Anxiety & low mood
Panic every night and day
In context ↗ - Gut problems
Inability to swallow. Gi issues
In context ↗ - Pain & fibromyalgia
oxygen dips, pain everywhere
In context ↗ - Neuropathy & tingling
The worse I'd say is the parethesia though.
In context ↗
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