Condition not stated
Severe → no benefitIll for 2 years
Fatigue and widespread pain, in bed 75% of the day and unable to work, no improvement
- Condition
- Condition not stated
- At worst
- Severe (mostly bedbound)
- Ill for
- 2 years
- Last post
- Jul 2024
In their words
- Condition: Condition not stated
I don't even know if I have CFS, my hope is that it's normal fatigue which is one of the potential side effects
In context ↗ - At worst: Severe
lying in bed 75% of the day
In context ↗ - Now: No benefit
Having symptoms since 2 years by now, lying in bed 75% of the day
In context ↗ - Began after: a bacterial or tick-borne infection
I had a massive bladder infection in 2022, did get antibiotics for around 6 months, including fluroquinolones.
In context ↗ - Says they never had: Anxiety & low mood
confirmed I don't have depression, nor anxiety
Read from 11 of their posts and comments; links to the 6 this page draws on
Summary
Mesa 56662 developed fatigue and widespread pain after a bladder infection in 2022 treated with six months of antibiotics, including fluoroquinolones. They described daily afternoon crashes with brain fog, light and noise sensitivity, chills and sweating, and later said they were in bed 75% of the day and unable to work. They suspected antibiotic side effects rather than ME/CFS and reported no improvement.
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What they tried
Also tried
Their words about each treatment
- Antibiotics (fluoroquinolones, Ciprofloxacin, Levofloxacin) · Worse
I'm 99% sure my main issues do stem from the side effects of that medication
In context ↗ - Elvanse · Worse
it feels like the elvanse makes some aspects of my symptoms worse, but not taking the elvanse doesn't make things better though
In context ↗ - Cannabis · Not said
What I currently use for mood and ADHD is cannabis ... I was hoping it would help with the pain but it doesn't help at all in this context.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 21 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | bladder infection treated with six months of antibiotics, including fluoroquinolonesI had a massive bladder infection in 2022, did get antibiotics for around 6 months, including fluroquinolones.In context ↗ | Not stated |
| 2023-12-21 | ongoing fatigue and inactivity; gained about 20 kgI've gained around 20kg of weight becsause I am not active anymoreIn context ↗ | Not stated |
| 2024-03-21 | daily afternoon crashes; could do basic chores and short dog walks but not workI cannot work and live from welfare currently, but I'm able to keep my apartment clean, walk my dog 3 times/ dayIn context ↗ | Moderate |
| 2024-07-08 | still symptomatic and in bed 75% of the dayHaving symptoms since 2 years by now, lying in bed 75% of the dayIn context ↗ | Severe |
Adverse events
- Ciprofloxacin (Cipro), Levofloxacin (Levaquin)“I got floxed, I'm currently not sure if the fatigue I experience is cfs because of the infection etc or because it's also one of the potential side effects of the antibiotics.” In context ↗ Side effects
- Ciprofloxacin (Cipro), Levofloxacin (Levaquin)“numb thigh for around 18 months by now along with other temporary and smaller numb spots ... the muscle pain and weakness, the tendon pain, joint pain” In context ↗ Nerve pain
- Lisdexamfetamine (Vyvanse, Elvanse)“it feels like the elvanse makes some aspects of my symptoms worse” In context ↗ Made symptoms worse
- Lisdexamfetamine (Vyvanse, Elvanse)“it feels like my crashes, when they happen, are way worse when having taken my ADHD meds” In context ↗ Made symptoms worse
Symptoms mentioned
Brain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineLight & noise sensitivityMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I do have this massive and delayed fatigue especially after appointments etc
In context ↗ - Brain fog
massive brainfog, I can't think straight anymore
In context ↗ - POTS & dysautonomia
I get dizzy when I move too fast (e.g. around corners or when preparing food for lunch in the kittchen)
In context ↗ - Sleep problems
at nights where I wake up and sometimes not even need to change my cloths but also the bed sheets
In context ↗ - Pain & fibromyalgia
apart from the joint, muscle and tendon pain and weakness
In context ↗ - Headaches & migraine
headaches almost every day
In context ↗ - Gut problems
sometimes I get nausea (but without actually puking, just this feeling in my stomach)
In context ↗ - Light & noise sensitivity
I get super sensitive to noises, light
In context ↗ - Breathlessness
it feels like breathing is getting "harder"
In context ↗ - Muscle weakness
muscle pain and weakness are getting worse
In context ↗ - Neuropathy & tingling
numb thigh for around 18 months by now along with other temporary and smaller numb spots
In context ↗ - Flu-like symptoms
generally feeling like I have the flu, a hangover and being drunk at the same time
In context ↗ - Temperature regulation
sweating like a pig while lying on the couch or I'm lying under my blanket freezing
In context ↗