Long COVID with full-body pins and needles, much better; credits time and nattokinase
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Jun 2025
In their words
- Condition: Long COVID
I've been dealing with LC for a year or so now with different things, some come, some go
In context ↗ - At worst: Moderate
I just get shaky, exhausted, achy, sweaty etc. That will last for the majority of each day ... Sometimes I feel so miserable that I'll just lay on the floor in a ball.
In context ↗ - Now: Much better
*major* symptoms have for the most part gone away knock on wood ... I can't say I really ever feel "good", I just feel horrible enough to keep me from being non-functional.
In context ↗ - Began after: COVID
I've had pretty much every LC symptom described and docs aren't much help
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
By early 2024 they had had long COVID for about a year, which brought full-body pins and needles triggered by warmth and activity, exhaustion, palpitations, chest pain, brain fog and breathlessness. The pins and needles eventually eased, which they put down to time, though they thought nattokinase might have helped. By mid-2025 they could run again, but yard work triggered a crash lasting over a week.
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What they tried
What they credit
Also tried
Their words about each treatment
- Tylenol/Advil · No change
I've tried Tylenol/Advil with no help
In context ↗ - allergy meds · No change
my allergy meds haven't done anything
In context ↗ - Nattokinase (with serrapeptase, lumbrokinase, bromelain) · Not said
I ordered and took probably two weeks worth of these almost exactly a year ago
In context ↗ - very mild exercise and running · Not said
I was running almost daily (up to 5 1/2 miles) for 45 days
In context ↗ - time · Helped
it seems time is what it took for me.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early 2023 | long COVID onsetI've been dealing with LC for a year or so now with different things, some come, some goIn context ↗ | Not stated | |
| January 2024 | full-body pins and needles triggered by warmth and activity, overwhelmingthe last 30 days it has only gotten worseIn context ↗ | Moderate | |
| mid 2024 | improved considerably, doing mild exercise a few times a weekI had a period where things had improved considerably, I was doing more, even doing very mild exercise for 30 minutes a few times a week.In context ↗ | Mild | |
| early July 2024 | crashed after hurricane: no power 8 days, moving generatorI've felt absolutely miserably for about 4 days nowIn context ↗ | Moderate | |
| 2025-01-18 | pins and needles abatedMine has abated for a while now, thank god. ... it seems time is what it took for me.In context ↗ | Mild | Time and spontaneous remission |
| spring 2025 | able to run again almost daily for 45 daysI was running almost daily (up to 5 1/2 miles) for 45 daysIn context ↗ | Near normal | |
| 2025-06-20 | crashed after yard work; exhaustion, flu-like feeling, stopped runningafter a month and a half, something kicked in and boom, I feel miserable againIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I get these mild to severe pin prick/needles under my skin
In context ↗ - Brain fog
major brain fog the last few days
In context ↗ - Breathlessness
I'm having these on/off issues breathing
In context ↗ - Muscle weakness
Beyond the exhaustion, weakness, breathing issues
In context ↗ - Heart symptoms & palpitations
My heart palpitations/pain has returned
In context ↗ - POTS & dysautonomia
getting light headed
In context ↗ - Sleep problems
waking up in the middle of the night
In context ↗ - Temperature regulation
my body reacting to being warmer than a baseline temperature
In context ↗ - Post-exertional malaise
yard work that triggered it, and I've felt miserable for over a week now
In context ↗ - Flu-like symptoms
It's kind of like what you feel like when you get the flu
In context ↗ - Pain & fibromyalgia
I just get shaky, exhausted, achy, sweaty etc
In context ↗ - Anxiety & low mood
I'm terrified because I live in Texas
In context ↗
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