Long COVID
Severe → relapsedIll 4 years before improving or writing
Long COVID racing heart and skin issues eased then relapsed; largely bedridden
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- May 2026
In their words
- Condition: Long COVID
This all happened in June 2022 after getting covid-19.
In context ↗ - At worst: Severe
I just spend every day in bed and deem it a sick day
In context ↗ - Now: Relapsed
My pots went away too but it randomly came back. It didn’t heal. It just went into remission
In context ↗ - Began after: COVID
Initial infection: June 3rd, 2022
Read from 47 of their posts and comments; links to the 20 this page draws on
Summary
Wave 94033 caught COVID in June 2022 at 28 and developed racing heart, adrenaline dumps and skin reactions, while her existing chronic migraine worsened and numbness slowly worsened over four years. Tachycardia and skin issues eased after months but relapsed around 20 months, and fear of MCAS led to food restriction and 79 pounds; she became largely bedridden. B12 injections from late 2025 lifted her blood levels without easing the numbness, and she stopped them because they left her weak and bedridden. She said she had only worsened.
Ask Miruvor AI
What they tried
Also tried
long walks· Helpedfragrance-free detergent and avoiding dryer sheets· Helpedmagnesium· Helped · wore offpotassium· Helped · wore offLiquid IV and IV fluids· Helped · wore offLiquid IV and IV fluids· Helped · wore offlow histamine diet· No changechicken and rice elimination diet· Worsepositive affirmations· WorseB12 injections· WorseTums· Not saidyoga and stretching· Not saidAmoxicillin (Amoxil)· Not saidAntidepressants (unspecified)· Not said
Their words about each treatment
- chicken and rice elimination diet · Worse
i panicked and stopped eating everything apart from chicken and rice
In context ↗ - long walks · Helped
And exercising well really helps. I take long walks and see great improvement on palpitations.
In context ↗ - low histamine diet · No change
i made the choice to axe the guac off my bowls because everyone told me to eliminate high histamine foods, so i did despite it not doing anything
In context ↗ - Tums · Not said
began taking tums nearly every day
In context ↗ - yoga and stretching · Not said
Tried yoga and my muscles are extremely weak and shakey after 15 minutes.
In context ↗ - fragrance-free detergent and avoiding dryer sheets · Helped
Since moving and getting my own washer and dryer and using strictly All free and clear, I don’t have anymore skin issues
In context ↗ - magnesium · Helped
temporarily they went away after being given magnesium, potassium; and liquid iv
In context ↗ - Liquid IV and IV fluids · Helped
They gave me a liquid iv and i literally watched the symptoms go away.
In context ↗ - positive affirmations · Worse
I really don’t like the affirmations they wrote me.
In context ↗ - B12 injections · Worse
I really couldn’t tolerate the injection. They would make me so weak that i would feel like i was not gonna make it. And then id be bedridden for days.
In context ↗ - Amoxicillin (Amoxil) · Not said
I also remember once being really sick for a few months waking up with nausea every day from amoxicillin.
In context ↗ - Antidepressants (unspecified) · Not said
I also have had life threatening reactions to anti depressants
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2022 | COVID-19 (Omicron) infectionThen, june 2022, it happened. Omicron infection. Felt like a very bad flu.In context ↗ | Mild |
| August 2022 | high heart rate, adrenaline dumps, burning skin, breathing episodesitting up causing 180. Adrealine dumps. Skin imprints. Burning skin if i scratched it. Brain fog. INSANE GERD.In context ↗ | Moderate |
| December 2022 | heart rate and adrenaline dumps settledIn december, my heart rate issues went away and so did the dumps.In context ↗ | Mild |
| March 2023 | GERD, seasonal allergies and brain fog became extremely severeIn march, my gerd and seasonal allergies and brain fog became extremely severe (California super bloom)In context ↗ | Moderate |
| October 2023 | food restriction down to 79 pounds, chronic numbnesswound up in October at 79 pounds as a 5’3 womanIn context ↗ | Severe |
| December 2023 | bedridden by migraines for nearly the whole month, dumps returnedin December , i became bed ridden by really bad migraines for nearly the entire monthIn context ↗ | Severe |
| January 2024 | moved to Ohio; sleep, anxiety and skin improvedSince moving, I sleep better and my anxiety has lessened due to better quality of life. Still feeling unwell..In context ↗ | Moderate |
| February 2024 | POTS relapse with adrenaline dumps and skin imprintsim 20 months post and suddenly have relapsed and am having pots symptoms again, adrenaline dumps again, skin imprints AGAIN.In context ↗ | Moderate |
| April 2024 | felt much better after a spell of extreme fatigueI feel much better! I hope you feel better soon <3In context ↗ | Moderate |
| May 2026 | numbness worsened over four years; disabled and malnourishedI have slowly over the last 4 years only worsened.In context ↗ | Severe |
Adverse events
- Amoxicillin (Amoxil)“I also remember once being really sick for a few months waking up with nausea every day from amoxicillin.” In context ↗ Gut side effects
- Antidepressants (unspecified)“I also have had life threatening reactions to anti depressants” In context ↗ Side effects
- Elimination diets (other)“I began blaming food and wound up in October at 79 pounds as a 5’3 woman.” In context ↗ Refeeding or deficiency problems
- Vitamin B12“They would make me so weak that i would feel like i was not gonna make it. And then id be bedridden for days.” In context ↗ Made symptoms worse
Symptoms mentioned
Brain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problemsTemperature regulation
Their words about their symptoms
- Brain fog
hard to concentrate and my head feels like mush
In context ↗ - POTS & dysautonomia
my original pots symptoms went away around the 3-4 month mark
In context ↗ - Sleep problems
Since moving, I sleep better and my anxiety has lessened due to better quality of life.
In context ↗ - Pain & fibromyalgia
I’m noticing that its heavily contributing to my chronic body pain.
In context ↗ - Headaches & migraine
MIGRAINES ARE REALLY BAD
In context ↗ - Gut problems
GERD. Horrible bad gerd.
In context ↗ - Breathlessness
I felt like I couldn’t get enough air
In context ↗ - Heart symptoms & palpitations
Hadn’t had a palpitation episode in 7 months and got hit with one today
In context ↗ - Muscle weakness
my muscles are extremely weak and shakey after 15 minutes
In context ↗ - Neuropathy & tingling
Im completely entirely disabled unable to care for myself because of the neuropathy
In context ↗ - Temperature regulation
I had it for 4-5 months and 9 months in, i’m doing better
In context ↗