Long COVID
Moderate → much betterIll 2.5 years before improving or writingNeeds ongoing treatment
Long COVID with brain fog and panic, much better on cromolyn sodium
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2.5 years
- Last post
- May 2025
In their words
- Condition: Long COVID
I just got ivermectin for long covid and it actually really is working.
In context ↗ - At worst: Moderate
I have messed up multiple job interviews because of this and can’t sit down for a dinner out because I am so restless.
In context ↗ - Now: Much better
My symptoms have dramatically went down over this last year. The first year I could barely function.
In context ↗ - Began after: COVID
I recently had covid and it lasted almost 4 weeks of utter hell.
In context ↗
Read from 69 of their posts and comments; links to the 37 this page draws on
Summary
Got COVID in November 2022 and spent the first year barely able to function, with panic attacks, adrenaline surges, brain fog and histamine intolerance. Ivermectin, fasting and antihistamines gave only short-lived relief; later a low-histamine diet, lactulose and prebiotics brought steady gains. Mental symptoms worsened in autumn 2023, but by 2025 they called cromolyn sodium the only thing that really worked.
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What they tried
What they credit
Ivermectin· Helped a lot · main · wore offLactulose· Helped a lotCromolyn sodium· Helped a lot · mainFLCCC protocol· Helped · wore offVitamin C· HelpedVitamin D· HelpedMagnesium· HelpedZinc· Helped24 hour fast· Helped · wore offLow histamine diet· HelpedDrinking a lot of water· HelpedQuercetin· Helped
Also tried
Benedryl· Helped · wore offPepcid· HelpedNAC· HelpedAfrin· HelpedXanax· Helped · wore offClaritin· No changeAnimal based diet· No changeBrain retraining· No changeProbiotics· No changeVyvanse· WorseAdderall· WorseDAO enzymes· WorseAlcohol· Much worseHomemade sauerkraut· Not saidLactoferrin· Not said
Their words about each treatment
- Benedryl · Helped
I started taking extra strength benedryl and it seems to be helping now with the adrenaline attacks and extreme brain fog
In context ↗ - Claritin · No change
I tried claratin but got absolutely no relief.
In context ↗ - Pepcid · Helped
I started taking Pepcid yesterday and almost had instant relief from the intense nausea
In context ↗ - Ivermectin · Helped a lot
I just was able to get some and I’m not going to lie to you it took every single one of my symptoms away
In context ↗ - FLCCC protocol · Helped
I myself have done the protocol ... I decided to stop doing it because I thought I was fine but I was very mistaken
In context ↗ - Vyvanse · Worse
When I take it my anxiety now goes insane. Like racing thoughts all day long ... I’m on an extremely low dose
In context ↗ - Adderall · Worse
if I take the 5 mg adderall later I feel like im going to die
In context ↗ - Vitamin C · Helped
I’ve been taking antihistamines and loading up on vitamin c, magnesium, vitamin d, and zinc. I’ve been feeling better.
In context ↗ - Vitamin D · Helped
I have been taking vitamin D as well and also magnesium.
In context ↗ - Magnesium · Helped
loading up on vitamin c, magnesium, vitamin d, and zinc. I’ve been feeling better
In context ↗ - 24 hour fast · Helped
I did a 24 hour fast yesterday and I never experienced one of these attacks ... much of my brain fog is gone too
In context ↗ - NAC · Helped
I forgot to mention I’m also taking NAC that also helps with histamine intolerance
In context ↗ - Low histamine diet · Helped
Just started following the diet and it’s a night and day difference in symptoms.
In context ↗ - Animal based diet · No change
I’ve tried animal based diets, fasting, trying my best to cut out coffee and alcohol, and nothing has really helped.
In context ↗ - Afrin · Helped
sometimes anxiety will be very high and using afrin for some reason helps
In context ↗ - Drinking a lot of water · Helped
I think drinking a lot of water helped too
In context ↗ - Xanax · Helped
taking Xanax in order to sedate my body. And when they kick in I feel like my old self
In context ↗ - Alcohol · Much worse
Having 3 Jack and cokes the other night resulted in the worst panic attack I’ve ever had to date.
In context ↗ - Brain retraining · No change
I did do brain retraining actually when I was having anxiety and it worked. In this case it’s not working for me
In context ↗ - Quercetin · Helped
What has worked for me far better then anti histamines has been quercetin.
In context ↗ - Lactulose · Helped a lot
I use lactulose and it has been the only thing that has helped all my long covid symptoms.
In context ↗ - Probiotics · No change
I haven’t noticed much luck with probiotics for some reason.
In context ↗ - Homemade sauerkraut · Not said
What I did was start making homemade saurkraut which is loaded with probiotics.
In context ↗ - Lactoferrin · Not said
I took about 1000 mg daily for a few months. At first it gave me a brutal headache and some odd stomach discomfort.
In context ↗ - Cromolyn sodium · Helped a lot
Honestly the only thing that has worked for me was cromolyn sodium.
In context ↗ - DAO enzymes · Worse
Unfortunately it did nothing for me either and sometimes made it worse
In context ↗
Approaches: POTS medication · Antihistamines & MCAS · Diet · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022-11 | COVID infection with symptoms that never settledI recently had covid and it lasted almost 4 weeks of utter hell.In context ↗ | Moderate | |
| 2022-12 | brain fog and energy improved on ivermectinI just got ivermectin for long covid and it actually really is working. The brain fog is subsiding and so is my depersonalization.In context ↗ | Mild | Ivermectin |
| 2022-12 | symptoms returned after stopping ivermectinInitially I took it for 2 weeks and felt great and then symptoms returned when I stopped.In context ↗ | Moderate | |
| 2023-06-27 | reported about 75 percent recoveredI believe I’m 75 percent recovered.In context ↗ | Mild | |
| 2023-09-23 | extreme paranoia, panic and depressive episodesMost of my gut issues have gone away but I have really bad mental issues that will not stop.In context ↗ | Moderate | |
| 2024-07-07 | prebiotics and lactulose helped gut and long covid symptomsAdding prebiotics has helped me the most with my gut. I use lactulose and it has been the only thing that has helped all my long covid symptoms.In context ↗ | Mild | Probiotics and fermented foods |
| 2025-05-10 | cromolyn sodium the only thing that has workedHonestly the only thing that has worked for me was cromolyn sodium. I’m 2.5 years into this.In context ↗ | Mild | Cromolyn (Gastrocrom, Nalcrom) |
Adverse events
- Lisdexamfetamine (Vyvanse, Elvanse), Amphetamine salts (Adderall)“if I have any stimulants I have a severe panic attack for no reason” In context ↗ Mood or psychiatric effects
- Lisdexamfetamine (Vyvanse, Elvanse), Amphetamine salts (Adderall)“if I take that I end up bouncing off the walls which never happened to me before” In context ↗ Mood or psychiatric effects
- Amphetamine salts (Adderall)“I’m going to have to quit caffeine and my adderall prescription since they are sending me into a state of panic” In context ↗ Mood or psychiatric effects
- Amphetamine salts (Adderall)“if I take the 5 mg adderall later I feel like im going to die” In context ↗ Side effects
- Lisdexamfetamine (Vyvanse, Elvanse), Amphetamine salts (Adderall)“For me they send me into intense panic attacks for the rest of the day” In context ↗ Mood or psychiatric effects
- Lisdexamfetamine (Vyvanse, Elvanse), Amphetamine salts (Adderall)“As soon as I take either one of them I start sweating like a pig and the rest of the day is pretty much ruined” In context ↗ Side effects
- Amphetamine salts (Adderall)“adderall doesn’t help at all and just makes the rest of the day stressful” In context ↗ Mood or psychiatric effects
- Lisdexamfetamine (Vyvanse, Elvanse), Amphetamine salts (Adderall)“When I take it my anxiety now goes insane. Like racing thoughts all day long” In context ↗ Mood or psychiatric effects
- Alprazolam (Xanax)“Yes I noticed the rebound of Xanax was brutal” In context ↗ Withdrawal problems
- Lactoferrin and colostrum“At first it gave me a brutal headache and some odd stomach discomfort” In context ↗ Side effects
- DAO enzymes“Unfortunately it did nothing for me either and sometimes made it worse” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeart symptoms & palpitationsMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Brain fog
The brain fog is absolutely severe and I have depersonalization.
In context ↗ - Anxiety & low mood
Still get anxious if I have to drive myself somewhere.
In context ↗ - POTS & dysautonomia
My heart rate sits at around 100 all day and if I stand it’s like 115-120 sometimes.
In context ↗ - Mast cell (MCAS) & allergies
First year brutal, second year bearable ... Majority if not all of my symptoms are from high levels of histamine.
In context ↗ - Gut problems
Most of my gut issues have gone away but I have really bad mental issues
In context ↗ - Sleep problems
intense panic attacks with insomnia at night
In context ↗ - Neuropathy & tingling
I had slight tingling and anxiety in the morning but it quickly dissipated.
In context ↗ - Heart symptoms & palpitations
I always feel this pressure in my chest to.
In context ↗ - Breathlessness
I couldn’t breathe, pounding heart rate, dizzy, vomiting, vertigo
In context ↗ - Flu-like symptoms
im waking up feeling like I have the flu ever single day
In context ↗ - Post-exertional malaise
The only time I get them now is if I extremely overdo something
In context ↗ - Muscle weakness
I got very disoriented and felt weak.
In context ↗
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