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Long COVID Severe → much betterIll 6.5 years before improving or writing

Long COVID, barely able to carry groceries, much better on lisinopril and amlodipine

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
6.5 years
Last post
Oct 2026
In their words
  • Condition: Long COVIDThen l got full-blown LC. In context ↗
  • At worst: SevereI basically lost all functioning for weeks, persistent fatigue, tachycardia, dizziness, I was a wreck. Could barely carry groceries inside the house. In context ↗
  • Now: Much betterFrom my lowest to highest...70%. In context ↗
  • Began after: COVIDafter the initial infection (spring 2020) I got palpitations (inappropriate tachycardia)
Read from 36 of their posts and comments; links to the 24 this page draws on

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Summary

A New York personal trainer developed inappropriate tachycardia after COVID in spring 2020; it resolved after a second Moderna dose. In spring 2022 presyncope and a TIA left them barely able to carry groceries, and lisinopril then amlodipine gradually helped. A later vaccine dose brought insomnia, GERD and constant colds. By late 2026 they rated themselves 70% from their lowest to highest, with daily symptoms remaining.

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What they tried

Their words about each treatment
  • Moderna vaccine · HelpedOnly ended once l got the 2nd dose of the initial vaxx by Moderna. In context ↗
  • lisinoprol · HelpedI got on lisinoprol and it gradually got better until l.was able to lift again In context ↗
  • proponolol · WorseGot on proponolol but almost passed out due to hypotension so went off that In context ↗
  • amlodapine besylate · HelpedWhat worked for me was amlodapine besylate, my 3rd blood pressure med, basically cut most of my cardiac symptoms in half. In context ↗
  • Magnesium · HelpedBiggest boon for me is magnesium and CoQ 10. On them, i never fall asleep at work or during meditation anymore. In context ↗
  • omega 3's / fish oil · Not saidIm on Magnesium, CoQ10, omega 3's and saccharomyces boulardii. In context ↗
  • saccharomyces boulardii · Helpedsaccharomyces boulardii and RYZE coffee for GI issues In context ↗
  • sleep supplement from Bionutritionals · HelpedI also take a sleep supplement from "Bionutritionals" that works OK at best. In context ↗
  • B12 · WorseB12 does me in at any dose In context ↗
  • Multis · WorseMultis always fuck me up In context ↗
  • Methylene Blue · WorseSo far, 10 drops has made my symptoms worse. In context ↗
  • slow-release melatonin · HelpedI thought melatonin wasn't doing anything until l stopped taking it. It does help. In context ↗
  • Benadryl · Helpedthe only thing that helps is benadryl In context ↗
  • vitamin C packets · Not saidI take vitamin C packets every day...1,000 mg's worth. In context ↗
  • mitopure · Not saidI am currently on Amlodipine, Saccharomyces probiotic, magnesium, mitopure, Berberine, fish oil and CoQ10 and STILL, I've been bumped down to almost day one In context ↗
  • Berberine · HelpedBefore it, alcohol felt like it was going to kill me, now l can binge amd be fine. Didnt realize what it was until l forgot to take it In context ↗
  • hydromoxine · Helpedhydromoxine + Tylenol PM for sleep In context ↗
  • L Tyrosine · Not saidI want to plug L Tyrosine here too as it helps produce dopamine. I started taking it for ADHD In context ↗
  • Cortisol Support · HelpedCortisol Support. I can actually sleep under 9 hours and feel rested the next day and actually get out of bed without hitting snooze a million times. In context ↗
  • Ashwaganda KSM 66 and organic tumeric · HelpedAshwaganda, KSM 66, sunflower seed abstract, L Theanine, organic tumeric and a bunch of other shit In context ↗
  • L Theanine · HelpedL Theanine, organic tumeric and a bunch of other shit In context ↗
  • AHCC and medicinal mushrooms (reishi, shiitake, maitake) · Not saidI'd take Turkey Tail but it messes up my heart In context ↗

Approaches: Calcium channel blockers · Supplements · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y6 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
spring 2020COVID followed by inappropriate tachycardia for a yearafter the initial infection (spring 2020) I got palpitations (inappropriate tachycardia), for a year In context ↗Mild
2021tachycardia resolved after Moderna dose 2Only ended once l got the 2nd dose of the initial vaxx by Moderna. In context ↗Near normalCOVID vaccination as treatment
spring 2022presyncope then a TIA; lost all functioning for weeksI basically lost all functioning for weeks ... Could barely carry groceries inside the house. In context ↗Severe
2022gradually able to lift againI got on lisinoprol and it gradually got better until l.was able to lift again In context ↗Mild
2024switched to calcium channel blocker, symptoms betterCalcium blockers have had the best impact positively for me. In context ↗Mild
Nov 2024another vaccine dose, then constant throat infections and bad sleepever since l got the last vaccine in Nov, I've had throat infections constantly In context ↗Mild
2026-01-30bumped back almost to day one; could not stand up at workNow I'm back almost to the very beginning...when I was on NO meds or supplements. In context ↗Moderate
2026-05-27more energy, less sleep neededNow I have more energy and went from needing 9.5 plus hours of sleep to being able to function with 8 hours 50 minutes. In context ↗Mild
2026-10-07about 70% better than their lowest, still symptomaticFrom my lowest to highest...70%. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsinappropriate tachycardia In context ↗
  • POTS & dysautonomia35 symptoms including dizziness, double vision and disassociation In context ↗
  • Sleep problemsI sleep around 9 and a half hours a night but only with Benadryl and slow-release melatonin 2.5 mg In context ↗
  • Brain fogChronic fatigue, brain fog, joint and muscle pain, and headaches In context ↗
  • Headaches & migrainestarted to get migraines looking at computer screens at night In context ↗
  • Gut problemsIt gave me GERD and insomnia which l didn't have before In context ↗
  • Anxiety & low moodpanic attacks with suicidal ideation In context ↗
  • Flu-like symptomsI've had throat infections constantly In context ↗
  • Breathlessnesswhether it be tachycardia, dyspnea ora panick attack In context ↗
  • Muscle weaknessCould hardly carry groceries or do 1 push up for a month In context ↗

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